Top Tweets for #ACTforMe
📢 APPG on ME update
We have released the following update with the @MEAssociation (also attached) 👇
https://t.co/SBCSQdbeio
📧Please direct any MPs, or send their details, to [email protected] & we'll contact directly
#pwME #MECFS #MyalgicE #ActforME #ThereForME
Our CEO @SonyaChowdhury was delighted to meet with @steve_race MP earlier to discuss topics such as:
•the link between #MECFS & #longCovid
•the urgent need for strategic research 💷
•how Mr Race could provide further support for #pwME
More news on this soon! ⏳
#ActForME
'Patients with ME at severe risk of starvation, doctors say'
Full article 👇
https://t.co/LMiDquBDXH
#MECFS #pwME #WorldPatientSafetyDay #ThereForME #ActForME
#ActforME @wesstreeting @GwynneMP (at least) 1.3 million people are awaiting your response.
#MECFS #pwME #LongCovid
1/5
We've updated our 'Manifesto for ME' - now 'Act For ME'
We've sent the updated doc to all MPs, asking them to #ActForME & pledge support for our 3 key calls (see thread below)
We've also created a template letter for you to send to your local MP, asking for their support
5/5
Read the full Act For ME doc, access the template letter & find a link to the MP search tool using the link below 👇
https://t.co/J4ju6ArPjg
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #ActForME
1/5
We've updated our 'Manifesto for ME' - now 'Act For ME'
We've sent the updated doc to all MPs, asking them to #ActForME & pledge support for our 3 key calls (see thread below)
We've also created a template letter for you to send to your local MP, asking for their support
This week’s #ACTforMe #TipTuesday: know the test!
There are four sections to the ACT. Can you name them? Use this free resource to learn more about each section, how they’re organized and how to best prepare for them: https://t.co/6e0fUD0hum
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