Top Tweets for #ALSAwarenes
At IFNRCON 2026, we didn’t just present ideas,we shared purpose. Our session on ALS/MND highlighted how technology transforms care, but reminded us that true rehabilitation is powered by human connection.
Grateful to all mentors, colleagues, and the ALSCAS community.
#ALSAwarenes
#ALS steals movement, speech, and breath…
but it hasn’t stolen my will to make noise.
Please RP to help raise my voice and end this horrific disease. 💙
#ALSAwarenes
Watch the @cubs vs @cardinals game tonight at 7:05 pm CT. Steve will have the honor of saying "Play Ball" using the @google app, Look to Speak, and watching his son Rivers throw out the first pitch.
#cubs #cardinals #lougehrigday #ALSawarenes #wrigleyfield #ALS @mlb
The same day I was diagnosed with ALS, I wrote email to friends & family. I told them how scared I was.
I closed the email with - “I promise to fight and believe and expect the extraordinary and smile and laugh and cry and love our lives for every breath that remains in my body.”
We put up a great defensive fight but fell short in the end. No Cup this year, but we're proud to be part of the annual ALS Cup and help raise money for a great cause. #PREVAIL #HeadingForACure #ALSawarenes @mhseccathletics
@WSJopinion #FDA's "Emergency Use Authorization" pathway for #COVID19 vs #ALS
Time to treatments?
15 Months vs 150 years
Case Fatality Rate
COVID = 2%
ALS = 100%
People are #DyingWaiting for #DrugsinBodies
@WHCOS @VP @SecBecerra @POTUS @JoeBiden
#ALSAwarenes #FDARedTape #NoMoreBodyBags
I will be live with the folks from @iamalsorg this afternoon around 4:40 as part of ALS Awareness Month. Please join us!
#alsinthistogether #alsawarenes
I just came across this photo and it hit me hard because it’s so true and powerful. This is another reason why ALS awareness is so important! #4youiwillfight #ALSAwarenes
Wouldn’t it be nice if ALS community could access some “Ice Bucket” money or get some assistance from the Feds to treat with NurOwn under RTT. Time is of the essence #ALS #FDA #alsawarenes #Brainstorm
This article really speaks volumes about the frustration patient’s have with not being able to access clinical trials or Right To Try relief. So we are left to try CAM, WebMd, holistic healers and snake oil salesmen. #ALS #alsawarenes
ALS Patients Commonly Use Complementary and Alternative Medicines, Review Study Reports https://t.co/fKmAJrWfJj
I buy Ibudilast in Amsterdam, I’m told to go to South Korea for stem cells. I’m within 100 miles of UMASS Medical and MGH and that’s the best American health care can do ? No Right To Try? C’mon !!!
#ALS #Brainstorm #alsawarenes #ALSCare
Why Are Drugs Cheaper in Europe? https://t.co/1rWMZ6rDoP via @WSJOpinion
We love this Origami Owl Charm for #ALSawarenes. A portion of the proceeds benefit @ALSHF https://t.co/t19t6oNf44
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