Hamish MacDonald

Founder, The Sovereignty Network

[Hamish MacDonald @HamishMacD]

@janoldenburg @MightyCasey Casey, you did so much for so many people without expecting anything in return. You believed in patient rights, and you have inspired us all. Rest peacefully. We miss you.

[Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey]

That I'm working on building a patient-led, patient-driven breast cancer #research community on @sovereigntynet along w/tissue sherpa buddy mentioned ⬆️, @HamishMacD, others?
Interested in learning more, email me at mightycaseymedia at protonmail dot net
#MetsParty out 😎🔬🧪

[ECG Management Consultants @ecgmc]

Episode 30 of Healthcare Upside Down debuts this morning at 9am ET! This week @HamishMacD of the Sovereignty Network tells @drnic1 why patients need more control over their #healthdata. #HCupsidedown #healthcareupsidedown #interoperability @HCNowRadio https://t.co/LHrSmHSmxB

[Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey]

Join me @cvonraesfeld @HamishMacD & others 6/14 12-1pm ET to talk @sovereigntynet, revolution it can bring to data economy for patient communities, with PATIENTS owning/benefiting from use of their data for research.
#data #dataeconomy #research #science
https://t.co/YScylA88Ms

[Hamish MacDonald @HamishMacD]

@MightyCasey @dgelles @AnandWrites Needs to be more examination by the media of business models. Who gets paid, who doesn’t, how much for doing what. Always follow the money. (Eg The societal effect of a $ earned by selling customer data is not the same as earning a $ by selling an actual product or service).

[Dave deBronkart @ePatientDave]

What if rabid anti-abortion Texans SUBPOENA data from period trackers to hunt down who MIGHT have had abortions, even by pill? #SurveillanceCapitalism is getting really ugly; now it could get viciously invasive. FIGHT BACK! Demand protection & PRIVACY! https://t.co/c6edEDQWjC

[Hamish MacDonald @HamishMacD]

@ePatientDave It is an OUTRAGE that invasive people can increasingly do harm to you using your most intimate data and you can't do a THING with YOUR data! Sovereignty is way to FIGHT BACK. Learn more https://t.co/StDlFhIOme @MightyCasey

[The Sovereignty Network @sovereigntynet]

The Sovereignty Network is now live on Kickstarter! https://t.co/ihpYykLHu9 Take a look at the video describing the project and how we help patients become "Data Owners", around the world.
Thank u for helping spread the word!

[MINTY Dhami @dhami_minty]

I just backed The Sovereignty Network App on @Kickstarter https://t.co/1g86OxSVNf @HamishMacD @sovereigntynet

[Dave deBronkart @ePatientDave]

I've had a gigantic objection for years to "provider" & "payer" because they are 100% oriented around the *business* of care: who "provides" it and who pays for it. This is the Satan of what the US health system has become ... even if good people doing it don't realize it 1/n

[The Sovereignty Network @sovereigntynet]

We believe if your healthcare data is sold - you should be making money, not healthcare companies. Help us change the way $$ flows.

[Hamish MacDonald @HamishMacD]

@GailZahtz Hi Gail, @HamishMacD @sovereigntynet

[Hamish MacDonald @HamishMacD]

@GailZahtz @HamishMacdonell Hi Gail, we must chat - I am glad the financials in favor of patients resonated with you. Unfortunately I had to leave straight after my talk. @HamishMacD @sovereigntynet

[Hamish MacDonald @HamishMacD]

@GailZahtz @sovereigntynet Gosh, I really appreciate the shout outs. @hamishmacd

[Hamish MacDonald @HamishMacD]

@GailZahtz @sovereigntynet Hi again Gail, thank you again for the shout out! My profile is @HamishMacD @sovereigntynet

[Hamish MacDonald @HamishMacD]

@GailZahtz Hi Gail, thank you for the shout out! BTW this is my profile… @HamishMacD

[neeraj arora @neerajarora]

As we began talking through the acquisition, and made our stance very clear:

- No mining user data
- No ads (ever)
- No cross-platform tracking

FB and their management agreed and we thought they believed in our mission.

[Hamish MacDonald @HamishMacD]

@MightyCasey This is (one of) the problems of the ad driven ecosystem, now that data itself is more valuable than ads themselves. (Was not the case 20 years ago).

[The Sovereignty Network @sovereigntynet]

If you want to help patients & families around the world get & own a copy of their health data, you have to be global from Day 1. We worked to ensure that if can work in rural Rwanda with Community Health Workers & patients, it could work anywhere. #patientdata #healthdata (1/4)

[dongwon 송동원 @dongwon]

it's not twitter that's broken, it's the internet. at every step of the way we've let the digital commons be overrun by corporate interest and now we stand inside each of our fenced off spaces yelling across the divide, hoping it's better in someone else's pasture.