Dina Guzovsky

Waylaid by MECFS

[Dina Guzovsky @dinaguzovsky]

@ZekeEmanuel I thought living past 75 is mostly useless?

[Dina Guzovsky @dinaguzovsky]

@ImmunoFever @arisonsned I tried it relatively briefly for MECFS with no success.

[Dina Guzovsky @dinaguzovsky]

@Hopingflower @AlanLevinovitz Even if there wasn't so much evidence of bio abnormalities in LC and MECFS, remember that absence of evidence (of bio cause) is not evidence of absence (of bio cause). Proving the mind-body cause requires its own affirmative evidence (of which there is very little).

[Dina Guzovsky @dinaguzovsky]

@Hopingflower @AlanLevinovitz And I agree patients and activists can shoot themselves in the foot about being completely close-minded re: those approaches.

But once again, the science just supports a completely different explanation of whats going on in these illnesses.

[Dina Guzovsky @dinaguzovsky]

@AlanLevinovitz @zeynep We don't have *any* good treatment yet! We mostly have shots in the dark that help a small fraction of patients -- and that includes brain retraining. But we also have evidence of significant biological abnormalities-so all else equal why isn't that the obvious starting point?

[Dina Guzovsky @dinaguzovsky]

@AlanLevinovitz @zeynep And btw, I completely agree that many "biomechanical" treatments that have helped individual patients have failed and will continue to fail clinical trials. That's because so far there are few good treatments out there -- that's why so many of us are still sick!

[Dina Guzovsky @dinaguzovsky]

@benryanwriter @jessesingal @zeynep Just as one tiny example of new research coming out:

https://t.co/y5XW87ZA7Z

[Prof. Akiko Iwasaki @VirusesImmunity]

Excited to share our study by @keylas3 et al. on pathological autoantibodies in people with Long COVID. We asked whether IgG in patients with Long COVID bind to human tissues/antigens and cause pathologies when transferred into mice. With @PutrinoLab

https://t.co/tcowCufWyf

[Dina Guzovsky @dinaguzovsky]

@benryanwriter @jessesingal ...these voodoo mind body researchers and their enablers constantly get press that's just completely out of step with the actual state of the science. See @zeynep response:
https://t.co/t2qVg7JHHd

[zeynep tufekci @zeynep]

@MeganTStevenson @AlanLevinovitz Problem with this article isn’t that it’s about how medicine’s mind/body duality impedes scientific advances (true), but that it does it without referencing the truly interesting new scientific developments while repackaging stale and incorrect viewpoints by a few as “advances”.