Top Tweets for #EDSToolkit
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/vehue30SjL
#MedEd #FOAMed #MedTwitter #NEISvoid

Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/vehue30SjL
#MedEd #FOAMed #MedTwitter #NEISvoid

Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/vehue30SjL
#MedEd #FOAMed #MedTwitter #NEISvoid

Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/vehue30SjL
#MedEd #FOAMed #MedTwitter #NEISvoid

Yes, I know that's a lot of things to wade through. I'm working on a tool to help. But meanwhile, it's important to do due diligence, always.
Try the #EDSToolkit for doctors to start:
https://t.co/q7UXxAPdxT
#NEISvoid #zebras #EhlersDanlos
@2HeartsWellness ๐
๐๐คฃโ๏ธright? I'm a co-author of the #EDStoolkit for doctors for Pete's sake! (Among other things.) But yeah, that was rich!
Thanks for going to bat for me!
He picked the wrong opponent lol!
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid
@JulianeWriter So... Technically any doctor that is willing can diagnose the forms of EDS or HSD who is willing to study a touch.
I helped co-author the #EDSToolkit for GPs in 2018 to that end, here;
https://t.co/q7UXxAPdxT
But, generally, either primary care, rheumy, or later genetics work.
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid

Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid
@CortDoesScience @DrRebeccaRyan @DrEReinhold @luvenice_h @Michaeltikus @BluesteinLinda That's why Dr Reinhold hatched the #EDSToolkit for doctors back in 2018... technically any doctor can diagnose an #EDS or #HSD if willing to drill down just a little...
https://t.co/q7UXxAPdxT
To ease the pressure on geneticists. (I'm a co-author.)
@Katiemcsabo @BluesteinLinda @SabeehaMalek @GemmaSPearce @jvsimmonds01 @ClifftonChan Look up the #EDSToolkit on my bio and also my publications on the subject of childbearing with #EDS/#HSD. Slowly, we are gathering more information together but we need so much more.
@Katiemcsabo @BluesteinLinda @SabeehaMalek @GemmaSPearce @jvsimmonds01 @ClifftonChan Look up the #EDSToolkit on my bio and also my publications on the subject of childbearing with #EDS/#HSD. Slowly, we are gathering more information together but we need so much more.
Welcome to the club, Greg and Mrs. B. I had to go from walking to wheelchair in 3 weeks 12 years ago suddenly at 45 to finally get diagnosed with anything but depression. (I'm a cishet woman.)
Been tweeting about it ever since. Now a co-author of the #EDSToolkit for docs.
A reason we need beneficial AGI:
After five years of pain across many systems in her body (a broken foot from stepping off a curb, debilitating migraines, fatigue, joint pain and instability, etc), my wife was recently diagnosed with a genetic disorder called Hypermobile Ehlers-Danlos Syndrome (hEDS).
Because the medical system is designed for individual specialties while hEDS affects every system in her body (orthopedics, cardiology, neurology, gastroenterology, dermatology, etc), we spent five years seeing more doctors and specialists than in her whole life prior. Most doctors would only focus on what was relevant to their own specialty. We were lucky that her allergist (!!) put together the pieces after observing and hearing her full set of symptoms and issues.
As human medicine has progressed, it seems like we increase doctorsโ depth at the expense of breadth. We need better tools to be able to deliver depth and breadth simultaneously to patients. This is one promise of AGI if built right โ reliable, individualized, affordable healthcare in your pocket, like a panel of todayโs top doctors across every speciality working together in concert to keep you healthy (and without you needing to fax forms between them).
Thereโs still a long way to go on the technology and on learning how to deploy it beneficially along with appropriate professional human oversight in high-stakes areas like medicine, but the promise is getting increasingly clear. Thoughtfully approached by technology developers, healthcare providers, governments, and society, thereโs hope for much better care for every member of all of our families (including our non-human furry ones).
@BH5170835825574 Any doctor technically can diagnose EDS. They just have to be willing to read up and drill down on it (which yes, is a bit of material now with 13 types and counting).
Whence the #EDSToolkit for Doctors I helped co-author to aid in same:
https://t.co/q7UXxAPdxT
#MedEd
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid
Share the #EDSToolkit for doctors spearheaded by Dr. Reinhold in 2018 for NHS GPs, but available to anyone willing to learn more about #EhlersDanlos & #hypermobility Spectrum Disorders!
https://t.co/89gGnow5Xs
#MedEd #FOAMed #MedTwitter #NEISvoid

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