ENCA

ENCA is the European Network for Children with Arthritis and Autoinflammatory Diseases. Contact us: [email protected]

[ENCA @enca2002]

The #PReS European Paediatric Rheumatology e-Congress is next week, and ENCA have a fantastic programme lined up for you. From patient research education to social media and managing pain and fatigue, there is something for everyone. Be sure to join us! #PReS2020 #ENCA2020

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

Our thoughts are with Yulia Tokarchuk, colleagues, and families in #Ukraine. Yulia has just completed a @PReSEMERGE fellowship.

Watch this video to hear about her work: https://t.co/SkzkygnqL9

Learn about PReS EMERGE: https://t.co/KpnfLlUdqx

@_ERNRITA
#WORDDay2022
#ThinkJIA

[George Robinson @GeorgeARobinson]

Please help spread awareness!

Today is World Young Rheumatic Diseases Day.

Yes, children and young people get rheumatic diseases too. Together we can improve the lives of these young patients.

Give @WORDDay_org a follow and spread the word using #WORDDay2022!

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

Today is World Young Rheumatic Diseases Day!

#WORDDay2022 aims to raise awareness that children and young people get #rheumatic diseases too.

Early diagnoses and referral to a specialised #paediatric #rheumatologist can change lives.

Spread the word: https://t.co/R4gxWgBm5I

[JAR Project (now on B___sky) @JARProject]

Joel will be doing an 8 hour live #Twitch stream on Saturday 19 March for #WordDay2022
We've updated our interview with @joelvsarthritis to add all the links you need for the live stream at the end of the article: https://t.co/IRKwfLfJEY
#ThinkJIA #ChildrenGetArthritisToo #ACNH

[JAR Project (now on B___sky) @JARProject]

In the third of our #PReS Congress videos we hear from Wendy from @iCANIreland talking about "How to win friends and influence people: Strategies to agitate and advocate for resourcing and supporting your service needs"
@enca2002 @WORDDay_org

Full video: https://t.co/U4UJ2gO4Kq

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

The PReS-CARRA Grant is aimed at supporting young #paediatric #rheumatologists to improve patient care and promote collaborative research.

Learn more about this amazing initiative between PReS and @carrainc: https://t.co/kI45sGszDp

#ThinkJIA
#KidsWithArthritis
#WORDDay2022

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

Identifying early symptoms of #JIA can be tricky. Doctors can use this handy guide by @ArthritisKidsSA to get insight into JIA. The waiting room poster will help highlight early symptoms to parents.

Get the resources: https://t.co/Gu1tOF6a0b

#WORDDay2022
#KidsWithArthritis

[Cassie + Friends Society @CAFsociety]

The Biopsychosocial Model of #ChronicPain as presented by Pediatric Rheumatologist and Pain Medicine Physican, Dr. Tara McGrath during our #ChronicPainWebinar

[Cassie + Friends Society @CAFsociety]

"From high-level gymnast to having trouble holding forks, squeezing shampoo bottles and walking," Devyn shares her journey with #JuvenileArthritis along side her mom, Jen Heeley at our #ChronicPain Webinar

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

Tomorrow is WORD Day 2022! Find out how you can join #WORDDay2022 from the comfort of your own home!

https://t.co/cxNeNHqOOd

#JIA
#ThinkJIA
#KidsWithArthritis
#Lupus

[JAR Project (now on B___sky) @JARProject]

In the second of the #PReS Congress videos we hear from Karen talking about building powerful patient-clinician partnerships: "The AutoInflammatory Alliance Story".
@enca2002 @WORDDay_org

Full video: https://t.co/U4UJ2gO4Kq

[Autoinflammatory All @AAlliance_SAID]

It was an honor to speak @ the #PReS2021 medical congress w/ others from @enca2002. I spoke about the #Autoinflammatory Alliance origins, collaboration & innovation to address unmet needs for pts, caregivers & MDs. Thanks ENCA & @JARProject for the video!
https://t.co/5KOef7eKV4

[Sociedad Argentina de Endocrinología y Metabolismo @endosaem]

Webinar. Mitos y realidades de los cannabinoides. vínculo con el hueso.

#webinar

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

@enca2002 has produced an informative children’s book which helps explain Juvenile Arthritis to children and helps children know what to expect in terms of appointments and treatments.

Download the book here:
https://t.co/LS62V95tZL

#WORDDay2022
#KidsWithArthritis
#ThinkJIA

[AnnaFayeBosworthWoolf @AnnaBosworth]

Are you a rheumatologist working with young people with arthritis? Do you have 5-10 minutes to complete a short survey and share your thoughts on young people, arthritis and transition? Please share 🙏 @DrJMcD @JIA_NRAS @CCAA_org @CfE_UoM https://t.co/M8QsUXlYtj

[PRES EMERGE @PReSEMERGE]

There is still time to submit an abstract and win a free virtual registration for the 1st PReS Academy Course on sJIA and MAS that will take place on 17th and 18th of March 2022 in Rome as hybrid event. Have a look at the program and other details.
https://t.co/VhdDbNg0bX

[Janet Bultitude @JanetBultitude]

We still need more parents of children with long term health conditions aged 3-12 y for our survey. Thanks for the responses and RTs so far!
@CCAA_org
@JIA_NRAS
@SNAC_JIA
@enca2002
@JARProject
@raiiseuk
@YoungArthritisW
@eYPAGnet
@eularYoungPARE
@WellChild
@YLvsCancer

[CARD @CardArthritis]

Great talk @Achilleasfloud @CardArthritis @MolecularTcd @tcdTBSI @Arthritisie @UCD_Research CD4+CD8+ polyfunctional Tcells are in the joints of ‘at risk’ subjects before clinic RA is detected #ACR21

[Kate Webb @drkatiewebb]

Team rheum Cape Town gone to the mountains to immerse in #ACR21

[CRMO @Fight_CRMO]

#CRMO Fact sheet in Spanish