Top Tweets for #ACureForCharlie
Save the Date for our 5th Annual A Cure for Charlie Pickleball Tournament.
Registration and sponsorship details coming soon.
#ACureforCharlie #RareDisease #kansascity #giveback #pickleball @ChickenNPickle @SLC6A1_Connect
Order yours and help #Acureforcharlie
https://t.co/BxQORXHohs
@taylorswift13 @Chiefs @taylornation13
Don’t forgot today and tomorrow anyone who shops online at @KendraScott & uses this code will benefit #acureforcharlie. SLC6A1 Connect gets 20% back.
We are also hosting an in person event tonight at the KC plaza store from 5-7.
Please join us - https://t.co/LPMVqs9K0i
Cheering on our @Chiefs, meanwhile Charlie’s odds are on the black and white team.
@NFL @nflnetwork @kcwolf #germany #nflgermany #ACureforCharlie
Registration is now live for our 3rd Annual #ACureforCharlie Pickleball Tournament at @ChickenNPickle OP on September 16th! Winners go to Mexico again!!!
https://t.co/Jq5iTBrPBk
#kc #pickleball #MayThe4thBeWithYou #charity #dinkit @SLC6A1_Mom #slc6a1 #RareDisease
Next up on the auction - @JRiegerCo distillery tour for 4, $100 gift card and a spirits box set. Valued at $265 and the bidding starts at only $65!!! #whiskey #kc @KansasCity #nonprofit #acureforcharlie #tuesdayvibe https://t.co/QytS4Chr6b
Hope to see you on 9/24 at @ChickenNPickle for an incredible #acureforcharlie fundraiser, our biggest of the year! We only have 4 #pickleball teams left. @KansasCity @kcwolf @prairiefireOP
https://t.co/wmmUSqFyAz
We need you!! We have fallen a little behind, but we have 8 more days left of voting, so its not too late. AND you can vote once a day, per email. Please help us win this much needed donation! #acureforcharlie #kc #vote #nonprofit
https://t.co/D5NLblAKyp
KC peeps and all @Royals fans do your thing! VOTE for our friend Charlie from KC! Every Dollar helps find #ACureForCharlie. Vote & share this link. Thank you! https://t.co/39OOHVdn7q
Please take a second & vote for our friend Charlie! They need every dollar they can to help find #ACureForCharlie. Share this link far & wide. Thank you! https://t.co/m73SU5A2sd
Please take a second & vote for our friend Charlie! They need every dollar they can to help find #ACureForCharlie. Share this link far & wide. Thank you! https://t.co/m73SU5A2sd
Hot dog, hot dog, hot diggity dog! This is so cool bc Charlie chose this on his own. When we asked what he wanted to be he quickly said a hot dog! Usually we have to plant ideas in his head, so him having his own thought is actually pretty special #acureforcharlie @somegoodnews
The #ACureForCharlie Online Auction is NOW LIVE! Bid now through 9/18 at 12 pm CST and score big on 40 amazing packages. https://t.co/fKAiSCDNWK
#vacation #kansascity @KCMO #onlineauction #wednesdaythought @Maxs_Milestones @NFryKC @TriciaKovach @MandyBonino
A lemonade stand raises $10,000 in just two hours to cure #SLC6A1 #ACureForCharlie #SLC6A1Connect Watch the video here: https://t.co/nltXmGpiPk
Hoping @HorizonNews will go to incredible lengths impact the #SLC6A1 Community as we begin a small trial to repurpose #Ravicti ($722k/year!)
Please Retweet
#MilestonesforMaxwell #ACureForCharlie @SLC6A1_Mom @HuffPost @OnceUponAGene
I ❤️ someone RARE!
But also happy, sweet, silly, hard working, strong and equally deserving of living a fulfilled life. #ACureForCharlie @Maxs_Milestones @rarediseaseday @RareKC #BeKind #RareDiseaseDay
Thanks for the sweet shirt @_allstripes, I love it!
https://t.co/2m0zlbRyO5
19 hours to go...#honeybadger signed helmet, bid now. All proceeds help our sweet Charlie get closer to a cure. #ACureforCharlie #mondaythoughts #help @Mathieu_Era @Chiefs @KCMomCollective @DonnaPitmanKMBC @kmbc @NFL
https://t.co/zqq8Kk1WqY
As if things weren’t crazy enough already, we decided to really throw caution to the wind & add a four-legged family member to our wild & crazy crew. Meet Frenchie Fry & learn how we hope she will help Charlie with his #SLC6A1 diagnosis. #ACureforCharlie https://t.co/QBVXafshf5
Let’s go #honeybadger! Thanks @DonnaPitmanKMBC for helping us get close to a cure. @Mathieu_Era @Chiefs #ACureforCharlie
As #ChiefsKingdom prepares to Run it Back a local boy is living with a rare disease he hopes to tackle. You can bid on this @Mathieu_Era helmet & fund research for SLC6A1. More with Charlie's mom @kfrykc on @kmbc FirstNews. 🏈
Bidding is now LIVE for this @Mathieu_Era signed helmet supporting #ACureForCharlie! Help fund a cure for a rare neurological disorder #SLC6A1 and score a priceless piece of @chiefs memorabilia!
Bid here: https://t.co/Hc5za0GnS0 @kmbc
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