Former investment manager international private banking. Disabled by M.E. and forced to retire after 15 year career. Tweet latest news relating to #MECFS.
@Dodlink@MEAssociation Thank you. It's going to be hard but I hope I can rise to the challenge. A couple of hours a day from home. Need to re-org my routines ๐
@Firestormmer@julierehmeyer It's an interesting podcast. Wasn't wild about the 'over acheiver' bit as that has been used to patient blame but overall good.
Listening now. When patients and researchers face-off: The PACE Trial and ME/CFS with @julierehmeyer and others. #MECFS#PACETrial https://t.co/fGSr8Qx9DN
@Shareaholic@ThomJacksonWood "Keeping everything contained in a single space would visually represent the extreme isolation you can feel when you have ME." #MECFS
@Shareaholic@ThomJacksonWood "My main reason for writing Awaken and The Black Box as narrative fiction was because I wanted to create a character with ME that people...
@Shareaholic@ThomJacksonWood "I find walking very difficult and therefore use a manual wheelchair, a mobility scooter or crutches to get around." #MECFS
@tandfnewsroom@aboutmecfs "Maybe I'm reading this wrong, but is it implying that orthostatic intolerance is caused from prolonged periods of horizontalness?" #MECFS