FAMILIAR Study

FAMILIAR Study is researching co-production methods in preconception care for women with inflammatory arthritis.
Health & Care Research Wales portfolio ID 44828

[FAMILIAR Study @FamiliarStudy]

Hi lovely folk, I'm not closing this account, but I am branching out... if you're also on @bluesky, you can find me @ https://t.co/MHKiR6xqCw, see you there! 😊 @FamiliarStudy updates will continue to be posted here too.

[Daring to Dream, the Emotional Health Charity @DaringtoDream5]

#Lleswyl2025 🎉 The only #inclusive virtual festival by @DaringtoDream5 , shining a light on adults with illness in #Wales. Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
https://t.co/zlhLLLoc2u

[FAMILIAR Study @FamiliarStudy]

. Thank you to everyone who has been part of this valuable research to date, participants and stakeholders, the brilliant patient co-researcher
@LibbyHumphris, my amazing supervisors, my family & loved ones. I couldn't be so close to finishing this without any of ye 🙏🏼 3/3

[FAMILIAR Study @FamiliarStudy]

Researching a condition you also live with is a challenge. This past 10 months my #rheumatoid was not managed by my meds at all. I am so grateful to finally be on a drug which is managing my condition again, but this has had a HUGE affect on bringing you the study findings 1/

[FAMILIAR Study @FamiliarStudy]

. ...and even writing them up for my examiners.
I am able to start writing again now, and will be working to get the work and findings written up and shared with you all as soon as I can. I hope 2025 sees you get the right support, whatever that means for you. 2/

[FAMILIAR Study @FamiliarStudy]

Biggest thanks on this #InternationalDayOfTheVolunteer goes to my long standing Patient Co-Researcher, @LibbyHumphris, who has stuck with this project for over 6 years (yes, SIX!). Expertise, encouragement, and comradery. Thank you, Libby 🫶🏻 🦜

[FAMILIAR Study @FamiliarStudy]

Today is #InternationalDayOfTheVolunteer: I would like to thank every person who has given their time to the @FamiliarStudy making it a success, as a participant, supervisor, or expert stakeholder. Thank you for making this study work, and helping it exceed initial expectations!

[FAMILIAR Study @FamiliarStudy]

@NASSexercise @UKParliament @hammersmithandy @MarkFergusonMP @mandfhealth @GenQ5Lesley @NASSchiefexec @Physiozensam @loobicia @rajsengupta Well done to all of ye!

[FAMILIAR Study @FamiliarStudy]

@NASSexercise @UKParliament @hammersmithandy @MarkFergusonMP @mandfhealth @GenQ5Lesley @NASSchiefexec @Physiozensam @loobicia @rajsengupta @synovialjoints @ProfYelizPrior @RheumatologyUK Well done to all of ye!

[NASS @NASSexercise]

On #InternationalMensDay2024 and want to acknowledge how #axialSpA can impact men with a reminder of our discussion with Matt Daly who combines personal & medical experience:

https://t.co/h35MIS13VZ

#AxialSpA #AxialSpondyloarthritis #AnkylosingSpondylitis #AxSpA

[NASS @NASSexercise]

Do you want to be a Changemaker? Our awards are open to healthcare professionals working to reduce the delay to diagnosis for #axialSpA.

For more information visit https://t.co/LJ72aJgANj

[Andrew H Shennan OBE @OBSevidence]

ICU admissions drop to zero in pregnant woman who have had 3 doses of the covid vaccine. Most women who become seriously unwell in pregnancy from covid have not been vaccinated. An effective safe vaccination in pregnancy.

[⚫ Zoë Abbott (she / her) @ZoeAbbott83]

I'm not closing this account, but I am branching out... if you're also on @bluesky, you can find me @ https://t.co/ZSh2BhDpRc, see you there! ��

[Dr Alice Berry @Alicebez123]

Highlighting inequities across MSK pathways - Supporting People With Musculoskeletal Conditions From Underserved Communities in the United Kingdom to Engage With Physical Activity: A Realist Synthesis and Q-Methodology Study https://t.co/ls0p6mFKGe

[Health and Care Research Wales @ResearchWales]

Shape research into communication around women’s health.

We would like women, girls and NHS practitioners to take part in a short survey to help identify the gaps in research around communication in all aspects of women’s health.

Deadline on 25 Oct: https://t.co/JKv1tOcimT

[NRAS @NRAS_UK]

🌍💙 For World Arthritis Day 2024, BSR has launched new resources for individuals and healthcare professionals focused on Patient Initiated Follow Up!✨

Watch now to learn more👉 https://t.co/NwEBpukTgv

#WAD2024 #worldarthritisday

[Sam Rowlands MS @SamRowlands_]

🌐 Today is #WorldArthritisDay.

🏴󠁧󠁢󠁷󠁬󠁳󠁿 Around 970,000 people in Wales live with arthritis and musculoskeletal conditions.

👉 If you live with arthritis, @CymruVArthritis can help: https://t.co/XiiwgeQUZn

[BSR @RheumatologyUK]

On #WorldArthritisDay, themed “informed choices, better outcomes” we’re launching a new Patient initiated follow-up toolkit! Designed for clinicians and patients, it empowers patients to schedule their follow-ups, reducing hospital visits.

Download now https://t.co/WB5QOK6uea

[EULAR @eular_org]

🌍 Today is World Arthritis Day!

✨ Understanding rheumatic and musculoskeletal diseases (RMDs) in children is crucial. Let´s ensure they feel empowered and included.

📚 Knowledge is Power!

🔗 Learn more: https://t.co/5qTky2G7H6

#WAD2024 #WorldArthritisDay #EULAR

[Powys County Council @PowysCC]

Today is #WorldArthritisDay, a day to raise awareness of arthritis and its impact. One of the biggest causes of persistent pain in Wales.

The charity @CymruVArthritis is there to provide information, help and support for everyone living with arthritis: https://t.co/VPld98y3T8