epilepsy express

Epilepsy advocacy, research, and SUDEP global conversation. (SUDEP: Sudden Unexpected Death in Epilepsy)

[epilepsy express @epilepsyexpress]

Follow the purple project

https://t.co/Nlh9uOMdVe

[Epilepsy Action Australia @Action4Epilepsy]

ANNOUNCEMENT 📣 We've launched The Purple Project, a promise to continue the fight for those living with epilepsy. Are you with us? https://t.co/rQdmZ3nKa4

[epilepsy express @epilepsyexpress]

Fabulous idea. Great work. Brings back memories of the 'Out of the Shadows' Dragon Boat Crew in bright yellow paddling the Yarra for epilepsy.

[Mahalia Dobson @MahaliaDobson]

A group of parents of children who received life-changing neurosurgery are attempting to set a new world record for the longest journey by dragon boat to help fund new epilepsy research @abcnews

https://t.co/bvuAd2DSZo

[epilepsy express @epilepsyexpress]

Pleased to se an incrasing focus on primary care in epilepsy.

[David Lumb @david_lumb1]

Good morning. Today the BBC reveals what campaigners call a fundemenal flaw in epilepsy care- costing hundreds of lives a year. @SudepAction @SUDEPaware @EpilepsyFdn Read more here: Epilepsy: Calls for 'critical' funding to save lives https://t.co/jSKKUSLTZA

[epilepsy express @epilepsyexpress]

#Prevent21Summit Catching up with Jane Hanna and Phil Smith at the reception with Ed Vaisey - Corpus Christi College Oxford. Collaborations Workshop today

[SUDEP Action @SudepAction]

Today is the #Prevent21Summit
Looking forward to welcoming representatives from #epilepsy orgs, academic & medical professionals and policy makers - all collaborating together to tackle #epilepsy deaths.
More updates will be shared throughout the day.

[SUDEP Action @SudepAction]

"The proportion of epilepsy deaths is rising.
Substantial number of epilepsy deaths are potentially preventable.
Changes in service structure and funding mechanisms are needed."
Prof Hannah Cock, Professor of Epilepsy and Medical Education
#Prevent21Summit

[The Alfred @AlfredHealth]

The Alfred is now the only hospital in Australia with the capability to offer and test the most innovative new treatments and therapies in neurology – all in the safety of a ward setting. Collaborating with @CCSMonash https://t.co/Ng7REbsUdx

[epilepsy express @epilepsyexpress]

Congrations Rohit. This UK initiative is showing the world the potential of education and preventative action to reduce epilepsy deaths. https://t.co/ZGsCydA2av

[SUDEP Action @SudepAction]

Sending huge congratulations to Dr Rohit Shankar (@haritsa1), clinical lead for the #SUDEP & Seizure Safety Checklist, for being awarded an MBE in this years' #NewYearsHonours List! #LearningDisabilities #Epilepsy

https://t.co/eyCRw4baB3

[epilepsy express @epilepsyexpress]

Purple plans for Japan! Heard all about it at the American Epilepsy Society Meeting - Washington

[epilepsy express @epilepsyexpress]

Good morning Washington DC. 7AM at American Epilepsy Society meeting -SUDEP SIG / Deadly Bedfellows: Sleep & SUDEP. So much we still do not understand.

[epilepsy express @epilepsyexpress]

So pleased to see such a positive step towards tackling SUDEP and epilepsy-related death in Australia - launched this SUDEP Action Day 2017 https://t.co/pPfuEJR323

[SUDEP Action @SudepAction]

Exciting news! SUDEP Action have partnered with @Action4Epilepsy for #SUDEPACTIONDAY2017
Read more here - https://t.co/11ZCIi9d8y

[epilepsy express @epilepsyexpress]

Australian problem too. Instead of waiting for the wheels to fall off altogether....let's have realistic research on this. https://t.co/FCZMRVpoYb

[Dr Peter @omeara_p]

Do pts care who provides services? Competent & ethical providers? https://t.co/DJcNFnQxRI

[SUDEP Action @SudepAction]

Take a look at Jane Hanna's blog post after the International Epilepsy Congress last week -
https://t.co/qLXdhtdE8f

[SUDEP Action @SudepAction]

Yesterday, CEO Jane Hanna and Dr. Shankar presented SUDEP & Seizure Safety Checklist and EpSMon technology at #EpilepsyCongress
#IEC2017

[Professor Rohit Shankar @haritsa1]

#IEC2017 @SudepAction @digitalhealthUX excited to be in Barcelona to talk with Jane on our risk work alongside some SUDEP world leaders

[epilepsy express @epilepsyexpress]

Exciting to see the streamlined Version2 of the SUDEP and Seizure Safety Checklist ready to go. https://t.co/4rO1PUGpIx

[SUDEP Action @SudepAction]

We're delighted to announce Version 2 of our award-winning SUDEP & Seizure Safety Checklist, has now been released.
https://t.co/dDvfw5KUzt

[epilepsy express @epilepsyexpress]

@SUDEPAction UK and Australian members of #SUDEP & SEIZURE Safety Checklist secretariat discuss new developments https://t.co/cbPJ1NZhZv

[epilepsy express @epilepsyexpress]

Katie & Shelly making a difference @SUDEPAction - making sure that every @epilepsy death counts https://t.co/s2l8SuXfc3

[epilepsy express @epilepsyexpress]

At #SUDEPAction annual meeting. Prof Stephen Brown adds his name to the timeline of 21 years for SUDEP Action

[epilepsy express @epilepsyexpress]

Henry Smithson updates #SUDEPAction meeting re the International Epilepsy Deaths Register. What can the Register do? https://t.co/iavihe5aRt