Under the deep blue sky, the wind blows gently, peacefully with thousands of flowers. The mist is foggy, the clouds are flowing, the scenery is charming, people's hearts are filled with love. The green grass is delicate, the trees are shimmering, bright and colorful. Colors.
The cheapest and most delicious long-established hamburger shop in Japan run by a grandfather for 50 years.
📍 Fukuoka Imaya Hamburger West Park
[📹 harapeko_kc]
Hard to keep socks on these feet! 😉 Gus had a good day. He struggled with some soft pressures this morning, but improved through the day. He had a lot of alert, awake time today. Had a renal ultrasound. His kidneys are still unhappy, but we've seen some subtle improvement. Started back on a milrinone drip to help his new, stiff heart to fill better.
As always -- thank you all for praying with us and following us on this wild journey. God has done amazing things (praise him)!
You may notice me post less often about Gus (as in, not daily) or post less elaborate updates if we get some more of these calm, routine days. It doesn't mean we won't be praying. We're not out of the woods yet, and we're still in an ICU unit. There's simply less to report, and we're trying to get some rest. I'll keep updating whenever we approach milestones or procedures, and I'll be sure to make pressing or urgent prayer requests known. For now, keep praying for us to see the chest fluid dry up, his kidneys improve, for feeding to progress, and for us to successfully wean him off the respirator support.
Hopefully mom and I can continue to get some rest after what has been a marathon of a month! These less intense days come with their own unique challenges especially as we feel the pull between our son in the hospital and the demands of everyday life piling up on the sidelines. Even if things go well, we could be looking at another month or two in the hospital... Oh how we long to bring our boy home! We so look forward to that day. Let it be, Lord, we pray -- but not our will, but your will be done.
"O Lord, You are my God. I will exalt You, I will praise Your name, For You have done wonderful things; Your counsels of old are faithfulness and truth." Is. 25:1
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Lastly, because we've had people ask about this and since it has been a long time since we've mentioned it, our family did set up a GoFundMe a while ago when we realized how long this chapter of our lives would be. We've been well provided for and have a great support system, so please don't feel any pressure from us. We can't express enough gratitude for all the kindness people have shown us in this incredibly difficult season. Simply, for those that are blessed to give, here is a link to our campaign: https://t.co/t2tVkQ4ApS
Thanks, everyone! Good night from our family to yours.