European Sickle Cell Federation

[European Sickle Cell Federation @escfederation]

Save this Date!!
Our International Sickle Cell Disease Summit is coming up this June 27th-29 2024. Registration open https://t.co/tRQPfhS3gW

The perfect place to be among patients, clinicians and industry
Join us for a great information and networking experience.
#ESCFSummit24

[European Sickle Cell Federation @escfederation]

Thank you to our PLATINUM SPONSOR @pfizerinc for our recent ESCF International SCD Summit 2024 held in Dublin, Ireland. Your support enabled patients to share their lived experiences, patient education, support, networking & engagement with health care professionals.
Thank you!!

[European Sickle Cell Federation @escfederation]

Session One!

A Dialogue of patients and carers lived experiences!!!
Thursday 27th June 2024
Time: 16.00pm GMT

Join us in person or online.
Register in advance to secure your spot
at https://t.co/w0H9cm2uxA

[European Sickle Cell Federation @escfederation]

Introducing our Platinum Sponsor ✨️ Thank you @pfizer for your support towards #sicklecelldisease & #patienteducation
Here is to the first ever International conference on Sickle Cell Disease in the Republic of Ireland organised by Patients & Patient Advocates.

[European Sickle Cell Federation @escfederation]

This 19th June we remain committed to changing the myths & perceptions surrounding the racial structure of #Sicklecelldisease genetic prevalence!

Sickle Cell is NOT a black people's disease!
Join us by sharing this message widely.
Together we are Stronger!

[European Sickle Cell Federation @escfederation]

FINALLY! Some great news as the struggle to keep Voxelotor in the UK 🇬🇧 is ovee. Now, the rest of Europe waits!

https://t.co/OtoL2fRoxR

[European Sickle Cell Federation @escfederation]

Back for another great patient focused experience together with great clinical experts.

This is an in person event. Registration opening soon.

SAVE THE DATE!!

[European Sickle Cell Federation @escfederation]

FINALLY! Some great news as the struggle to keep Voxelotor in the UK 🇬🇧 is ovee. Now, the rest of Europe waits!

https://t.co/OtoL2fRoxR

[Lora Ruth Wogu @LoraRuthW]

Super excited to see this!! Thank you Diane for choosing #Sicklecell. There is nearly no research on Sickle Cell Disease in Ireland.
This means alot to us!! Thank you!!!
@escfederation @ERNEuroBloodNet @SCTIreland @mhaireland @PPI_Ignite_Net

[CRISPR Therapeutics @CRISPRTX]

#Breaking: The European Commission approves CRISPR/Cas9 gene-edited treatment, co-developed with Vertex Pharmaceuticals, for #SickleCellDisease and #BetaThalassemia for the European Union. Learn more: https://t.co/94JrUPfhMT

[European Sickle Cell Federation @escfederation]

This is a very important point. We need more specialist Heamatologists for Sickle Cell Disease on a global scale. We welcome the FDA approval, but we need them to be approved in Europe and equally accessible for everyone!! Thank you @ASH_hematology for a great conference!

[ASH @ASH_hematology]

The approval of two gene therapies last week represent a big step forward in SCD research, but it still won’t be enough for most people with #SickleCell. The problem: we need more hematologists. #ASH23

Read @DocksDoc200's piece in STAT: https://t.co/B0gwNQScCw. #ConquerSCD

[ASH @ASH_hematology]

The approval of two gene therapies last week represent a big step forward in SCD research, but it still won’t be enough for most people with #SickleCell. The problem: we need more hematologists. #ASH23

Read @DocksDoc200's piece in STAT: https://t.co/B0gwNQScCw. #ConquerSCD

[Ann Van de Velde @sanguinebiomab]

#ASH23 is thé meeting where SCD is highly put on the agenda. Looking forward to continue this important way to go at #EHA24

[UEO Sickle Cell @UEOSickleCell]

CASGEVY is the 1st FDA-approved #geneediting treatment for #sicklecell. Using CRISPR, Exa-cel targets the BCL11A gene, boosting fetal hemoglobin to ease symptoms. While more dialogue is required on access & affordability, it's a notable milestone for #SCD. https://t.co/mgGQgMnP3m

[Jenica Leah (My Friend Jen) @jenica_leah]

Great session on how sickle cell disease centres can get ready to provide genetic therapies @ASH_hematology
Interesting and exciting times are ahead!!

[Vertex Pharmaceuticals @VertexPharma]

#Breaking: The U.S. FDA approves our treatment for #SickleCellDisease. We are excited to make this treatment available to patients. Learn more: https://t.co/9k3p4c7Kyv

[European Sickle Cell Federation @escfederation]

Our COO @LoraRuthW is present at the #ASH23 Annual meeting.
Europe is eager & ready to see advancements in Sickle Cell treatment options, disease management and improving involvement in Research and clinical trials.

[European Sickle Cell Federation @escfederation]

The ASH Annual meeting 2023 is on! #ASH23. And it's a pool of knowledge, networking and clinical advancement for both Malignant & Non Malignant conditions!

[European Sickle Cell Federation @escfederation]

Finally, a wave of great news as we celebrate the first regulatory authorisation of a CRISPR based gene editing therapy for #sicklecelldisease in the world!
This is a new era for the Sickle Cell Community!
Eagerly for approvals in extending this to the rest of Europe.

[CorpusHumanum-centroTerapeutico @CorpusHumanumFT]

The importance of donating blood 🩸
Help us establishing healthcare pathways regardless your social status or ethnicity. Everyone deserve the chance to live.
Donate blood, preserve life !
#changetherecords
#appdh
#ipst
@escfederation
@ERNEuroBloodNet