@BBCWorld There was no hack. Some researchers had carelessly made the data available and then bad actors obtained it and tried to sell it. Full story by Hannah Devlin @hannahdev was published in the Guardian last month: https://t.co/gUpCoZQZdr
For anyone following UK Biobank story, here's our investigation from last month revealing dozens of breaches, which now raises questions about whether more could have been done sooner... https://t.co/rQdEPtssTp
@FakePsyho Hello, i'm a journalist at the Guardian and would like to speak to you about the coding competition. Please could you DM me or email at [email protected]
@ksuhre @teknix314 To clarify, there’s no dispute that this company has used authorised UK Biobank access to develop its polygenic embryo screening service. UK Biobank has said this isn’t a breach of its access terms. Not sure if that’s what you’re questioning though.
@smead2@ProfRobHoward Not sure it’s tall enough to be a parasol. If it’s parasol-like but quite small it could be poisonous so don’t eat unless confident!
@ksuhre@guardian@uk_biobank Do you not think there’s an ethical issue around volunteers’ expectations of what their data might be used for? (Given this was authorised access)
@aylwyn_scally@marcus_baw@guardian Of course, these activists trade on the illusion of science rather than any credible scientific evidence. But volunteers can still have an expectation that their data is not used to further these malign political objectives - even if this "research" is nonsense
@aylwyn_scally@marcus_baw@guardian The article is written for the general reader, for whom this level of detail would probably be excessive. But that doesn’t mean it wasn’t considered.
Very valuable perspectives from community organisations on the implications of attempts to rehabilitate scientific racism via @aamnamohdin https://t.co/RJfDlwgIIc
@aylwyn_scally@marcus_baw@guardian This is not true. We shared transcripts of technical discussions with two very senior scientists, who have extensive experience of UKB data, as well as two data experts. They concluded the most natural interpretation was that individual level data was being discussed
Interested in what others make of the authorised use of UK Biobank data to build an embryo screening tool for cognitive abilities and other polygenic traits. Is this “health related research in the public interest”?
1) There's nothing illegal. PGT for any purpose is permitted in the USA, including for IQ.
I don't feel comfortable about the company using UK biobank data, but the UKB CEO confirmed it has been kosher.
REVEALED: US startup charging couples to ‘screen embryos for IQ’. Latest piece with @tomburgis @davidtpegg & @jason_a_w https://t.co/tOP7XCGT5w