Georgia Walby

Evolve NLP Training, 33 Lower Cathedral Road, CF11 6LU. M: 07823 332 605 / E: [email protected]

[Putrino Lab @PutrinoLab]

Ok. As promised, here is a super-🧵 on cognition and #LongCovid. This will be a combination of published material and things that we have observed in-clinic. This is not intended to be definitive nor epidemiological and so it is highly likely that your personal experience (1/n)

[Long Covid Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @LongCovidWales]

Some interesting figures from todays CPG on #LongCovid in #Wales

32000 in Wales with epilepsy
25000 with RA
15000 with ME
6.500 with MS

Combined total is less than the 78000 with LongCovid. And yet no dedicated clinics or specialist centres in Wales. @long_covid

[Covid-19 Bereaved Families for Justice Cymru @cymru_inquiry]

🏴󠁧󠁢󠁷󠁬󠁳󠁿Its a bad look for @WelshGovernment when the following is happening in Wales:

⚠️Drs asking for PPE that is fit for purpose
⚠️People with Long Covid asking for clinics
⚠️Families bereaved by covid asking for an Inquiry in the country where the decisions were made

Fix it 🙏

[Georgia Walby @GeorgiaWalby]

@WelshGovernment @Eluned_Morgan

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇱🇧🇮🇷🇮🇳#pwLC @doctorasadkhan]

#USA #UK & Northern Hemisphere in general wake up. A so-called ‘third world’ country #SA and ‘the backyard of the Western world’ #NZ are racing ahead with proper diagnostics for #LongCovid. Time to catch up. You might actually help your patients! #medtwitter #MedEd

[Dr. Alice 💕 @calirunnerdoc]

It’s irresponsible for anyone to downplay disease severity of the highly transmissible #OmicronVariant. We know that mild COVID can lead to clotting, brain damage, and even death. Let’s start reporting the truth about this virus- not what we think people want to hear. #LongCovid

[Long Covid Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @LongCovidWales]

This is the research all long haulers are following. Hoping the U.K. including the devolved nations will get on board soon @Eluned_Morgan @WelshGovernment

[Georgia Walby @GeorgiaWalby]

@WelshGovernment @Eluned_Morgan Long Covid is a medical issue #TreatLongCovid

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇱🇧🇮🇷🇮🇳#pwLC @doctorasadkhan]

Our big reveal begins. More information will follow in due course. #LongCovid #COVID19 #MECFS #MedEd #MedTwitter

[Georgia Walby @GeorgiaWalby]

#TreatLongCovid @WelshGovernment @Eluned_Morgan When will Wales invest in Specialist Long Covid Clinics and stop telling GPs not to treat us in case it makes us anxious? I’ve been ill 18 months and still struggling. It’s enough to make anyone anxious!

[Georgia Walby @GeorgiaWalby]

#TreatLongCovid especially in Wales where we only have online rehab in most areas.
I’ve been ill for 18 months, had to pay for private healthcare when I cannot work more than 2 hours per day. Zero financial help & I’ve had to fight or pay for every bit of medical investigation

[Sian Griffiths @siangriffiths78]

Today is #TreatLongCovid day. Sufferers in wales are having to navigate their own care with no clinics in wales. I’m 18 months in and can’t work as a physio. I now have post covid pots. Have had to pay private for help. Is this right @WelshGovernment @Eluned_Morgan?

[Sian Griffiths @siangriffiths78]

#TreatLongCovid day today. 18 months into this torture. Shame @WelshGovernment haven’t supported us with consultant led clinics. Iv had to fund my treatment. I fear loosing my physio career. Thanks @RhunapIorwerth for raising awareness and pushing government.

[Georgia Walby @GeorgiaWalby]

Sad but true! The Welsh Gov don’t want to over medicalise LC, instead they prefer to psychologicalise it

[Gav Bishop @GavBishop]

@LongCovidWales @Fionacjenkins @OGRHughes After all the excellent work that @ClaireHastie1 @long_covid @LongCOVIDPhysio @LongCovidKids @LongCovidWales @Dr2NisreenAlwan @ahandvanish @doctorasadkhan @elisaperego78 have done for the millions of #LongCovid sufferers around the 🌍 Today in Wales we get told its all anxiety!

[Georgia Walby @GeorgiaWalby]

@Huxberry1 @LongCovidWales How long have you been suffering with Long Covid and what’s your own experience of accessing healthcare for long covid in Wales?

[Georgia Walby @GeorgiaWalby]

@Huxberry1 @LongCovidWales No, we have spoken to people attending the excellent long covid clinics at UCHL, Newcastle, Leeds etc which are the consultant led multi-disciplinary clinics offering thorough medical assessment. These are the gold standard clinics, offering tests such as D-Dimer which GPs can’t

[Long Covid Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @LongCovidWales]

“ Long Covid: Condition's 'serious' effects recognised” - ⁦@BBCNews⁩ Owain Clarke

| ⁦@long_covid⁩ | ⁦@LongCovidKids⁩ | #LongCovid | https://t.co/8OBKo527VG

[Georgia Walby @GeorgiaWalby]

Petition: Open Long Covid one stop medical hubs / clinics https://t.co/Pvuk7fqmls

[Georgia Walby @GeorgiaWalby]

@kaitborsay @TimesRadio @DavidT_Arnold @normanlamb @ClaireHastie1 @stillillcorona1 @long_covid @long_recovery @LongCovidWales @LongCovidSOS @LongCovidScot @GinaAssaf @CV19JUSTICEUK @AthenaAkrami @LisaAMcCorkell In Wales long COVID sufferers are being told we don’t need long COVID clinics - we are told to seek treatment via GP surgeries. Yet my GP doesn’t know how to treat me. I’ve been unwell for 10 months. How long can this go on?

[Kait Borsay @kaitborsay]

Tonight @TimesRadio:

LONG COVID

One in 10 report symptoms 12wks after getting #COVID19

With millions now testing positive, is there another major health issue on the way?

@DavidT_Arnold @normanlamb @ClaireHastie1:
• Treatment • Research • Support

We need your questions!⬇️

[Long Covid Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @LongCovidWales]

People who never fully recovered from the virus. #LongCovid

Thank you to @JohnBCooper85 for this brilliant feature on Long Covid in #Wales @Doctor_IMF @GeorgiaWalby @collea39

@long_covid #CareforLongCovid #CountLongCovid

https://t.co/rwmCXfzdrc