Top Tweets for #ACTUP4ME
All of the answers are well & good but we need to ask ppl for one concrete action to start with.
I think we need 2 campaigns.
#PairUpWithME - to encourage ppl to act as our proxy’s in the outside world. Find at least one person each.
#ActUp4ME to ask ppl to take specific action.
@ElizaCharley But what one thing can we ask them to do on Monday?
I was thinking of encouraging them to #ActUp4ME
By e.g asking them to attend a MillionsMissing protest in their area.
Writing to their MP /Senator about the lack of funding & research etc.
This 8th of August let's shed some light on #Severe ME, one of the #rarediseases which causes extreme fatigue, making even brushing the hair difficult.Let's take this opportunity to spread awareness with @ORDIndia
#MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy
Patients and docs: I'm looking for examples of situations where health providers have expressed judgmentalism toward patients. When does it happen? Do you have examples?
@TurnItUp4ME @CDCgov Anatomy of a Cover Up #ME
https://t.co/ZJG2QL15kG
#PwME #MyalgicE #MEICC #ActUp4ME #Lyme
#ImmuneDeficiency #ReactivatedViruses #OpportunisticInfections #ResearchFraud
@KCSteckel @BarkisMister @Nicole12345676 @oslersweb This exactly #pwME4ICC
#MyalgischeEncephalomyelitis #MyalgicEncephalomyelitis
Update yourself if your doctor is to ignorant or stubborn
Don't be the one who is unknowing 💙
#MEICC #MyalgicE #PwME #ActUp4ME #MEadvocacy #SevereME
Share this link🌐: https://t.co/I5Jr1q15f7
@Millondolly68 They can use the #MEICPrimer https://t.co/I5Jr1q15f7
#MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME
#CuretheMEdisease 💙
@andrewsyc @JanetDafoe myalgic encephalomyelitis is a deadly disease😔
Here we go again..
#MEICC #MEICPrimer #MyalgicE #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME
#GetMEoutofthedark
#CuretheMEdisease
The National CFIDS Foundation has a memorial list🕯️ https://t.co/yU5FytOSPN
@canisgallicus Myalgic Encephalomyelitis
#MEICPrimer 💙
#MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc
https://t.co/I5Jr1q15f7
@BhupeshPrusty @jan_choutka @Wired63 Myalgic Encephalomyelitis
#MEICPrimer 💙
#MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc
https://t.co/I5Jr1q15f7
@NINDSdirector Read this i n f o r m a t i o n:
↘️⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️↙️ https://t.co/I5Jr1q15f7 #MEICC #MyalgicE #PwME #ActUp4ME #PwME4ICC #MEadvocacy #MyalgicEncephalomyelitis #SevereME #ReactivatedViruses #OpportunisticInfections #ImmuneDeficiency #ResearchFraud #MyalgicEnc
2018 blog on Severe ME Day: https://t.co/KNTnlhIvqz
What is ME?: https://t.co/4LjROHFjZS
#MEadvocacy #MyalgicE #PwME #SevereME #MEICC
#ReactivatedViruses #OpportunisticInfections
#ImmuneDeficiency #ResearchFraud #ActUp4ME
#PwME4ICC #MyalgicEncephalomyelitis
#SEIDisnotME
WHAT IS ME/CFS?
For more information go to https://t.co/tXFZ7Vu3ic
#MEadvocacy #MyalgicE #PwME #SevereME #MEICC
#ReactivatedViruses #OpportunisticInfections
#ImmuneDeficiency #ResearchFraud #ActUp4ME
#PwME4ICC #MyalgicEncephalomyelitis
#SEIDisnotME
ME Global Chronicle
Issue Posted - March 2019
#MEadvocacy #MyalgicE #PwME #SevereME #MEICC
#ReactivatedViruses #OpportunisticInfections
#ImmuneDeficiency #ResearchFraud #ActUp4ME
#PwME4ICC #MyalgicEncephalomyelitis
#SEIDisnotME https://t.co/RG93bWr5AK
@JRE1138 @AliceOutThere @MEActNet @HHSGov They're not acknowledging the seriousness of #MyalgicE
#FalsifiedCaseDefinition
#ScienceFraud #ImmuneDeficiency #ReactivatedViruses #OpportunisticInfections #Lyme #ActUp4ME #PostSepsis #pwME #MEICC #PwME4ICC #MEadvocacy
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