Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Life~Pain~Wellbeing Coach (inc prescribed med taper support). Persistent Pain advocate, LEX, Patient Partner. “Recovery is Possible” same handle on 🦋

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

Footsteps Festival links (new website)

The Festival Main Page
https://t.co/ZnOMOblPpr

Past Events
https://t.co/7u6cFoR2JE

Eventbrite link
https://t.co/1cCdMEeSB4

Just Giving Link
https://t.co/RSPIdoyfx0

YouTube Link
https://t.co/rToj7gASCB

https://t.co/ZnOMOblPpr

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@saffronandsky @Fionas_Story @sunsopeningband Many deaths and worsening of the condition have come from biomed treatment. I’ve had damage from both sides, I had to do the brain training lark myself & better for it.

The trouble is that the stigma, fear & messy is hurting so many from every corner of this discourse.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@saffronandsky @Fionas_Story @sunsopeningband No I entirely understand & it’s messy AF. There’s a lot of stigma to unpack & still goes on sadly. But it doesn’t negate the fact that many of us really do respond to this treatment. The thing is, when you look at biomedical treatment the negative effects are as bad, sans stigma.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@saffronandsky @Fionas_Story @sunsopeningband Yes I think there should always be caveats with treatments. Same applies for spinal stims, surgery etc. when you look into genuine success rates they are inevitably lower than we are told. Because pain is messy & so much contributes. Yet the vitriol against psych methods is huge.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@Strobe_Lightly It used to be amazing, my first year as a 6th former, we marshalled for Benjamin Zephaniah, it was so enlightening for a rural 1980’s teen! It was organic & intellectual but egalitarian. It’s now a travesty of that. Clean, careful and achingly fake.

The gentrification of books.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@DrJN_SportsMed Sending love from the “side” you are now on. I’m so sorry. The best medics I know are those with lived experience. It’s focusing on how we can all fight for the needed changes. Only you get to decide what a silver lining is, but your patients & others will benefit regardless. 🫂

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@tylerblack32 @RecoveryDoctor @markhoro Maybe we should be defining incapacitated?

My severe fentanyl and tricyclic withdrawal felt incapacitating *to me* I could walk and talk, but my cognitive function was torpedoed, I couldnt be alone as I would have killed myself, & I had rages that could have been dangerous. 🤷🏽‍♀️

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@racehorsesrace1 So sad. And by my fav Bullet Train. I hope someone somewhere loved him. There are many would have.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@LotsOfTreesHere Love comfrey, it does like to take over mind, but the bees love it and it’s so good for you. If you chop up the leaves and soak them in good quality olive oil for a few weeks and then strain you have an amazing soothing, healing oil for bruises, sprains and breaks. Don’t eat!

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@Doogievet I’m so sorry for Lucy and you, what a tough difficult thing to have to do. But it’s also the kindest, bravest thing we can do for our animal people. Big hugs to both of you. Run free Nugget x

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@Shrink_at_Large Read Cass Macgregors new paper in Pain & Rehabilitation. It clearly shows how DWP worsens life for people living with pain.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@Ameliajgreen How do we know though?

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@angpeacock1111 @GKasioumi And they interact with other meds used for these things. I had concurrent fentanyl & tricyclic withdrawal and was treated like a mad addict by the HCPs. It was anxiety, health anxiety, and I definitely wasn’t having SI. I survived despite them and because Covid happened.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@evek181818 I got the vet to come to me & it was a beautiful passing. Remember they don’t measure time or death the way we do. They just know the love.

I made a video of Apple’s life which helped & helps. I wonder if you could make one for your sweet one?

Also, don’t be afraid to talk 🫂

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@evek181818 I lost my boy on the 1st May from gastrointestinal cancer. Lots of anticipatory grief, & I honoured it, but used it to trigger me to love on him. We visited fav places, I kept him with me all the time. I loved on him.

I miss him horribly, it was just me & him & now it’s just me.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@markhoro @recover2renew I think there is also another population. I was one who investigated but I’ve talked to many who just shrugged & just struggled on, some looked into it, others just carried on even in some pretty gnarly situations. The trust in & ability to see a GP is plummeting.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@EliMcCann I also prefer the glasses, #4 shades the win for me.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@theGROWcompany @LifeIsSkewed @BettingSitesCom Yes, if Henderson can’t keep utd what hope is there? Beyond the lack of appetite for it, the understaffing & creakiness of Weatherbys systems doesn’t help. Used to be we all cared so much, I wonder if they’ve kicked that out of staff by now.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@LifeIsSkewed @BettingSitesCom I was secretary to the committee overseeing microchips for GB/Irish TBs. The hopes they had of them, none come to fruition 😢 there should have been cradle to grave traceability.

More than stallion caps. Inbreeding coefficients, soundness etc. I’d be a big dictator!!!

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@LifeIsSkewed @BettingSitesCom Yep, increasing this would be good. Traceability needs to be improved and I WISH there was more oversight on breeding. Sigh.

[Niki 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @Fizzbw]

@ShaunLintern My neurosurgeon 🤷🏽‍♀️ thankfully didn’t try to shag me. Shame I always found him very good & professional. Messy stuff, but not fucking your patients is pretty basic ethics. (Nothing to do with his ethnicity for those who are saying that, get out of here with that pathetic stuff)