Pauline Swindells

Christian with 2 children, 4 grandchildren, 1 labradoodle
Run Cushing's UK group on FB for people wanting to know about Cushing's, now SAI. Bereavement care

[Pauline Swindells @doodledame]

@eyecantalk Sending love, hugs & prayers to you all.x

[Pauline Swindells @doodledame]

@BearGrylls And a new adventure begins!

[Pauline Swindells @doodledame]

@drkathrynmannix So many people are not using the correct terminology, people are "lost" - how careless is that?! They've "passed away" what does this even mean?! The worse one is telling children that they've "gone to sleep" surely putting fear of going to bed for that child!

[Prof Katherine Sleeman @kesleeman]

Ahead of today’s assisted dying Bill debate, I thought I’d do a thread of FALSE FACTS. You know… campaigning soundbites, PR spin. That come up again and again. And are persuasive… but wrong.

[Pauline Swindells @doodledame]

@kesleeman Thank you so much for this thread. It well worth a read by everyone!

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Over 400 rare diseases are linked to the endocrine system. Diagnosis can be slow & for many, like Addison's & adrenal insufficiency, there’s no cure.

We're joining @ESEndocrinology to raise awareness on #WorldHormoneDay.

Read #BecauseHormonesMatter➡️ https://t.co/CEXifdjGwf

[Pauline Swindells @doodledame]

@juliesharp86 Easter blessings to both of you! He is Risen! Alleluia!

[Pauline Swindells @doodledame]

@BearGrylls Alleluia He is Risen!

[Pauline Swindells @doodledame]

@wendelltalks Definitely!

[Pauline Swindells @doodledame]

@MaisyDoodle What's the puppy called?

[Pauline Swindells @doodledame]

@SimbaComics @Shams_Ali_Baig @drpunith @Soc_Endo @Pituitary_org Great to be part of this as a Cushing's patient.

[DEVI Collaboration @Devicollab]

#CoMICWednesday
#CoMICLite Ep. 129: Cushing’s Disease

🎥https://t.co/ULxW7xxaF8

Shreya Shyam @Shams_Ali_Baig @drpunith

Guest Reviewers: Dr Agata Juszczak, Professor John Wass

Experts by experience: Emma Cooper, Caz Brown, Pauline Swindells

Endorsed: @soc_endo @Pituitary_org

[The Pituitary Foundation @Pituitary_org]

It was great to be involved in the production of such a clear and informative video about Cushing's and its symptoms!

You can watch this video at the link below and share ahead of #CushingsAwarenessDay to spread awareness!

[Pauline Swindells @doodledame]

@Pituitary_org It was great as a Cushing's patient to share our experience to help produce this video.

[Pauline Swindells @doodledame]

@Pituitary_org @AskNationwide Brilliant! Fabulous news!

[Pauline Swindells @doodledame]

@Pituitary_org Do join Cushing's UK on Facebook for mutual support.

[The Pituitary Foundation @Pituitary_org]

Thank you @Lord_Sugar for sharing this video and helping to raise awareness of AVP deficiency - a very rare, potentially life-threatening pituitary condition that causes the kidneys to be unable to retain water.

Find out more about AVP-D here - https://t.co/JUkew9stMe

[Pauline Swindells @doodledame]

@juliesharp86 Oh for goodness sake, you are an adult & a married one at that!

[Pauline Swindells @doodledame]

@juliesharp86 Oh no, I'm sorry to hear that, what happened or didn't happen? x

[Pauline Swindells @doodledame]

@juliesharp86 2/ children with complex needs are cared for in he community including ones that need 24 hour care and/or are ventilated too, so why can't they come up with a package of care for you?!