Larry Falivena

Husband and father of two teenage boys. Challenging ALS by making the most of this life and living by faith.

[Larry Falivena @lfchallengeals]

As your constituent & someone impacted by #ALS, I urge @senatorburr to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy

[Larry Falivena @lfchallengeals]

As your constituent & someone impacted by #ALS, I urge @senthomtillis to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy

[Larry Falivena @lfchallengeals]

As your constituent, I urge @deborahrossnc to cosponsor the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy

[Larry Falivena @lfchallengeals]

As your constituent, I urge @senthomtillis to cosponsor the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy

[Larry Falivena @lfchallengeals]

As your constituent, I urge @SenatorBurr to cosponsor the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy

[Larry Falivena @lfchallengeals]

Could not agree more

[The ALS Association @alsassociation]

Ending ALS takes all of us working together. Attacks & threats against ALS Association leaders & staff are unacceptable & ultimately cost time and resources better directed to fighting this disease. Read a statement from the Association's Board of Trustees:https://t.co/aH1biqcGUj

[Larry Falivena @lfchallengeals]

Thank you @MLB for honoring Lou and bringing more awareness to a disease he thought would be cured 8 decades ago.

[MLB @MLB]

For Lou, #4ALS.

[Larry Falivena @lfchallengeals]

So honored to have been a part of this. We have been dreaming of this day for a long time! Huge thank you to Adam, B Wayne, Chuck and all the amazing people in this group who would not give up until they made Lou Gehrig day a reality!
#lg4day

[Lou Gehrig Day Committee @LG4Day]

🚨🚨🚨🚨🚨🚨🚨
THIS. IS. HAPPENING!!! There will be a Lou Gehrig Day in baseball this season! Thanks to @MLB and all 30 teams for making this happen and thanks to YOU all for your support of #LG4Day! Read more here: https://t.co/5zqFfNjFzC

[Larry Falivena @lfchallengeals]

Yes!!! Thanks for breaking the news @JeffPassan
#lg4day

[Jeff Passan @JeffPassan]

Exclusive at ESPN: Major League Baseball will hold an annual Lou Gehrig Day on June 2 after a group of people affected by ALS banded together to convince teams and the league to honor him like they do Jackie Robinson and Roberto Clemente.

News at ESPN: https://t.co/sqAckJvsOi

[Larry Falivena @lfchallengeals]

Looking forward to seeing this happen next season!

[Lou Gehrig Day Committee @LG4Day]

Last week, we learned ALL 30 teams are on board with a league-wide Lou Gehrig Day in baseball, and we lost one of our co-founders @BryanWayneMusic. Read all about how it all came together and how BWayne continues to drive us to get it done! #LG4Day

https://t.co/LA8OdK8C1i

[Larry Falivena @lfchallengeals]

Thanks for being a light BWayne!#lightuptheGoodStuff https://t.co/0aumpyVfyp

[Larry Falivena @lfchallengeals]

Great memories of ending my Iron Horse tour at Truist Park with Andra and the @braves staff. Wish it was a Braves - @RaysBaseball World Series!

[Lou Gehrig Day Committee @LG4Day]

Thanks to the @Braves for supporting #LG4Day! The favorite team of LGD member, @lfchallengeals, they had a fantastic season and they have a promising future ahead! Special thanks to Derek Schiller, President & CEO, for signing the team up!

#baseball #mlb #braves @kehearn

[Lou Gehrig Day Committee @LG4Day]

🐐GOAT ALERT🐐
WILLIE MAYS is now a supporter of #LGDay! Inducted into the @baseballhall in 1979, Mays played in 24(!) All-Star games, won 2x MVP, 12x Gold Glove, and has the MVP of the World Series named after him!

Thanks to @bcraw35 for talking to Willie about our cause!

[Larry Falivena @lfchallengeals]

#LG4day

[Jeff Passan @JeffPassan]

In June 2019, a man named Bryan Wayne Galentine had an idea. He hoped Major League Baseball would create a Lou Gehrig Day on June 2 in which all players would wear No. 4 to honor his legacy and raise awareness for ALS, the disease that took Gehrig’s life and affects so many.

[MLBPA @MLBPA]

The Players Association extends its deepest condolences to Bryan’s family, friends and members of the ALS community. We greatly admired his courage and commitment to the cause of establishing a Lou Gehrig Day and finding a cure.

[Larry Falivena @lfchallengeals]

Happy to have known you BWayne! I will definitely miss seeing your smile in our Zoom meetings. Thanks for inspiring me with your big dream for LG4 Day, your faith and for pushing people to make omelets!

[Lou Gehrig Day Committee @LG4Day]

We are devastated to announce that our co-founder, Bryan Wayne Galentine, has died suddenly of ALS. A big fighter for the ALS cause, he was on many committees at @iamalsorg and he was PASSIONATE about #LG4Day, always driving the group to go faster.

RIP BWAYNE, we got this!

[Larry Falivena @lfchallengeals]

More to come!

[Lou Gehrig Day Committee @LG4Day]

#LG4Day in the media! Our teammate @adamfwilson426 did an interview with a Yankees website. Check it out!

More media to come!

[Larry Falivena @lfchallengeals]

#WorldSeries

[Lou Gehrig Day Committee @LG4Day]

In the 1928 World Series, Lou Gehrig went 6/11 with 6 walks, 4hr, and 9rbi (and an OPS of 2.433!!) in the 4 game sweep. If @mookiebetts keeps this up he's going to eclipse Lou!

On the other hand...Gehrig never won @tacobell tacos for the entire country!

[Larry Falivena @lfchallengeals]

@SpeakerPelosi, @LeaderHoyer, @GOPLeader, @RepRichardNeal, @RepKevinBrady, @senatemajldr, @SenSchumer, @ChuckGrassley, & @RonWyden - I'm urging you to pass the ALS Disability Insurance Access Act (S. 578/H.R. 1407). Immediate #SSDI benefit access is needed now! #ALSAdvocacy

[Larry Falivena @lfchallengeals]

If you haven't already, please take 30 seconds to sign this petition so this treatment can be available to pALS asap!

[The ALS Association @alsassociation]

New data published today suggests survival benefit of several months with AMX0035. @alsassociation and @iamalsorg renew call for FDA, Amylyx to make AMX0035 available ASAP. Sign the petition today: https://t.co/Gaf3trTNdV