•Dedicated to Finding a Cure or Medical Treatment for the rare disease BPAN. We are raising funding for a new gene therapy project at CHOP Visit our site below
With #RareDiseaseDay coming up, we're sharing Morgan's story to help raise funding and support for BPAN research.
Learn more & donate: https://t.co/UtTy6oekNu
With #RareDiseaseDay coming up, we're sharing Morgan's story to help raise funding and support for BPAN research.
Learn more & donate: https://t.co/W67789I5pI
A few years ago, I wrote about Morgan and her family, getting to know and understand what life is like with BPAN, a rare, brutal disease.
Here's a glimpse of what their lives were like then, with this video showing even more now: https://t.co/4LWgi9z0Mp
With #RareDiseaseDay coming up, we're sharing Morgan's story to help raise funding and support for BPAN research.
Learn more & donate: https://t.co/W67789I5pI
Our family has more hope than ever about finding a cure for BPAN. In our new study, we have shown that AAV-mediated WDR45 gene supplementation is efficacious in improving neurologic function in the mouse model of BPAN! preprint is now available online: https://t.co/uQlYrx1xS1
Jim Harbaugh donated his bonus money to staff who saw pay cuts from COVID. UofM Associate AD Brian Kegler & his family are donating the money they received to the @Dont4getMorgan fund and working with UofM medicine to crowdfund as well.
https://t.co/qXXPspC4Qy
Football is family 💙
Help fund research that could save a child’s life, like #Lions SVP, Kelly Kozole’s daughter Morgan. Visit https://t.co/HznQb6oQ0I to donate.
@Dont4getMorgan | #RareDiseaseDay
Help save Morgan’s life.
In honor of #RareDiseaseDay, visit https://t.co/HznQb6oQ0I to donate and help us fund research to cure BPAN: https://t.co/2pDyO9kHZN
#FootballisFamily | @DontForgetMorgan
.@dannierogers___ sits with #Lions Sr. VP of Business Development Kelly Kozole to discuss her career and @Dont4getMorgan, the nonprofit her family launched to fund research for a cure and therapy for kids with BPAN.
#RareDiseaseDay | https://t.co/MldjUDjsyG
@priorityhealth
We're all smiles for Amazon Smile! Shopping this Cyber Monday? When you shop at https://t.co/cITlA2TL1t Amazon donates. Follow our link to add Don't Forget Morgan as your Amazon Smile Organization --> https://t.co/OqJ6nHmo38
Donate to enter for a chance to win 2 tickets to Super Bowl LVI!
Every donation will help fund research to save a child’s life. Proceeds benefit @Dont4getMorgan ,and #Lions SVP Kelly Kozole’s effort to find a cure for BPAN.
Enter here --> https://t.co/R6EDjAevyI #NFL#NFLDraft
We can’t say thank you enough to everyone who has donated and we would love to keep you updated! Follow the link to join our fight and get information regarding research grants and upcoming events➡️https://t.co/dvdcEOFJx8