@ThePOTSPostman Yes, Endometriosis. Diagnosed before having children, lucky to have 2 beautiful little girls! And yes, I’m still sick, tired, sore, and struggling every day, but I get through it for them :)
@broadwaybabyto I’m sorry you went through this. A hard lesson I learned was the hospital is there to save you and it’s up to the doctor’s and specialists to diagnose why an episode or flare up happened. Still waiting on a year since my last flare up almost took me out with no explanation why.
@_celia_bedelia_ We said goodbye to our sweet boy Magnum last Friday too. Thank you for sharing, I know the hurt too well, and my heart goes out to you!
@EverydayHealth@Endo_Jenn A9. Encouraged to make a book. Sick at work, my Mom told me I was “good at faking it”. My doctor “believes me" when I’m in pain and I'm “one of the strongest people”. My surgeon “you made us work girl” and my “insides were cemented together”, gave me validation. #EverydayEndoChat
@EverydayHealth@Endo_Jenn A8. I put myself out there being an advocate for myself, joining Endometriosis online groups, and attending Endometriosis conferences. I also express myself through drawing pictures. I want to let others know how common this illness is and that we are not alone. #EverydayEndoChat
@EverydayHealth@Endo_Jenn A7. Think of the different life, accomplishments, and achievements. Wish I had energy to play with my kids, do sports, sleep restfully without pain. Missing out and being numb from meds, thought of as a pill seeker, or a pharmacy, but started taking better care. #EverydayEndoChat
@EverydayHealth@Endo_Jenn A6. I feel unimportant and invalid, like I'm getting the run around between specialists and doctors, having to wait months between appts, getting passed around. I feel depressed, secluded, and that I've gone 25 years back to the start of my diagnosis physically. #EverydayEndoChat
@EverydayHealth@Endo_Jenn A5. I was diagnosed after emergency ovarian cyst surgery Jan2012, after 10 years of pain. I had a full hysterectomy June2016. My pain has been increasing since. I accepted and was happy to have an answer to all my symptoms and pain but still have chronic pain. #EverydayEndoChat
@EverydayHealth@Endo_Jenn A4. I'm nervous at appts because of the invasive nature, having pain or not having pain, trying to describe symptoms and advocate for myself while feeling judged, long wait between appts without resolution but I like my doctor, she believes me when I'm in pain. #EverydayEndoChat