Dystonia Medical Research Foundation

Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.

[Dystonia Medical Research Foundation @dmrf]

Brain donors are making a difference by providing researchers with invaluable brain tissue for study. This priceless gift allows researchers to study actual tissue which is key to learning more and brings us closer to finding a cure.
https://t.co/gJfkORCG0B

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Having dystonia can be a stressful experience. The DMRF offers support groups and educational materials to let people with dystonia know that they are not alone.

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Relaxation techniques are important ways to take care of yourself, especially with chronic conditions like dystonia.

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Visit the new DMRF website: Virtual and in-person events are listed chronologically with additional information. It is also easier to toggle between DMRF events and individual fundraisers.
https://t.co/akEGFvxMPI

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Sharing our lived experiences can be very powerful. Offer support to others in the dystonia community by holding space for their story.

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Living with dystonia presents daily challenges. Don’t be afraid to take some time out to take care of yourself.

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Visit the new online calendar on the DMRF website, with listings of support group meetings and featured events such as Dystonia Zoo Days and webinars.

https://t.co/akEGFvxMPI

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Did you know that you don't have to live in a particular geographic area to join a virtual support group? If you see a meeting on the website calendar that you'd like to attend, reach out to the group leaders for more details.

https://t.co/8DC2TOyiSH

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Oct. 10 is #WorldMentalHealthDay. The theme is "Lived experiences heard: real voices, real change." Members of the dystonia community have a lived experience of a rare neurological disorder. Resources related to dystonia are on the DMRF website:

https://t.co/UCTswJ6m2V
#dystonia

[Dystonia Medical Research Foundation @dmrf]

Join us at the Connecticut Dystonia Zoo Day on Nov. 1. Zoo Day is a meaningful way to come together and remind each other that no one has to face dystonia alone.

Register by the Oct. 14 t-shirt deadline:
https://t.co/LSjOQegLmL

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Stay in the know about what is happening with research, advocacy, education and other resources in the dystonia community with the DMRF monthly e-newsletter. The October e-news is now available: https://t.co/kv7dep6VPh

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Thank you to everyone who participated in the Boston Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here:
https://t.co/TonFAa0bn6

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Thank you to everyone who participated in the Rochester Dystonia Zoo Day. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here: https://t.co/TonFAa0bn6

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Visit the Resource Library on the new DMRF website, with informative content searchable by topic, type of dystonia, articles, brochures/fact sheets, videos and webinars.

https://t.co/akEGFvxMPI

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Dystonia Awareness Month may be over, but you can keep the spirit of Virtual YOU Day alive throughout the year by building community and offering support to others who have been impacted by dystonia.

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

The Boston Dystonia Zoo Day is today, Oct. 4, at the Franklin Park Zoo in Boston. Check in/registration starts at 9 am; program begins at 10 am. A special thank you to all our sponsors for supporting the work of the DMRF.

https://t.co/7b6kL3vURU

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Rochester's Dystonia Zoo Day is today, Oct. 3, at the Seneca Park-Longhouse Shelter followed by the Seneca Park Zoo. Check in starts at 11 am; program begins at 12 pm. A special thanks to our sponsors for supporting the work of the DMRF.
https://t.co/mFbMLQt1OZ
#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

There are many different types of dystonia. It can appear as a symptom in a wide range of other diseases and conditions.

As part of our Ask Me About Dystonia campaign we encourage you to Like and Share quick facts to show the complexity of dystonia.

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Boston Dystonia Zoo Day is Sun 10/4 and it’s not too late to register and join us at the Franklin Park Zoo.

Meet people who understand dystonia and build lasting friendships.

Check-in begins at 9 am, with the program starting at 10 am.

https://t.co/7b6kL3vURU
#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

It’s not too late to join us on Oct 3 for Dystonia Zoo Day at the Seneca Park Zoo in Rochester.

Zoo Day is a chance to meet others who understand dystonia and share experiences.

Check-in is 11 am, and the program starts at 12 pm.

https://t.co/mFbMLQt1OZ

#dystonia #dmrf