gmfunkman

Disabled with long covid

[gmfunkman @gmfunkman]

@AlanLevinovitz @jacobscheier @TaylorLorenz @WIRED If you think this article represents the voices of extremely sick patients, look at the discussion of your article in the long covid subreddit, filled with very sick patients.

https://t.co/r6o1bLi5LV

[gmfunkman @gmfunkman]

@AlanLevinovitz @TaylorLorenz @WIRED You dismiss biomed research as "yielding little", never engaging their strongest evidence. Yet the mindbody case rests on anecdotes you concede dont prove efficacy. You disclaim "all in your head" but the structure (research dismissed, brain retraining as the answer) says othrwse

[gmfunkman @gmfunkman]

@WIRED This article completely ignores the actual biomedical research for long covid

[gmfunkman @gmfunkman]

@kirstler31 I've completely given up on all meds for now. Every med makes me worse in some way, often permanently. Haven't tried Valtrex specifically. Gabapentin worsened my insomnia long after I discontinued it.

[gmfunkman @gmfunkman]

@PatientPersists I think this chart is better. Takes out biases introduced with work from home increase. Just US population with a disability over 16. There is an increasing trend from 2010-2020, and, accounting for that, still 2-3 million excess disabled after 2020.

[gmfunkman @gmfunkman]

@weeklyshowpod Why did you make fun of people wearing masks? This is just as bad as Trump mocking disabled people.

[gmfunkman @gmfunkman]

@jhalifax @VinceFHorn Only public statement I can find from her was with IMS last year, and it was not appropriate imo: https://t.co/KmXEMZkRvH

[gmfunkman @gmfunkman]

@PatientPersists @mattsclancy @Atelfo Great analysis, thank you. Do you have any ideas about the variance of these predictions? Some illnesses will have 0 drug treatments after 20 years and $2B funding and others will have 10 drug treatments

[gmfunkman @gmfunkman]

@PutrinoLab As a former patient of Dr Scoma, I would not recommend him. DM if you want more info

[gmfunkman @gmfunkman]

@rd108 Raising money to do one thing then doing something else with it is called misappropriation of funds or material misrepresentation

[gmfunkman @gmfunkman]

@PatientPersists Oh, I see. Yeah could have been a break

[gmfunkman @gmfunkman]

@bsedyou @Citrini7 I'm a sub who missed it. I'm sure there are others that did too. There were over 50 trades we needed to do to get the updates in to Citrindex. Not doing that in 4 minutes, and not messing with tiny stocks in after hours.

Kind of hurts how much he's shilling it for us that missed

[gmfunkman @gmfunkman]

@Drdragonfraser Why did Revive Therapeutics abandon development of a diagnostic test? How are we going to mass produce your diagnostic test now?

https://t.co/foQ1hQzR2X

[gmfunkman @gmfunkman]

@Dave_it_up What is the best way to donate to research for long covid? Polybio?

[gmfunkman @gmfunkman]

@jnconkle Polybio is great for long covid. Long covid is a mass disabling event that is drastically underfunded compared to the disease burden. According to CDC, 18 million Americans with it. Barely starting to understand its effects on children

[gmfunkman @gmfunkman]

@PatientPersists Chronic Autonomic Illness, Multi-System Chronic Illness, Complex Chronic Regulatory Illness

[gmfunkman @gmfunkman]

@PatientPersists You were right. This is his pick: https://t.co/27ylm76sh9

[Jay Bhattacharya @DrJBhattacharya]

Big French study finds most long COVID symptoms (except loss of sense of smell) not associated with prior SARS-CoV-2 infection.

There are more pressing health needs for the $1.1 billion that the NIH will spend on long-COVID.
https://t.co/XD36VNwRmk

https://t.co/sc1if59CFi

[gmfunkman @gmfunkman]

@cognazor The 18 million disabled Americans with long covid are nervously waiting to see what he does. NIH currently has several ongoing clinical trials for long covid drugs