FPIES UK

Supporting families and raising awareness of the severe childhood condition , Food Protein Induced Enterocolitis Syndrome.

[FPIES UK @FPIESuk]

Our mission is transferring to Allergy UK! We’re closing FPIES UK as an independent charity and contributing our resources & funds to their expert hands to continue supporting FPIES long-term.

For full details see https://t.co/gp8qiLS8zb, & follow @AllergyUK on Instagram

[FPIES UK @FPIESuk]

@rcgp

[FPIES UK @FPIESuk]

What a fanrastic 2 days we had @RCGPAC It was great to speak with so many GPs & other medical professionals. Thank you to everyone who took the time to engage with us. If you want more info just send us a DM 😊
#rcgpac #fpies #raisingawareness

[FPIES UK @FPIESuk]

Today, we are at the @RCGPAC raising awareness of FPIES with GPs #RCGPAC #FPIES #fpiesawareness

[FPIES UK @FPIESuk]

FPIES is a delayed non-IgE allergy which leads to repeated vomiting and other gastrointestinal symptoms after eating a trigger food. FPIES still remains poorly understood and diagnosis is often delayed #RareDiseaseDay2024

[FPIES UK @FPIESuk]

@ChattyDietitian @Dietitians_MHG @BDA_Dietitians @BDA_Paediatrics Thank you for a great presentation

[FPIES UK @FPIESuk]

Today is Global FPIES day! A time to raise awareness and show support. We are very happy to be able to collaborate with @FPIESFoundation 😊

[FPIES UK @FPIESuk]

If you haven't done so yet, please consider taking part in this survey about the parental experiences of diagnosis and management of FPIES in the UK.
https://t.co/lFRjD7qPhj

#FPIES #foodallergy #research #cardiffmet

[Rebecca B @RebeccaBakr33]

If you would like more information or would like to participate, please contact me on [email protected].

Retweets would be very appreciated 😊

[FPIES UK @FPIESuk]

Our very own Katrina with @garystiefel talking about FPIES parental perspective at @NutriciaHCPUK paediatric allergy conference #delayedfoodallergy

[BDA Paediatric Group @BDA_Paediatrics]

@FPIESuk calling all Paediatric Dietitians - be aware about FPIES! @BDA_FASG @BDA_Dietitians

[FPIES UK @FPIESuk]

@marta_allergy @sonsolesinfante @simona_barni @ArasiStefania @fedemartinon @FPIESFoundation This is great news ��� keep tweeting #FPIES #Foodallergy

[Marta Vazquez-Ortiz, MD PhD @marta_allergy]

Early start today at #EAACI2023 in a great session on #FoodAllergy #diagnosis! Happy to present what may help predict severe #FPIES reactions at challenge. Credit to all my BIO-FPIES colleagues! @sonsolesinfante @simona_barni @ArasiStefania @fedemartinon @FPIESuk @FPIESFoundation

[FPIES UK @FPIESuk]

If there is anyone out there with a baby or child with FPIES that has not yet taken part in this survey on feeding difficulties in FPIES, please do take a look before it closes.

[FPIES UK @FPIESuk]

Are you a parent or carer for a child with FPIES? You may be eligible to take part in this important survey.
We are collaborating with researchers from Imperial College London and @FPIESFoundation to help carry out a research project on FPIES and feeding difficulties.

[FPIES UK @FPIESuk]

The survey is fully anonymous and takes 10 - 15 minutes to complete.
Follow this link for more information and to complete the survey:
https://t.co/Erugl07qBL

[FPIES UK @FPIESuk]

Your participation in research like this will help to build a picture of how FPIES affects babies/children and their families, and how they could be helped in future.
Follow this link for more information and to complete the survey:
https://t.co/T4T74BZN8j

[FPIES UK @FPIESuk]

If there is anyone out there with a baby or child with FPIES that has not yet taken part in this survey on feeding difficulties in FPIES, please do take a look before it closes. The survey is fully anonymous and takes 10 - 15 minutes to complete.
Wu

[FPIES UK @FPIESuk]

It's time to campaign for change! #AllergyAwarenessWeek #FPIESUK

[Allergy UK @AllergyUK1]

Despite the growing prevalence of allergy, there are only 40 adult allergy specialists. This is why, we are calling for each ICS to introduce an allergy nurse & dietitian as part of the services offered in GP practices. Join us & pledge your support👉️ https://t.co/I33JZ8fgwk

[FPIES UK @FPIESuk]

Today marks the start of allergy awareness week! #fpies #allergyawarenessweek

[Nursing Standard @NurseStandard]

A single nurse was left in charge of 17 patients with complex needs on a ward at a hospital run by an NHS trust struggling with ‘significant’ nursing vacancies, a damning report says.

Have you been put in a similar position before?

https://t.co/CfQ2qdkwcc