Ella's World

Raising awareness about STXBP1. Tweets by Ella's Mom.

[92.1 CITI @921citi]

100% of the proceeds from every @TimHortons #SmileCookie sold in Winnipeg this week will go directly to @childrensrehab! 🍪🙂💙💞

[The Dream Factory @DreamFactoryMB]

GO BLUE! Good luck today @wpgbluebomberscfl see you next week at the Banjo Bowl! #goblue #banjobowl #forthew #dreamfactorymb

[Barrier-Free MB @barrierfreemb]

Act now to ensure fully accessible education for all Manitobans https://t.co/JuMVFZ6KnI #AccessibleMB #mbpoli

[Ella's World @ellasworldca]

Team Ella had such a great day at #RBCCruisin17 for @childrensrehab

[Scott Gillingham @ScottGillingham]

Beautiful morning for #RBCCruising17 with @Brody_Jackson and everyone supporting @childrensrehab.

[UDN @UDNconnect]

#FlashbackFriday to ‘One of a Kind’ by @sethmnookin: the legendary, must-read story of @bertrandmight & #NGLY1 https://t.co/nPXiqju3NJ

[Ella's World @ellasworldca]

Getting excited for @childrensrehab #crfcruisin20 Our highlights from last year included a selfie with @Mayor_Bowman

[Ella's World @ellasworldca]

It was a beautiful day for 5K! #5K4STXBP1

[Ella's World @ellasworldca]

Gearing up to start #5K4STXBP1

[Ella's World @ellasworldca]

It's a lovely morning in Winnipeg for 5K! #5K4STXBP1

[Ella's World @ellasworldca]

@RegSherren thank you so much for telling this story. It is so important.

[Reg Sherren @RegSherren]

One Mother's love for her daughter, probably saved her life. Meet her now. https://t.co/6wKPKSq1AN

[The Hospital for Sick Children (SickKids) @SickKidsNews]

We want to hear how much you know about #epilepsy. Tell us in this 1 min survey. https://t.co/EMjKsLYwDJ #PurpleDay2016

[Make-A-Wish Canada @MakeAWishCA]

Today is #PurpleDay - a day for #epilepsyawareness! Wear purple and share information about this seizure disorder. https://t.co/3huAjfI4J6

[Ella's World @ellasworldca]

@IngoHelbig thank you for all you do!

[Ingo Helbig @IngoHelbig]

STXBP1 – your questions for the Channelopathist | Beyond the Ion Channel https://t.co/iPH7Rr3mtg

[Ella's World @ellasworldca]

We are wearing our #jeansforgenes today #WRDD2016

[CORD @raredisorders]

ON Health Min @DrEricHoskins to strike working group to improve care for #raredisease patients #Canada4Rare

[Ella's World @ellasworldca]

A diagnosis can be so important, even when it's rare: https://t.co/QlQqgS4qLX #STXBP1 #WRDD2016

[Ella's World @ellasworldca]

And next year, Winnipeg! ;) https://t.co/GtF00OyH2D