Here are 2 updated charts showing the countries with the most #covid19 cases overall & per capita in countries with at least 4m residents and 5k cases. https://t.co/OFMCuqUQk9
We're excited to have launched our new community for those living with (and those with experience of) urea cycle disorders. Watch this space for articles and news on #UCD! #UreaCycleDisorder#OTCD https://t.co/lWpOkOUMwN
"If no one's going to help me then I'm just going to have to help myself" - a sentiment we're all familiar with! Thank you Shamonica for sharing your story. We recorded this video in partnership with @SCDAAorg#sicklecell
Families will be the activators of change in rare disease research Flexed biceps. Our founder @JulieAnnWalters speaks about the power of patient groups in this podcast by @Genialis: https://t.co/5zoZpKHjbb
Raremark helps researchers develop treatments for rare diseases by collecting real world experience data that's unavailable elsewhere. Have a look at some of the data we've gathered: https://t.co/jw1U9PB6IC
🔊 How can AI and technology empower patients to manage their own health, find treatments and feel connected? Our Head of Research & Analysis @PeteChan100 shared his thoughts at the @camraredisease RARE Summit
#RAREsummit19
https://t.co/zMPjRuytAb