Sarah Mac

M.E for 20 years. Views of fairness and equality for all. Here to learn and to be kind (usually 🙃).
NHS supporter. Pro Science and knowledge.

[Sarah Mac @grannyash510]

This. Every day we try to be active.

[KarenLesliePhysio @karenphysiocouk]

I have NEVER – EVER – had to encourage someone with ME to do more.

I always – ALWAYS – have to persuade them to do LESS.

To stop a favourite activity.

To adjust a task to lessen the effort.

[Katy B @KatyBruce108]

"What we've done is to present an objective scientific result showing that there is an average genetic difference between #pwME & others
This has changed perceptions & now I believe that most people understand & accept the symptoms as real" Prof Ponting
https://t.co/GYTso5tDSC

[Rhi @rhirhiarhii]

Really distressing from the hospital discharge for Caroline the other day

I’m glad I told them to record EVERYTHING because this is the reality of me/cfs in hospital care right now in so many pleases around the world

https://t.co/fAi8cHkmll

[ME Research UK - Researcher Zone @MEresearchzone]

*Abstract* "Disrupted Glymphatic Function and Its Relationship with Sleep and Cognitive Impairment in ME/CFS Assessed via DTI-ALPS" Thapaliya et al., Frontiers in Neuroscience (2026) https://t.co/xt37m6kQsh #MECFS #MEresearch

[Michael Gordon @TeamKarenGordon]

A disaster for Karen as her Hickman line has broken. We posted an update on our petition on 10 June. To read it scroll down our petition page to UPDATES. Save Karen Gordon From Dying (…)
https://t.co/myZMK0Nolw
Please share
Photo:9/6/26-K with broken IV line having blood
K,H&M

[Katy B @KatyBruce108]

Please sign & share this urgent petition on all platforms✍️🔁
"Save Caroline Roberts’ Life now:
A very severe #ME #MEcfs patient with high mortality risk."

#pwME #LongCovid #MEAwarenessHour
https://t.co/Pp3F0WriED

[GET A GRIP @docrussjackson]

HISTORY LESSON

The Nazi Party branded itself the 'National Socialist German Workers' Party' to appeal to working-class men. After staging massive 'pro-worker' May Day rallies on May 1, 1933, the very next day Hitler banned independent trade unions, seized their assets, and arrested their leaders.

On May 2, 1933, the SA (Storm Troopers), SS, and police occupied trade union offices nationwide in a coordinated action. They seized assets, records, and funds while arresting union leaders and officials. Contemporary U.S. State Department reports and other sources noted around 50 prominent arrests in the initial wave, including key figures like Theodor Leipart (chairman of the General German Trade Union Federation, ADGB), Peter Grassmann, and former Labor Minister Rudolf Wissell.

Many more local and regional leaders faced arrests in the following days and weeks. Large numbers endured beatings, imprisonment, or transfer to early concentration camps such as Dachau (opened in March 1933 primarily for political opponents).

Some officials were maltreated immediately, and the action extended to union banks and press offices.

This crackdown dismantled independent German trade unions (with millions of members, many aligned with Social Democrats or leftists) and replaced them with the Nazi-controlled German Labour Front (DAF). It formed part of the broader Gleichschaltung (coordination) process to eliminate independent organizations.

Over the period 1933–1945, thousands of German trade unionists, including leaders, activists, and officials, were arrested and held in prisons or concentration camps. Many suffered torture, extended detention, or surveillance after release. While outright executions of union leaders were relatively fewer in the early phase compared to other groups, many died later from camp maltreatment, disease, execution, or involvement in resistance.

The overall scale of persecution against labour organisers aligns with the regime's aim to crush independent working-class organising rather than immediately exterminate every individual.

This fits the documented pattern of political repression: by the end of July 1933, nearly 27,000 people (mostly political prisoners including communists, socialists, Social Democrats, trade unionists and left-wing activists and intellectuals) were held in early camps and detention sites.

The Nazis moved swiftly after seizing power to neutralise potential opposition from organised labor through mass arrests, violence, and forced integration into a state-controlled structure.

#JustSayin

[Sarah Mac @grannyash510]

@TraceyABurgess @LongCovidFight We know the feeling! Actually, we know that look too. The bloodshot eyes...

[Sarah Mac @grannyash510]

@TraceyABurgess @LongCovidFight 😅

[Sarah Mac @grannyash510]

@RorPreston 💕

[MortenGroupOxford @OxMEDiscovery]

Oxford Centre for PAIS research.
https://t.co/qpZRSZPaDE
For the last 8 years we have run our ME/CFS research on a total budget of around £200,000.
It is time to crank up what we are doing.

[Sarah Mac @grannyash510]

@kirstler31 😘💙💙💙

[Sarah Mac @grannyash510]

@rainbowjanelane Biggest hug 💙💙💙

[Sarah Mac @grannyash510]

@Dfrizz007 I do, 21 years now. Very odd existence.

[Sarah Mac @grannyash510]

@CaroleBruce17 Gorgeous.

[Sarah Mac @grannyash510]

@TraceyABurgess That's very special. I can almost imagine the scent.

[Sarah Mac @grannyash510]

@MemorialME 💙💙💙

[Sarah Mac @grannyash510]

👇 first thread

[Dr Rae Duncan @Sunny_Rae1]

@hannahspierMD 1/Hannah, we have now almost 500,000 peer reviewed published research into long covid now. “Fatigue”, “post exertional malaise (PEM)” “Brain Fog” “difficulty concentrating” are not psychiatric symptoms. They have a pathological basis and clear demonstrable abnormalities 1/

[Sarah Mac @grannyash510]

Thread 👇

[Dr Rae Duncan @Sunny_Rae1]

@hannahspierMD 1/Hannah, we have now almost 500,000 peer reviewed published research into long covid now. “Fatigue”, “post exertional malaise (PEM)” “Brain Fog” “difficulty concentrating” are not psychiatric symptoms. They have a pathological basis and clear demonstrable abnormalities 1/

[Dr Rae Duncan @Sunny_Rae1]

@hannahspierMD 1/Hannah, we have now almost 500,000 peer reviewed published research into long covid now. “Fatigue”, “post exertional malaise (PEM)” “Brain Fog” “difficulty concentrating” are not psychiatric symptoms. They have a pathological basis and clear demonstrable abnormalities 1/