The Mikaela Naylon Give Kids a Chance Act has PASSED in the House of Representatives! Thanks to all that wrote, emailed, tweeted, facebooked and supported this great Childhood Cancer legislation. Now we have to continue to work to get this Act passed in the Senate next week.
BIG NEWS! THE MIKAELA NAYLON GIVE KIDS A CHANCE ACT IS IN THE END OF YEAR PACKAGE (aka the CR!) !!
This week the House will vote and next week, the Senate will vote. There are still risks it could fall apart, but this is a good day.
We dedicate this day to all the kids and young adults who will not have a chance to benefit from the Mikaela Naylon Give Kids a Chance Act.
Thank you to all of us who reposted, created posts, shared, and tagged. Thank you to all the kids - for Climbing the Hill and sharing your journey, for emailing Congressional offices, for speaking to reporters. It mattered.
Federal funding for pediatric cancer research has always been profoundly inadequate and now federal funding for pediatric cancer research has taken a new low -- from not promising continued funding for studies of academic drugs in PBTC's now defunded consortium, to the decision not to fund Duane Mitchell at @UFPharmD 's promising brain tumor research that scored higher than 93% of all submitted grant proposals. What do children with cancer need to do to get support for pediatric cancer research? @JoeBaber1
@realEstateTrent Grew up near there, lots of family in CP. It’s ok. Good proximity to Chicago and nice people. Lack of culture, opportunity and extreme weather are the downsides.
Not all DFR programs are created equal, and neither are their price tags. Some vendors make their solutions seem less expensive by concealing the actual costs of extra equipment, additional staffing, and unspoken fees.
Our VP of Aviation, Rahul Sidhu, explains in his latest article how to calculate the true cost of a DFR program and avoid being misled.
✅ Understand the DFR cost per square mile formula
✅ Spot misleading pricing tactics
✅ Ensure your agency gets real value, not just a sales pitch
Read the full breakdown here: https://t.co/4xASoXWoJf
There’s a bit of confusion as to what happened last night.
By the end:
— none of our bills were in the CR
— Gabriella Miller Kids First Research Act passed. It was UC’ed in the Senate. It had passed the House months ago. The result is a total of $63m for funding.
— the Give Kids a Chance Act went to a UC in the Senate and Sen Paul blocked it. Now companies won’t do studies of cancer cocktails for kids.
— the Give Kids a Chance Act also includes 2 other bills. One is the PRV reauthorization. The PRV program expired last night at midnight. The PRVs had resulted in over 65 new drugs for kids with cancer and other severe illnesses.
— the Give Kids a Chance Act also includes another bill, the Innovation in Pediatric Drugs Act. Because that Act did not pass last night, companies that fail to complete pediatric post market studies do not face the financial penalties that they would if the failed studies are for adults.
— the Accelerating Kids’ Access to Care did not have a UC vote and did not pass. As a result, kids on Medicaid who have cancer or other medically complex illnesses still can’t cross state lines to seek treatment, even if that treatment is better or even life saving.
Unfortunately, the childhood cancer research matter is not yet moot. @elonmusk, please help. I know you care about children. Please contact me — we can fix this.
— none of our bills were in the final CR
— Gabriella Miller Kids First Research Act passed after a Senate UC. It had passed the House months ago. The result is a total of $63m for funding.
— the Give Kids a Chance Act went to a UC in the Senate and the UC failed. Now companies won’t do studies of cancer cocktails for kids. Cost=0
— The PRV program expired last night at midnight. The PRVs had resulted in over 65 new drugs for kids with cancer and other severe illnesses. Companies lost a source of no dilutive capital for drug development for kids with cancer and other rare life threatening illnesses.
Cost=0
— Innovation in Pediatric Drugs Act did not pass. Now, companies that fail to complete pediatric post market studies do not face the financial penalties that they would if the failed studies are for adults.
Cost =0
— the Accelerating Kids’ Access to Care did not pass. As a result, kids on Medicaid who have cancer or other medically complex illnesses still can’t cross state lines to seek treatment, even if that treatment is better or even life saving. Cost is quite low because the Medicaid expense is in one state or another.
@chamath As the parent of a kid who battled stage 4 cancer, I do not find the saga fascinsting. I find it infuriating. Thankfully, my child survived. He actually lobbied on Capitol Hill for the original bill. It’s a sad day for us and all cancer kids.
Ever wondered what it takes to build a real-time crime center? Whether you're working with a million-dollar grant or a small but mighty team, Flock's podcast, “Real-Time Policing: When Moments Matter,” is here to show you how real-time policing is changing the game.
Tune in to episode 1, out today.
📹 Watch: https://t.co/qYEnA3k0df
🎧 Listen: https://t.co/3rQTq5Nqtl
Flock Safety is thrilled to announce our strategic partnership with Getac. This collaboration demonstrates our commitment to building partnerships with other leaders in the public safety industry and is a significant step forward in providing a comprehensive solution for law enforcement agencies.
We invite you to visit us this weekend at the IACP Annual Conference, where the Flock Safety team will be at Booth #513 from October 20-22. Together, we’re setting a new standard for public safety.
https://t.co/iXbCLqQfuq
Today, we are excited to announce that Aerodome has officially joined forces with @Flock_Safety. This acquisition unites two of the fastest-growing companies in the public safety industry, creating the best possible outcomes for our shared customers. Together, we are investing more than ever in building the future of air support for public safety agencies nationwide.
Join us at IACP to experience a demo of our new, fully integrated DFR platform and see how our shared vision is coming to life.
Learn more here: https://t.co/P6Zk7ghLfE
The future of crime prevention is here. With the announcement of Flock Safety’s acquisition of @FlyAerodome, we are one step closer to our mission of shaping a safer future, together.
Learn more about how Drone as First Responder (DFR) technology is set to transform public safety: https://t.co/QRQHZZ7yMi
@KindlyLoudly I’m so very sorry for your loss. We had a similar path to stage 4 dx. My son’s GP told us to go on our vacation to Tahiti after seeing the chest x-ray -she thought it was nothing. Turns out he had a 11.8 cm tumor. Had I not insisted on a CT scan, we might not have caught it.
Our new camera technology is helping protect our merchant corridors and small businesses.
Thank you to our @SFPD officers for their work! And thank you to voters for passing Prop E so we can give our officers even more tools like this.