Galia Wilson

[Epilepsy Research Institute @EpilepsyInst]

Galia Wilson, @DravetUK Chair, spoke to @BBCSouthNews about the impact of #Dravet Syndrome and the work the charity is doing to raise awareness and offer support to families affected by the condition: https://t.co/X4aCQRdpOf
#DravetAwarenessMonth @galia47

[Epilepsy Research Institute @EpilepsyInst]

As part of our 2024 Research Awards, we are delighted to co-fund two Fellowships with @DravetUK to develop future leaders investigating #Dravet Syndrome and #epilepsy. Read about the exciting projects and watch films with both researchers here: https://t.co/pIPzcZPYdY

[Epilepsy Research Institute @EpilepsyInst]

Galia Wilson, @DravetUK Chair, on the newly funded Epilepsy Research Institute & Dravet Syndrome UK Fellowship projects. Read about the exciting research and watch films with both researchers here: https://t.co/pIPzcZPYdY @galia47

[LBC @LBC]

'Children are abandoned, bereaved, and they're captive.'

Psychotherapist @JoySchaverien tells @TomSwarbrick1 that those who are sent to boarding school often 'have a childhood without love'.

[Andreas Brunklaus @a_brunklaus]

The @SCN1AHorizons neuropsychology team met for an inspiring away day in Manchester. Very moving & informative talks from Galia and Claire @DravetUK and the entire team! So much to learn on #SCN1A related #Epilepsy #Genetics . Many thanks to the Manchester team for hosting us!

[Dravet Syndrome UK @DravetUK]

Yesterday we educated over 80 healthcare professionals at the #DSUKConference, bringing together the leading voices in #DravetSyndrome to enable discussion of the latest updates, news & medical #research.

@ingridscheffer @a_brunklaus @sameermzuberi @epilepsysociety

[Dravet Syndrome UK @DravetUK]

Prof Sanjay Sisodiya talks us through the steps that clinicians can take and the challenges faced when making a #diagnosis of #DravetSyndrome.

A diagnosis at any time of life can be hugely beneficial for those living with the condition and their families.

#DSUKConference

[Dravet Syndrome UK @DravetUK]

A lively debate with our panel of ‘Dravetologists’ on the advances in diagnosis in #dravetsyndrome & other DEEs.

#DSUKConference #DravetSyndrome
@a_brunklaus @ingridscheffer

[Galia Wilson @galia47]

Unflinching hologram installation tells stories of UK’s ‘war on the poor’ https://t.co/0zfvHki7if

[Epilepsy Research Institute @EpilepsyInst]

Dravet syndrome is a rare, life-limiting and life-long form of epilepsy. In this blog, @DravetUK Chair @galia47 Wilson shares her son Arlo's diagnosis journey and Director @ClaireEldred discusses the important work of their charity: https://t.co/8JHdVjJW16 #DravetAwarenessDay

[UCB News @ucb_news]

Dravet syndrome is a Developmental and Epileptic Encephalopathy (DEE) - a severe epilepsy with frequent and difficult to treat seizures and significant developmental delays. We asked Galia Wilson from @DravetUK, what she’d like people to take away this #DravetAwarenessDay. Watch her message below! #EPNS2023

[Dravet Syndrome UK @DravetUK]

Today is #DravetAwarenessDay.

Dravet Syndrome is a devastating and life-limiting epilepsy that affects one in every 15,000 people in the UK.

We asked families who live with Dravet Syndrome to tell us what it means to them in one word.

#DravetSyndrome #DravetAwarenessMonth

[Galia Wilson @galia47]

@jaydeadams wearing the @DravetUK wristband in support of all those living with Dravet Syndrome

[Dravet Syndrome UK @DravetUK]

What's it like to live with Dravet Syndrome? Help raise awareness this Purple Day by sharing our short film, made with thanks to Carrie, Adam, Ruby, Teddy and Penny 💜

https://t.co/GI59lWhnTP

#DravetSyndrome #DravetAwareness #PurpleDay #Epilepsy @PurpleDay

[Dr Rachel Clarke @doctor_oxford]

We didn't have parties to "boost morale"
We didn't have quiz nights
We didn't have champagne
We watched our colleagues die though
We were STEEPED in death
We kept going
We had to
We kept on
So don't you DARE say your parties were "necessary" @borisjohnson
You make me sick.

[Dravet Syndrome UK @DravetUK]

Feeding difficulties in #DravetSyndrome are common & gastrostomy is often required; @DravetUK chair Galia Wilson & Dr Lisa Clayton present results of our care-giver survey @BPNA_org #BPNA2023. Outcomes post-gastrostomy were positive, with many benefits reported by caregivers.

[Galia Wilson @galia47]

Even though our @nhs is starved of resources, thank you @WhitHealth for curing me on New Year’s Eve, within two hours of arrival at A&E. Today they operating on my very poorly son who has complex medical needs. Where on earth would we be without you? #protectournhs

[Stuart Rouse @StuartRouse]

Please retweet. Boris Johnson and the conservatives partied while people died alone in hospitals and nurses gave everything they had. Support the strikes, support the nurses #SupportTheStrikes #SupportOurNHSWorkers #SupportTheNurses #pleaseretweet #TorySewageParty

[Dravet Syndrome UK @DravetUK]

We’re delighted to introduce our new Director, Sarah Pearce. Sarah brings a wealth of experience in the sector, including previous leadership roles at Mencap, the Epilepsy Society & Faversham Counselling Services.

Read more: https://t.co/BZaW2WwOXk

#DravetSyndrome #TeamDSUK

[Susie Graves @GravesSusie]

Missing dog - got spooked today in Hertfordshire. This is the much loved pet of friends of ours. If anyone see Jimmy please call the number on the picture. The kids (and parents) are devastated.

Please retweet, esp to Herefordshire area.