@___mithrandir_@BarelyProt And the place where you're supposed to be the safest is your execution chamber.
I'm sorry, in probably the wrong person to be listening to right now.
90% of people who are told their fetus will have Down syndrome end the pregnancy. Virtually none talk about it. This is common and yet shrouded in shame. I’m not sure piling more shame onto it helps anyone, although I’m sure it makes some people feel morally superior.
@22toGod@JoshMeskerAR@Thiohna Yes, actually, because that's what love does. If you think I'm teens of "what does this come do for me"then you're an unbelievably selfish person.
@martianwyrdlord I'm not usually emotional, and I don't usually behave belligerently. But I received bag news this week about a young man who committed suicide, and it reminds me how precious life is.
It's out of that heart that I tell you to take this platitude and f*ck right off.
To anyone reading this who might be facing a similar crossroads, meet my son Josh.
Josh is 3 and has Down Syndrome, the very condition shared about here in this post. We received a prenatal diagnosis at roughly 10 weeks. Some of the complications we feared happened, but that wasn't the end of the story. Josh was born early and spent a month in the hospital. At 1 year old, he had open-heart surgery. Now he's 3, loves life, and is thriving. The hard days didn't win.
If anyone else finds themselves in a similar place, reach out. There's a whole community of people here to support you. It hasn't always been easy, but he's worth every bit of it and then some.
This week, one of my students had a brother who committed suicide. It's wild that these happened so close to each other. I'm so sorry that he made the choice that he did. All I can say is love the ones you got because you don't know how long you'll have them in your life
This week, my wife and I made the very difficult decision to terminate the pregnancy due to Trisomy 21.
The choice was not made lightly. We really appreciate all of the personal stories that you guys shared with us, especially the unconditional support we received from fans with no matter what we decided.
I know some of you may be very disappointed to hear this news. We are devastated. This has been extremely traumatic for both of us, especially Ashley.
She underwent the procedure earlier this week and is on the mend. Thankfully, everything went smoothly, but emotionally we are drained.
Trisomy 21, also known as Down Syndrome, is caused by an extra chromosome. It is caused by an error in cell division, like a glitch. The odds of a baby having it is 1 in 1000.
When I first confronted this news, I was shocked but optimistic. If they’re a little slow intellectually, then we’ll make it work. I signed on to be a parent, come what may…but I just didn’t fully understand what Down Syndrome entailed.
Once we made it public, it became clear that MOST people don’t know what Down Syndrome entails (and no, it’s not the same as Autism):
50% of babies with DS have heart defects. 75% will have hearing challenges. Over 50% will have vision problems. Impaired immune function, developmental disabilities, learning disabilities, delayed physical development, poor muscle tone, structural issues with face, decreased lifespan, etc…Sadly, the list is long, feel free to look it up…Down Syndome isn’t a “blessing”, it is objectively shitty from a health perspective.
I didn’t realize just how rough it is for the child, let alone the family…more often than not, they would be fully dependent on others for the rest of their life.
The miscarriage risk is also close to 50%, which made matters worse…they may never see the light of day and it puts Ashley further at risk.
We spoke with doctors, friends, family and genetic counselors and learned that up to 90% of women terminate their pregnancy after learning the baby has Trisomy 21.
This was WAY higher than I expected, I thought it would be lower given that I hear so many say they kept or would keep the baby. I believe that’s because most terminations happen privately, it feels shameful. A lot of judgment being cast.
You never think you’d be in this type of situation until it happens to you and then things change.
To all of my fans who have weighed in on this topic who have Autism, Down Syndrome or any other conditions…we appreciate you. You matter a lot and we’re glad you’re here. I commend you and your families for having the strength and courage to push forward.
As for us, we made a difficult decision that we believe in the long-run will be beneficial for our family. Thankfully, we had a choice.
It will take a little time to move on, but we are excited to try again in the future and hopefully have a better outcome.
Love you guys & thank you for understanding. ❤️
This week, my wife and I made the very difficult decision to terminate the pregnancy due to Trisomy 21.
The choice was not made lightly. We really appreciate all of the personal stories that you guys shared with us, especially the unconditional support we received from fans with no matter what we decided.
I know some of you may be very disappointed to hear this news. We are devastated. This has been extremely traumatic for both of us, especially Ashley.
She underwent the procedure earlier this week and is on the mend. Thankfully, everything went smoothly, but emotionally we are drained.
Trisomy 21, also known as Down Syndrome, is caused by an extra chromosome. It is caused by an error in cell division, like a glitch. The odds of a baby having it is 1 in 1000.
When I first confronted this news, I was shocked but optimistic. If they’re a little slow intellectually, then we’ll make it work. I signed on to be a parent, come what may…but I just didn’t fully understand what Down Syndrome entailed.
Once we made it public, it became clear that MOST people don’t know what Down Syndrome entails (and no, it’s not the same as Autism):
50% of babies with DS have heart defects. 75% will have hearing challenges. Over 50% will have vision problems. Impaired immune function, developmental disabilities, learning disabilities, delayed physical development, poor muscle tone, structural issues with face, decreased lifespan, etc…Sadly, the list is long, feel free to look it up…Down Syndome isn’t a “blessing”, it is objectively shitty from a health perspective.
I didn’t realize just how rough it is for the child, let alone the family…more often than not, they would be fully dependent on others for the rest of their life.
The miscarriage risk is also close to 50%, which made matters worse…they may never see the light of day and it puts Ashley further at risk.
We spoke with doctors, friends, family and genetic counselors and learned that up to 90% of women terminate their pregnancy after learning the baby has Trisomy 21.
This was WAY higher than I expected, I thought it would be lower given that I hear so many say they kept or would keep the baby. I believe that’s because most terminations happen privately, it feels shameful. A lot of judgment being cast.
You never think you’d be in this type of situation until it happens to you and then things change.
To all of my fans who have weighed in on this topic who have Autism, Down Syndrome or any other conditions…we appreciate you. You matter a lot and we’re glad you’re here. I commend you and your families for having the strength and courage to push forward.
As for us, we made a difficult decision that we believe in the long-run will be beneficial for our family. Thankfully, we had a choice.
It will take a little time to move on, but we are excited to try again in the future and hopefully have a better outcome.
Love you guys & thank you for understanding. ❤️
Overwhelmingly, people view children as accessories to add to their lives when they desire rather than as gifts from God and indeed, the very purpose of the sexual union. Even among conservative Christians, this mindset is rampant.
We talk about kids like they're home improvement projects? "Are you guys ready for that, or are you going to keep waiting awhile?"
We talk about them as though they're Pokemon cards that you quit collecting one you have a complete set. "So now that you have a boy and a girl, are you done?"
We often look at large families with the same kind of disdain we have for hoarders. "That's so weird. Why do you need so many of those?"
Likewise, push away all the lamentations about wanting to save your unborn child from a lifetime of suffering and hardship through abortion, and you'll find the true mindset, where we respond to our children having disabilities the way we'd respond to a restaurant giving us the wrong food, something we simply refuse to eat.
"Waiter, I ordered a healthy baby. But you gave me this gross little deformed thing. Throw that away and give me what I actually ordered."
Not everyone will follow this mindset concerning children to such an evil degree. But if we wish to protect ourselves from it, we need to fundamentally change the way we think about children. Which is to say, we need to view parenthood vocationally rather than through a consumeristic lens.
Children are not trinkets. They are human beings, as human as you, and just as worthy of love and honor as you. Likewise, parenthood is not a lifestyle, a hobby, or an era. It's a vocation.
If a child is growing in your womb, God has already given you the vocation of mother. And a mother's vocation is always to protect and love her child, never to kill her child. If your child is growing in a woman's womb, God has already given you the vocation of father. And a father's vocation is always to protect his child, never to kill his child.
If God gives you that vocation when you're poor, fulfill it faithfully and trust that He will give you your daily bread. If God gives you that vocation when you don't feel ready for it, get over yourself and fulfill it faithfully. If God gives you that vocation by giving you a child who seems too difficult to care for, trust that He will also give you the strength to endure the task, and fulfill it faithfully.
May God save our souls and purify our hearts by changing our minds.