diddlytwoshoes

Advocate for more biomedical research into & treatment of ME/MCAS/POTS/Dysautonomia, hypermobility/EDS, Long Covid #BLM...Socialist

[Olga Rodríguez Francisco ✍️ @olgarodriguezfr]

“Los Estados miembros me han dejado sola mientras EEUU se comporta como un abusador”

Conversé con la relatora de la ONU, Francesca Albanese, sobre las sanciones de EEUU contra ella, que afectan a sus cuentas bancarias, transacciones, etc

Del podcast ‘Donde callan las armas’ @CentreDelas

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Right, IVIG works. We reviewed IVIG reports in scientific literature in our paper on immunotherapies in #POTS, other common autonomic disorders and #LongCOVID. But one researcher in Long COVID space says that we're all wrong and that IVIG doesn't work. 🙄
https://t.co/Mm42oPesAY

[Katherine @supressedvoic]

Suspend Israel from the UN.
Do you agree with her??

[ME Research UK @MEResearchUK]

In case you missed it, here is an article on the topic of immunoadsorption treatment in ME/CFS: https://t.co/JyEJIRYB6N

[davidtuller @davidtuller1]

Why do these people keep promoting exercise studies with reported benefits that do not reach the threshold for clinical significance? Here's another one of these, from @JAMANetworkOpen:
https://t.co/vG37mdsPwB

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

This is a very important topic: what is "true autonomic dysfunction" and who gets to decide that. The analogy I always use is headache. If the headache is caused by COVID or if the headache is a migraine, it's still a headache, and neurologists still need to treat it. Autonomic dysfunction is the same: whether it's caused by COVID, Sjogren's or whether it's a primary autonomic disorder like POTS, neurologists still need to treat it. There is no room to pick and choose, and there is certainly no need to delegitimize autonomic dysfunction and many millions of patients who have limited access to care as it is. I discuss these issues in my recent paper on #Dysautonomia.
https://t.co/8uK62B0Kt6

[Dr Julia Grace Patterson💙 @JujuliaGrace]

NHS Trusts are locked into paying private companies over £20 billion 😮🚨😮🚨

Here is the link to EveryDoctor’s investigation: https://t.co/La8UkXgsbU

[Michael R Scoma MD @DrMichaelScoma]

Severe and very severe ME/CFS patients are the sickest patients I’ve ever seen - even compared to septic transplant or end-stage cancer patients.

The unrelenting suffering and lack of research or definitive treatments puts severe ME/CFS on another level. Nothing compares...

[Bateman Horne Center @BatemanHorne]

1 in 4 people with #MECFS are housebound or bedbound. 💙 @EmergeAus’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing.

Read more: https://t.co/UOImHEH8n1
#UnitedForME

[Caisses de grève (Gauche Gaza / Antifasciste) @caissesdegreve]

"Sans le soutien stratégique économique, politique, militaire et diplomatique dont Israël bénéficie, ses crimes n'auraient pas pu perdurer sur une si longue période.
Sans ce système de complaisance et de complicité, le génocide aurait cessé il y a des années."
@FranceskAlbs

[martin compston @martin_compston]

We’re baaaaaaaaack 👮

[Kerry Burgess @KerryBurgess]

There is no ceasefire. Israel is still murdering Palestinians. They are still preventing food, water, prefabricated shelters, medical supplies and fucking journalists from entering Gaza.

[Saul Staniforth @SaulStaniforth]

"Rather than take on the powerful, because the issue here is not immigration, it's inequality, they went for pensioners, they went for the disabled and now they're going for people who are fleeing war"

@ZackPolanski on the govt targeting asylum seekers and refugees. Spot on.

[Billy Hanlon @bhanlon15]

Mass General: 'A Simple Daily Supplement May Help Ease Lingering Long COVID Symptoms'

'A new clinical trial explored whether raising cellular NAD levels with high-dose nicotinamide riboside could influence lingering neurological & physical symptoms in LC'
https://t.co/ixX3wEbm0K

[Owen Jones @owenjonesjourno]

Spot on from @ZackPolanski.

Labour are cowards.

Rather than stand up to the powerful, they pick on pensioners, disabled people and refugees.

[Podemos @PODEMOS]

Mazón se va, pero se queda el PP, se queda Ayuso con su gestión homicida de las residencias, Mañueco y su gestión criminal de los incendios y Bonilla con los cribados en la Junta.

Vamos a trabajar incansablemente para echar a los criminales de las instituciones.

🎥 @ionebelarra

[Ali Milani @AliMilaniUK]

Why is it never too hard to take money off disabled people and the most vulnerable, but always too hard to tax the super-rich?

@RichardBurgon hits the nail on the head.

This is why we need a wealth tax and emergency cost of living support.

[Howard Beckett @HowardRBeckett]

A brilliant, passionate, “furious”Polanski slams Labour’s immigration policy:

‘No one voted for this’
‘The problem is inequality not immigration’
‘Labour has gone after the disabled, pensioners and now those fleeing war zones’
‘This is a government of cowards’

Zack is spot on.

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Some people don't even know that their health problems are #LongCovid. Had a patient today with tachycardia and dizziness for 1.5 yrs. Asked about COVID, she says yes, I had it, it was mild, I recovered. Asked about dates, and surprise, #dysautonomia started shortly after COVID.

[Jeremy Corbyn @jeremycorbyn]

Do not stop speaking about Palestine.
Do not stop speaking about Sudan.
Do not stop speaking up for peace.