🏏 Get your kids into cricket this summer!
🔥 Dynamos (8-11 yrs) at Great Houghton CC!
🗓 Thursdays, 9 July - 27 August
⏰ 5:30pm-6:30pm
Sign up today https://t.co/CPE7hj3rYf
@kylofone Good luck, prepare yourself for a couple of weeks. My wife went in for a PEG in Oct and we insisted on a side room rather than being on the main ward. That helped massively.
@docsimsim@margheritaandME She didn’t really want to do it but we were facing a legal battle with our GP so she decided to go through with it. It feels like the equivalent of having a broken leg and putting a plaster on it.
Sorry to hear you are still getting worse. My wife sends you a hug x
@margheritaandME is shortly going to be going in to hospital to have a PEG fitted.
She has asked if anyone that has experienced this has any advice on managing the hospital environment?
Her light and sound intolerances are very bad now so she is very worried. #SevereME
@docsimsim@margheritaandME Thanks for the message. It was difficult on the ward but she got through it. At home with the PEG fitted now and trying to put a bit of weight back on. How are you doing?
@margheritaandME is shortly going to be going in to hospital to have a PEG fitted.
She has asked if anyone that has experienced this has any advice on managing the hospital environment?
Her light and sound intolerances are very bad now so she is very worried. #SevereME
@margheritaandME is shortly going to be going in to hospital to have a PEG fitted. She has asked if anyone that has experienced this has any advice on managing the hospital environment? Her light and sound intolerances are very bad now so she is very worried. #SevereME
🔬Simplified breakdown of the Decode ME results:
DecodeME identifies 8 gene regions linking immune response, mitochondrial energy control, and brain-cell signalling to ME/CFS
Genomic evidence the disease is biological.
Let’s breakdown everything in depth 🧵
🏏 Get your kids into cricket this summer!
🔥 Dynamos (8-11 yrs) at Great Houghton CC!
🗓 Wednesdays, 21 May - 9 July
⏰ 5:30pm-6:30pm
Sign up today https://t.co/XqE6NIGVqi
@kylofone Very similar happened to us last month. Insisted on taking blood pressure. Then just said let me know what the nutritionist says and left. Nuts.
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏