Team Elsie

Elsie Novell is diagnosed with Spinal Muscular Atrophy (SMA) type II. This means she will never be able to walk. We fight because she does. This is her story.

[Spinal Muscular Atrophy UK @SMA_UK_]

We have teamed up with @dontsendmeacard where you can send #Christmas e-cards in return for a donation. There are 4 designs to choose from and you can send multiple cards in return for your gift, starting from just £1: https://t.co/kOLGUZ9x0R

[SMA Research @SMAresearch]

Today is #UKSMAAwarenessDay! Spinal Muscular Atrophy is a rare, genetically inherited neuromuscular condition. Please retweet to help raise awareness of #SMA

[Team Elsie @elsie_team]

A massive thank you for every donation, all the support and everyone that came to our 4th annual Family Fun Day we raised an amazing £2,100 💜 #TeamElsie

[Holly Pickering @Holl86Pickering]

It’s Family Fun Day 💜 simple lemon cake and celebrating our amazing team. We will be with @elsie_team from 2pm-4pm, DE55 2EJ, we would love to see you there 💜

[Team Elsie @elsie_team]

Please come and join the fun #event #nottingham #mansfield #fundraising #TeamElsie

[Team Elsie @elsie_team]

#TeamElsie did it. We turned out in force and every single team member crossed the finish with a smile #runforElsie #Mansfield5k

[Team Elsie @elsie_team]

#Mansfield5k we can’t wait to see you there. Link to donate is still open. Can we hit £850 💜 huge thank you so far for your support

[Mansfield 10K @Mansfield10k]

4 days to go! Limited number of places still available.

[Team Elsie @elsie_team]

@footprintscec Thank you 😊 💜

[Team Elsie @elsie_team]

Sutton Mum’s plea for U-turn on drug https://t.co/oZAMrBCigE

[Team Elsie @elsie_team]

Help raise £600 to help top up the funds for #TeamElsie Please #donate on @justgiving and RT https://t.co/wMjT0ZKJK9

[Team Elsie @elsie_team]

Wow we have the £500 mark for #RunforElsie! 20 runners will be at the #Mansfield5k on 16.09. Our team are still training early mornings, Saturday park runs and between busy life stuff. Please keep the support coming and don’t forget to look out for the purple vests!

[Team Elsie @elsie_team]

https://t.co/gfzYd3ZNFA #TeamElsie are all walking, jogging, running and generally sweating. Please support our team and donate #runningforchange #ourSMAwarrior #fundraising #Nottingham #SMAawreness

[Spinal Muscular Atrophy UK @SMA_UK_]

NICE’s consultation paper has been released with the devastating news that they’re not recommending #nusinersen for NHS funding. One glimmer of hope is that it does leave the door open for a Managed Access Agreement. The paper is now open for comments: https://t.co/FrIrZve3wr

[Team Elsie @elsie_team]

https://t.co/gfzYd3ZNFA
Please like, share, help and support in anyway #fundraising #Nottingham #Mansfield #Mansfield5k #running #TeamElsie #SMAawreness #fundraisingtogether #5k

[Team Elsie @elsie_team]

Thanks to Elsie’s Uncle we are now training to run our hometown 5-10k; in support of our superstar. We are getting ready to turn Mansfield purple! There’ll be posts soon for donations, look out for our training and help support #TeamElsie

[Team Elsie @elsie_team]

Team Elsie have joined the @Mansfield10k none of us are runners but we can raise awareness of & for our little superstar and all those families with the SMA diagnosis #wecanforher #werunshefights #bravefighter #SMAwarrior

[Team Elsie @elsie_team]

💜£38,090💜Target met!💜 Elsie’s house adaptations can now begin which will include a lift to give her access to her bedroom. We want to send out huge thank yous to everyone involved. This figure helps to give Elsie a chance at developing her independence #fundraising #Nottingham

[Team Elsie @elsie_team]

Great to be back at the Team Elsie meeting today loads of ideas and events coming soon

[Spinal Muscular Atrophy UK @SMA_UK_]

Thank you to all of you who responded to our survey about the impact of SMA and views about access to nusinersen. You can read both the results of this and our submission to NICE here: https://t.co/eCIuYBWvCW