Emma Pryde

Crohns and Ulcerative Colitis patient advocate •@crohnsandcolitisuk Research Champion•#IBD•#MODULATE trial

[Christian Selinger @ChristianSelin3]

Interested in learning complex IBD management? Join us for 6 months in this exciting IBD fellowship. Leeds has a fabulous IBD team and the city is exciting.

https://t.co/HQKMGQxr4O

[Glasgow Edinburgh IBD Science @GlasgowEdin_IBD]

Very proud of our CCUK Research Champion @emmapryde7 in this month's Connect. You've been amazing! #IBD #PPIE

https://t.co/quDWiCvFgs

A picture paints a thousand words!

[Glasgow Edinburgh IBD Science @GlasgowEdin_IBD]

Our patients analysed 415 patients' views about their IBD using thematic analysis through the lens of their own 'lived experience' with 100% freedom.
#IBD #Crohns #livedexperience #PPIE

Audio format is now available on our webpage!👇

https://t.co/bFd6KCq5H5

[Glasgow Edinburgh IBD Science @GlasgowEdin_IBD]

Thanks @halligan_molly @emmapryde7 @Patricia_EKelly @AerinET and Destiny. And @HelmsleyTrust for funding the MUSIC study.

We hope the audio format will make this work more accessible to many especially our patients. Please share ! @propelacure @CrohnsColitisR @CrohnsColitisC3

[Crohn's & Colitis Research @CrohnsColitisR]

Researchers at King's College London are looking to talk to people from a South Asian background who live with IBD to help shape a new research study.

Find out more 👉https://t.co/aH4azfCT5t

[Gwo Tzer @Gwotzerho]

Very proud of our #PPIE IBD patient group. I have learnt a lot from them and definitely have shaped my practice and research.

It's a great read 👇 #ibd #crohns #Colitis

[Glasgow Edinburgh IBD Science @GlasgowEdin_IBD]

What happens if patients take the lead in an IBD project?

Result: A wholly patient-led paper on ''What it means to live with IBD'.

🧵on how our patient-public involvement (PPI) #IBD came about....

#Crohns #colitis #PPIE #patientinvolvement

https://t.co/ewo9otZQC3

[Crohn's & Colitis Research @CrohnsColitisR]

Take a look at this new Taking Part in Research opportunity from University of Cambridge!

They are looking for adults living with IBD to take part in an online survey to understand more about how hormones can impact health @kuhu777

Learn more👇
https://t.co/dfpPXrBytU

[NIHR Involvement @NIHRinvolvement]

Are you interested in how patient and public involvement (PPI) plays a role in research?

Our PPI in Action webinar series showcases various examples of how PPI enhances the relevance and quality of research.

Explore the series on our YouTube channel ⬇️https://t.co/LRNSiSfUkJ

[Marvel UC Trial @MarvelTrial]

A good week for our study. We recruited 4 (!) into MARVEL including our 1st from #Manchester! Big thanks to Prof Limdi and his team. Mitochondria antioxidants in UC https://t.co/gBP7sIoRTW #ulcerativecolitis #mitochondria #ibd @Edin_IBDScience

[Crohn's & Colitis Research @CrohnsColitisR]

There's still time to apply for our 2025 Grant Round!
We're looking for applications which address areas of unmet need as set out in the JLA Top 10 in IBD.

Outline application deadline: 17 March 2025

Find out more about how to apply 👇
https://t.co/qephT45HOR

[Crohn's & Colitis Research @CrohnsColitisR]

📢Crohn's & Colitis UK 2025 Grant Round NOW OPEN! 📢

We are excited to welcome applications which address areas of unmet need as set out in the JLA Top 10 in IBD.
Outline application deadline: 17 March 2025

Click the link for details on how to apply👇
https://t.co/qephT46fEp

[Crohn's & Colitis Research @CrohnsColitisR]

Check out this new Taking Part in Research opportunity at King's College London!

Researchers want to learn more about people's experience of food with Crohn's and Colitis.

https://t.co/F6oWuXKdnZ

[Dr Luke Craddock @DrLukeCraddock]

After working in A&E for just a little over a month, I thought I'd share my experiences as one of the front line doctors facing the current/ongoing crisis happening across our country.

A quarter through my placement, I already feel burned out and morally fatigued.

1/20.

[Crohn's & Colitis Research @CrohnsColitisR]

Are you living with an ileostomy? Researchers at Ulster University are looking at hydration and fluid intake and want you to complete an online survey!

If you're interested in completing the online survey find out more here: https://t.co/Y6xVzBwGSU

[Crohn's & Colitis Research @CrohnsColitisR]

Are you aged between 18-30 and living with IBD?
Researchers at Sheffield Hallam University are looking for people to take part in online interviews to talk about quality of life.

Find out more and sign up below 👇
https://t.co/vAU1MUFKRz

[Crohn's & Colitis UK @CrohnsColitisUK]

It’s #WorldToiletDay. We hear every day from people living with Crohn’s and Colitis about the challenges they face accessing toilets and how it impacts their day to day lives. We are continuing to advocate for better toilet provision across the UK: https://t.co/Tcfhl0uLwp

[Crohn's & Colitis Research @CrohnsColitisR]

Would you like to take part in a focus group with researchers from University of Birmingham?

If you're over 18 and living with Crohn's or Colitis, take a look at this new opportunity here 👇
https://t.co/NzAC6y1TBi

[Crohn's & Colitis Research @CrohnsColitisR]

If you, or your child, or someone you care for, has perianal Crohn's, researchers at St Mark's want to know your thoughts on the priorities of future research!

They want people to complete a 5 minute survey.

Find out more below👇
https://t.co/dPpJx5j6lS

[Crohn's & Colitis UK @CrohnsColitisUK]

It’s taking too long for people with IBD to get diagnosed. That’s why as part of our open letter to the Health Secretary we’re calling for change to support GPs to refer people with symptoms for the right tests at the right time.

Sign Now📝https://t.co/li32qw0NZE

#CutTheWait