Thank you @linkedin for inviting, partnering, & supporting Sickle Cell& @giveblood.ie for a talk on Sickle Cell Disease, the Importance of blood donation, the need for more blood donors .
Thanks to Axelle & the Black Inclusion Group for the blood drive at IBTS offices in Dublin
September is here! And the focus is on raising awareness of the importance of; blood donation, newborn screening, advancement in treatment options for Sickle Cell Disease.
Join us to donate, fundraise or organize a blood drive.
Contact us via;
Email: [email protected]
Today is World Sickle Cell Day 🩸
Our specialist sickle cell nursing team will be in the hospital concourse until lunchtime today raising awareness for sickle cell disease and encouraging you to give blood when you can 💉
Pop on down to have a chat with the team 💬
This 19th June we remain committed to changing the myths & perceptions surrounding the racial structure of #Sicklecelldisease genetic prevalence!
Sickle Cell is NOT a black people's disease!
Join us by sharing this message widely.
Together we are Stronger!
Save this Date!!
Our International Sickle Cell Disease Summit is coming up this June 27th-29 2024. Registration open https://t.co/tRQPfhS3gW
The perfect place to be among patients, clinicians and industry
Join us for a great information and networking experience.
#ESCFSummit24
Approaching midpoint of #GetRareAware campaign -we must increase number of #RareDiseases in newborn screening. Thanks to our many supporters that are on this journey with us...
If you want to #GetRareAware register to join a webinar and take action https://t.co/2vKVDNh7R9
13 years of Advocacy, education & awareness, patient & parent support, improvement in health policy for #sicklecell & much more! All without any government funding!!
We are thankful for the support & donations received over the years.
We've launched a new online survey to get your ideas for a national action plan to eliminate #cervicalcancer in Ireland.
We can make cervical cancer rare and you can help make it happen.
Take the survey now: https://t.co/z1fTERhiu4
#TogetherTowardsElimination#HPVAwarenessDay
Some really great points of concern raised here. But at this stage we are tired if seeing written research and would like to see more actions and positive impact on the lives of patients with #Sicklecell and indeed other #rare diseases.
Thanks alot Anne for sharing with me! :))
Great event last night @SCTIreland organized by @LoraRuthW amazing performance by our very own Justine Nantale @j_nantale and & amazing Rachel.The event focused on the need for more outreach and education around Sickle cell disease. More community engagement and funding needed RT
Today is #WorldSickleCellDay. The INTO raised nearly €68k through the Members’ Draw in aid of @CHFIreland research into the disease which causes severe symptoms in children such as delayed growth, stroke and life-long organ damage.
🔗 See: https://t.co/y2ctONBRBL
@SCTIreland
Power in Unity, Power in Numbers!
We highlight the crucial need for more blood donations among people of #African heritage to improve the treatment of SCD pts in Europe. Let's work together to #changetherecords by donating blood today! Join US by sharing the theme. WSCD2023🩸