Deborah Lundin

Mom. Freelance Writer. Advocate for Disabilities and Chronic Diseases. #Sjogrens #EDS #MCAS #Dysautonomia #Chiari #LongCOVID #ChronicPain Warrior

[Deborah Lundin @fwcdeborah]

@ZelenskyyUa @POTUS Please know that Trump and Vance do not represent the majority of the American people. I will always stand with Ukraine! You, @ZelenskyyUa are the true leader.

[Deborah Lundin @fwcdeborah]

My dad urgently needs help due to a medical emergency. His health is declining rapidly, and we need funds to bring him back home for proper care. Please donate & share to spread the word ❤🙏 @gofundme https://t.co/VwHhtL3gzl

[Deborah Lundin @fwcdeborah]

https://t.co/1c8unWKq9O My dad's health is rapidly declining, and we urgently need to bring him back to the US from Colombia for proper medical care. Every donation will make a huge difference, and if you can't donate, please share the link—thank you so much for your support.

[Deborah Lundin @fwcdeborah]

For those of you who know @johnlundin, I would appreciate your help. His health has recently declined and it is necessary to bring him back to the United States immediately and I need your help. https://t.co/6tGMKtG2MC

[Deborah Lundin @fwcdeborah]

For those of you who know my father @johnlundin His health has taken a serious turn and I am trying to get him home from Colombia but can't do it alone. Any help would be greatly appreciated. https://t.co/oc0Ol2okUl

[Deborah Lundin @fwcdeborah]

@facebook @messenger I need to speak with someone regarding expected elder abuse by a caretaker and the shutting down of my father's account to block communication. Please respond asap.

[Deborah Lundin @fwcdeborah]

@johnlundin Dad, not sure if you will get this or not but you seem to have disappeared off Facebook and messenger and I can't contact you. Please call or send a phone number that I can call so we can get in touch. Very worried about you.

[Dysautonomia Intl. @Dysautonomia]

People with #dysautonomia often have multiple medical diagnoses. Figuring out which diagnosis is causing your symptoms can be tricky! #SillySaturday

[Deborah Lundin @fwcdeborah]

I was on gabapentin for over a decade for #chronicpain and nerve damage but had to come off it because the cognitive decline was so bad.

[POTSibilitiesParents @POTSparents]

A new study indicates that people with hypermobility are 30% more likely to develop Long Covid. #Dysautonomia #POTS #POTSparents #LongCovidKids #EhlersDanlos

https://t.co/d7dFWaoML1

[EDS Awareness @EDSawareness1]

It’s Worth a Shot: Prolotherapy, PRP & Regenerative Therapy – A Medical Overview for Curious EDS Patients

https://t.co/78Nj0U1zT9

#EhlersDanlos #Hypermobility #EDS #hEDS #HSD #Fibro #Fibromyalgia #NEISVoid #MedEd #FOAMed #MedTwitter #zebras #CPP #Pain #rheumatology

[OhTWIST.bsky.social now too @H2OhTwist]

Pain in Ehlers-Danlos Syndrome is Common, Severe, & Associated with Functional Impairment: https://t.co/XDhV5PwPns

#EDS #FOAMed #MedEd #doctors #nurses #EhlersDanlos #opioids #MedTwitter #Fibro #Fibromyalgia #NEISvoid

[SASpine @SASpine]

Unfortunately millions have this 'bendy body' disease (EDS - Ehlers-Danlos syndrome)… #SASpine #drcyr #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #ehlersdanlossyndromecheck #backpainrelief #neckpaintreatment

[OhTWIST.bsky.social now too @H2OhTwist]

Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!

https://t.co/89gGnow5Xs

#MedEd #FOAMed #MedTwitter #NEISvoid

[Bookaholic Bex @BexBookaholic]

This is a public service announcement for #BookTwitter folk who think they have run out of storage space for their books. I give you... the book door 😍

[Hassan Khader Ali Yousef @hassankhaderali]

Being stuck at home is just one of the horrible endless episodes most chronically ill and disabled people live every day in their life journeys with chronic illnesses and disabilities.
(I am just venting)
#chronicillness

[Deborah Lundin @fwcdeborah]

Question for all my fellow #Spoonies Staying #positive is often hard with #chronicillness. What is your favorite #quote to keep you motivated? #EDS #MECFS #Sjogrens #Dysautonomia #POTS #ChiariMalformation #LongCOVID

[Dysautonomia Intl. @Dysautonomia]

Nearly 150 years later and many doctors are still diagnosing “hysteria” in women under more palatable modern names, failing to diagnose and treat their actual diagnoses - POTS, MS, Sjogren’s, lupus, cancer, neuropathy, etc. - all still being misdiagnosed as psych issues in 2024.

[ChronicCareCompass @ChronicCompass1]

Experiencing #grief is not limited to the loss of a loved one. Grieving your old self is common after a #chronicillness diagnosis. The Chronic Illness and Grief #Journal helps encourage self-reflection and break down grief into more manageable parts. https://t.co/IE1qgiAwei

[Deborah Lundin @fwcdeborah]

Was just diagnosed with #Chiari and waiting for a referral to the neurosurgeon. Have #EDS, severe spine issues, #Sjogrens, and more. Would love to hear from others with Chiari and what treatments offered the best help. Surgery? Something else?