Solenn TANGO

Militante santé @solenntango.bsky.social Asso @winslow_la 🐘 338ppm ancienne Prof de lycée & université. CL + cardiovasc illness : "in ffp2 we trust"

[Solenn TANGO @Eerrnn]

Heureuse d’épingler 2 éléments auxquels j’ai participé : cet article👇

[Association Winslow Santé Publique @winslow_la]

😷 65 MILLIONS DE COVID LONG ET ÇA CONTINUE ! Parce que le silence tue mais que l'information donne du pouvoir,

@actupparis et @winslow_la
dressent un état des lieux de la pandémie de COVID toujours en cours.

👉 Lire notre texte et nos exigences ici : https://t.co/kPgG9kvQlC

[Laura Miers @LauraMiers]

The problem with articles like the Wired one is LongCovid patients aren’t the intended audience. These articles aren’t meant for us. They are for our families, our doctors, our employers, & our elected officials, & they are used to harm us.

[Solenn TANGO @Eerrnn]

@AlanLevinovitz @gmfunkman @jacobscheier @TaylorLorenz @WIRED Nobody denies recoveries. Some feel better without any intervention : very good for them, but it’s a minor subset. We don’t advocate for recovered people (even less when they sell mind-body things), but for still-ill people, that needs help, monitoring, research & treatment.

[Solenn TANGO @Eerrnn]

Moreover, Alan seems to have a special interest in religion, so, it fits 🤷🏻‍♀️

[Solenn TANGO @Eerrnn]

Maybe all those people that are like « ill people just have to be positive », and the brain retraining advocates, just took that bit of « the life of Brian » at face value / first degree ? Who knows ? 🙃

https://t.co/JD9a6n10YN

[Cat (CovidSolidarity) @CovidSolidarit1]

I can’t believe how LUDICROUS it is that people are getting away with saying Long Covid is not a real thing. WTAF?

Millions have died from Covid but there’s no way many millions more could be disabled by SarsCov2?

What planet do these people live on?

[Dr Elisa Perego @elisaperego78]

Reducing Long Covid to a few symptoms that fit certain illness narratives is harmful. Refusal to acknowledge damage to organs such as heart and lungs can foster a climate where people will be denied care, and might die as a consequence. Patients deserve better. We deserve to live

[Solenn TANGO @Eerrnn]

@seanstidston I think it’s possible indeed (there’s many little sketch in it)

[Solenn TANGO @Eerrnn]

Oublier ses symptômes avec le brain retraining, le genre de pratiques non prouvées qui aurait pu me tuer (faute de recherche du problème pas évident à trouver de coagulation) en tout début de maladie.
Recommandé par l’APHP (suite à la restitution du consortium LC EU project?)

[leenam @leenam20445542]

En France, 6 ans après l’apparition du #covidlong, voici le lien qu’un hôpital public envoi à une patiente en lui notifiant un refus de consultation en médecine interne : https://t.co/SsbBHPAyVP
#apresJ20
Merci l’APHP !

[Solenn TANGO @Eerrnn]

@seanstidston Me too, I’ve watched it countless times (and « sacré Graal » too)

[Solenn TANGO @Eerrnn]

@seanstidston This, I imagine ?

[Solenn TANGO @Eerrnn]

Maybe all those people that are like « ill people just have to be positive », and the brain retraining advocates, just took that bit of « the life of Brian » at face value / first degree ? Who knows ? 🙃

https://t.co/JD9a6n10YN

[Zdenek Vrozina @ZdenekVrozina]

Long COVID is not a binary condition - has it/does not have it.
It is more likely a spectrum of post-infectious injury and dysregulation.
Symptoms capture only part of the affected group. Many biological changes may be missed if we only rely on questionnaires or routine clinical exams.

[Solenn TANGO @Eerrnn]

@tylerblack32 @LadyRimbaud Mental health assistance was what doctors offered me in 2020 (I had PE’s).
Mental heath assistance is widely accessible, it’s the 1st thing a doctor proposes to a middle-aged women with symptoms he doesnt understand. Real care, high-level investigations is very less accessible.

[Solenn TANGO @Eerrnn]

@BirisLoie Thanks for the warning ! (I don’t know him)

[Solenn TANGO @Eerrnn]

Please stop focusing only on PEM, when answering to the psycholigisation of LC. Not only because it excludes most of patients (which is already something), but also because that’s already the only presentation of the condition that these psychologisers want to evoke, 👇

[Solenn TANGO @Eerrnn]

@AlanLevinovitz @WIRED Can you have a look at radiologic littetature on LC / risks of MACE etc… because brain retraining wouldn’t have saved me from my pulmonary embolisms (LC associated) and doctors are already psychologising patients too much (and empeachs access to adequate treatment) 👇

[Solenn TANGO @Eerrnn]

Also : Using imagery and « more visible » LC complications doesn’t mean denying other presentations, at the contrary.
1) it’s often high level imagery, very difficult acces to it
2) What you see in some can be at play in others (ex macro/microclots, post Covid diabete, etc)

[Solenn TANGO @Eerrnn]

We are not a basket !
We are people handicaped by SARS-cov-2, a vascular, persistent, invading-and-damaging-organs virus.

[PolyBio @polybioRF]

Written summaries of PolyBio’s Spring symposium presentations are available now! Check out shortened, simplified summaries, or full technical explanations of your favourite research projects.

Interactive resource: https://t.co/3pQ5BlIVQb

#longcovidresearch #mecfsresearch #lymeresearch

[Solenn TANGO @Eerrnn]

@ZdenekVrozina @threadreaderapp unroll