Dystonia Medical Research Foundation

Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.

[Dystonia Medical Research Foundation @dmrf]

The DMRF invites you to a webinar focused on the Dystonia Coalition and its mission to advance research through collaboration.
Hear from recognized leaders in dystonia research.

Monday, June 8, 2026
6:00pm CT | 7:00pm ET
Register here:
https://t.co/8NwFpABApn

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Alexandra Thele, MD, University Hospitals Cleveland, received a DMRF Clinical Fellowship. Mentored by Aasef Shaikh, MD, PhD., Dr. Thele will begin her fellowship in July 2026, spend year 1 in clinical training with year 2 focusing on clinical research.
https://t.co/o3qi8216uw

[Dystonia Medical Research Foundation @dmrf]

Dakota Peacock, MD, Stanford U, received a DMRF Clinical Fellowship. Under the mentorship of Jennifer O’Malley, MD, PhD., he will begin his fellowship at Stanford in July 2026 spending year 1 receiving clinical training with year 2 on clinical research.
https://t.co/o3qi8216uw

[Dystonia Medical Research Foundation @dmrf]

The Pedals & Points tour rolls on June 9 into Richmond, VA — 2 days before the fundraiser ends June 11!

Join Jules van Dongen as the campaign races to raise funds for dystonia research.
Follow the tour, and help us finish strong.

Donate Now: https://t.co/vOj7wgDJpW
#dystonia

[Dystonia Medical Research Foundation @dmrf]

Your support advances dystonia research: We appreciate our members’ ongoing support which enables the DMRF to fund grants and fellowships for dystonia research. Renew your DMRF membership by June 15 and receive a free gift.

https://t.co/R7wfOZm9vD

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Don’t miss this upcoming DMRF webinar exploring the work of the Dystonia Coalition and the future of dystonia research.
Featuring:
Hyder A. “Buz” Jinnah, MD, PhD
Joel S. Perlmutter, MD

Monday, June 8, 2026
6:00pm CT | 7:00pm ET

Register: https://t.co/8NwFpABApn

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

June is National Migraine & Headache Awareness Month: Headaches are frequently reported symptoms in people with cervical dystonia (CD). The DMRF has resources available for people with CD and other types of dystonia.

https://t.co/MDNhsliz5b

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

Nguyen Minh Thu Pham, PhD, Yale U, received a DMRF Postdoctoral Research Fellowship for “Autophagic Targeting of Nuclear Condensates to Restore Protein Homeostasis in Dystonia.” His work aims to identify new therapeutic targets and potential treatment strategies.
#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Viviana Hernández Castañón, PhD, Virginia Tech U, received a Postdoctoral Fellowship for “Predictive Modeling of Dystonic Biomarkers Using Minimally Invasive EEG Recordings.” She seeks to find early brain markers that might detect dystonia sooner.
https://t.co/D0TYPacRN2

[Dystonia Medical Research Foundation @dmrf]

Pedals & Points ends June 11!
After being diagnosed with task-specific dystonia, Jules van Dongen channeled his experience into raising awareness and funding for the DMRF.
Let’s end strong and fuel critical dystonia research.

Donate here: https://t.co/vOj7wgDJpW
#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Dystonia is a neurological disorder that affects the physical body. See our brochure for individuals and caretakers to address the non-motor symptoms of dystonia, which may include psychiatric and cognitive issues, decreased sleep, and pain.

https://t.co/Q312Z1wdVz
#dystonia

[Dystonia Medical Research Foundation @dmrf]

Join the DMRF and the Dystonia Coalition for a special webinar:
🔹Hyder A. “Buz” Jinnah, MD, PhD
🔹Joel S. Perlmutter, MD
They’ll discuss the the Coalition’s work and the impact of collaborative research.
June 8, 2026
6p CT/7p ET
Register:
https://t.co/8NwFpABApn
#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Want a digital only version of the next Dystonia Dialogue in July? Save paper and sign up to have the magazine delivered straight to your inbox.

https://t.co/7Lr6bpTz9v

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

May is Mental Health Awareness Month: Dystonia affects people in different ways, and each person’s experience is unique. Being part of a support group offers people impacted by dystonia to connect with others and learn coping strategies.

https://t.co/4VRW1KF1vn

#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Today, we honor and remember those who gave everything in service to our country.

The DMRF salutes our fallen heroes and extends our deepest gratitude to their families. We also remember the veterans and active-duty service members living with dystonia.

#MemorialDay #dystonia

[Dystonia Medical Research Foundation @dmrf]

Join the DMRF webinar about the work of the Dystonia Coalition. Hear from the leaders:
• Hyder A. “Buz” Jinnah, MD, PhD – Director, Dystonia Coalition
• Joel S. Perlmutter, MD – DMRF Scientific Director
Monday, June 8, 2026
6pm CT | 7pm ET
Register:
https://t.co/8NwFpABApn

[Dystonia Medical Research Foundation @dmrf]

Ignacio Keller Sarmiento, MD, Northwestern U, received a DMRF research grant for “Integrative Transcriptomic & Machine Learning Framework for Novel Dystonia Gene Identification.”
He will analyze brain gene-expression and ID potential new dystonia genes.
https://t.co/8KjM2eQWbo

[Dystonia Medical Research Foundation @dmrf]

Portland Dystonia Zoo Day is coming to the Cascade Ballroom of the Oregon Zoo on July 18. Sign up by the t-shirt registration deadline on July 1 so everyone can see that you are a part of the DMRF Zoo Crew!

https://t.co/Uedr6Fipba

#dystonia #dmrf #dystoniafoundation

[Dystonia Medical Research Foundation @dmrf]

The DMRF has awarded a research grant to: Darius Ebrahimi-Fakhari, MD, PhD & Katerina Bernardi, MD, of Boston Children’s Hospital for “Creating Clinical Trial Readiness for cAMP-Related Dystonias through Natural History Characterization and Therapeutic Discovery.”
#dystonia #dmrf

[Dystonia Medical Research Foundation @dmrf]

Good sleep is among the top self-care activities that can help you cope with the non-motor symptoms of dystonia. During Mental Health Awareness Month, it's important to focus on self-care activities that promote good sleep health.
https://t.co/NMDDPl64cu

#dystonia #dmrf