Thank you @GOSHCharity for a brilliant day #RBCraceforthekids. Tommi fulfilled his dream to lead his team out back at Hyde Park 3 years post BMT to raise #research funds for #ChildhoodCancer. There’s still time to donate to help seriously ill children https://t.co/bKnBwY0Syg 🙌
Our children deserve so much more. This is utterly unacceptable and disgusting. Children like Sophie deserved to have better treatments, diagnosed quicker and not have a lifelong impact from theory treatment. @wesstreeting please restart this work. #sophieslegacy
If you or someone you know fancies working with us at the @CandlelightersT Supportive Care Research Centre at @UniOfYork@HullYorkMed a PhD looking at wellbeing interventions for families of children with cancer - chat with me! (Please share widely)
https://t.co/moLozdEH2O
We're delighted to launch the @HOPE4TC course for improving #wellbeing in parents of children who have, or have had, cancer supported by #MentallyFitYork@UniOfYork & the @CandlelightersT Supportive Care Research Centre
SIGN UP NOW: https://t.co/nWQdLgoCmy & please share lots!
Dear @RishiSunak
The photos show my daughter Jess, 25.12.19 & 15.12.20.She died 5 days after the 2nd photo was taken, 3 weeks after her cancer diagnosis. She was 27. Her symptoms were dismissed by GPs. The letter was sent 2 months ago to @VictoriaAtkins Still no reply. #JessLaw
As councils crumble, a new scapegoat has been found: the parents of disabled and vulnerable children | John Harris https://t.co/a1ZlhRAyKS #ParentCarers#Disability
@bphillipsonMP@csjthinktank@NotFineinSchool@EdPolAlliance@CommonsEd Parents know damn well every day matters. Believe me.
The agony and despair we go through when our kids start struggling at school, to access support, healthcare, youth work, reliable, appropriate, available, understanding, equipped, resourced provision and care is real.
Recently, out of the blue I got a call from @DKMS_uk - the charity that helps people with blood cancer. I'd forgotten that 5yrs ago I did a cheek swab... but the call was to say I was a possible match for someone in urgent need of stem cell or bone marrow transplant.
It's a chance to help someone survive who wouldn't otherwise. Unfortunately, having just been through the next stage, I've been ruled out of donating.
So to turn that into a positive, I wanted to suggest if you fancy registering to be a donor, if age 18 - 55 you can do it here... https://t.co/WOEAyPoQqu - and hopefully one of you may be the match that actually saves a life.
In The telegraph today, Jess’ story is told. Please read (it is free for a month) & RT. It is a vital Jess’s Law becomes known and people share their stories of missed or late diagnosis in primary care. Thank you @eleanorsteafel
https://t.co/I4bWJILt4K
A Management Consultancy is given £19.5m to tell schools how to save money teaching children with SEND. The firm's website boasts 0 experience in Education but the DfE has tasked it with reducing EHCPs by 20%. Just when you think you've seen everything...
https://t.co/uIvAsGBrge
Having benefitted directly from having music therapy during @GreatOrmondSt inpatient stays, we know first hand how essential this role is for children undergoing medical treatment #music#therapist
Breaking News. The country has laws.
“The school has agreed to train its staff on disability discrimination..”
School’s exclusion of disabled child successfully challenged, with support from equalities watchdog | Equality and Human Rights Commission https://t.co/fAXW37hIPD