oliver

he/him, white disabled transmasc

[Syreeta Nolan ❤️ @synolan.bsky.social @nolan_syreeta]

@BeingCharisBlog Thank you so much, @BeingCharisBlog, for making space for disabled folks to share links

I need $700 for my medical insurance & gas

I am excited that mom only has a week left of chemo radiation, but she now has a surgery on Friday to fix or replace her port

Links in QT below

[Fortesa Latifi @hifortesa]

the thing about chronic illness is that your body decides for you what kind of day you're going to have

[oliver @fairyheadds]

@KatyMJo1 @bennessb not pain so much as i’ve been getting absolutely steamrolled by (mcas?) reactions. idk if there’s more pollen or something with the weather being weird but i’m exhausted constantly reacting to new things & having to find replacements

[honor/ art + astro @honart101]

my senior cat needs blood work ($300 and have to put half down to get it done). any art sales will go towards supporting my baby 💓

[oliver @fairyheadds]

at this point of chronic illness burnout, an entire body part could fall off & i would just shrug and put some paper towels down so i could go back to playing sims

[Dr. Amy, Psy.D. @DrAmyPsyD]

It's also other-ing and, frankly, rude. "Yes, it's ok for people like YOU do to that because we can't expect you to be as Good and Professional as the rest of us." 2/3

[oliver @fairyheadds]

also does anyone else ever just stop caring?? last night i reacted to green rooibos tea & just kept drinking it bc it was tasty despite the burning in my mouth and throat & i guess i just have caregiver burnout for myself

[oliver @fairyheadds]

#NEISvoid how do y’all maintain the hope & energy required to see new docs, try new treatments etc? i feel like it would probably be useful for me to pursue MCAS dx & maybe go on meds but it’s just so draining & i’m so burnt out just managing this all on my own

[oliver @fairyheadds]

i’m terrified of trying to go through the process again, expending so much energy just to be misinterpreted or treated like i’m malingering & wasting everyone’s time.

[Sarah Kendzior @sarahkendzior]

From "In Defense of Complaining", an essay in my book "The View From Flyover Country": https://t.co/tzV7Vov6Hr

[Mari-homeless. Still Indigenous. @wordglass]

I had to refuse treatments for my legs today because I couldn't afford it. The more patrons I have the more medical care I can get. You can join for as little as $1 + tax per month. Get your friends to join too! And if you haven't, join today!

[TogetherWeCan🙏🏾 @TogethrWeCan87]

I’m begging you for help, please don’t scroll past this❗

My wife is in so much pain. Severe nausea, bleeding,&chest and stomach pain. Her pancreatic enzymes are 140x the normal amount always, bleeding excessively

when you have all these things killing you from the inside out

[no justice, no peace @fluidsonja]

if ur not sure how poor people are surviving these conditions, just know many are not

[@richardvallee.bsky.social @richardvallee]

The real life impacts of brain fog are far more severe than the name suggests. It can mean losing the ability to speak, to read, to form coherent sentences, to make a simple meal. Forget about working.

And it can last for years. Well over a decade in my case.