Top Tweets for #ALS_now
Tomorrow, @POTUS likely makes #AACTFORALS law, an incredible #ALS victory! Next, #ALSACTIONISM reboots as #pALS refocus on making their dream of safe and proven #ALSTREATMENTS in bodies happen...and fast! There is no reason to delay treating #ALS_NOW when #NUROWNWORKS! #ALSHOPE
Members of Biogen's Board of Directors
https://t.co/S4hVSICdPk
#Tofersen4Lisa #EndALS #ALS_now #teamstevens
Can we get one for those terminally ill patients blocked by @ALS_Now @NoMoreALS?
Sucks when the ALSA protest group starts acting exactly like the other groups they condemn. This isn't leadership, this is hypocrisy. #EndALS #ALS_NOW
@SteveFDA good news ! can you please respond to my and thousands of others about approval / access to life saving treatments for victims of ALS
@realDonaldTrump @TheEllenShow @VP @SenThomTillis #NurOwn #axeals #als_now #iamals #endals
ALS Fact For the Day
3. There are two FDA approved "Treatments" for ALS but offer meager improvements in survival (2-3 months) or function for just a subset of patients.
#iamals #als_now #axeals
@realDonaldTrump @SteveFDA @TheEllenShow @SenCoonsOffice @SpeakerPelosi
ALS Fact For the Day
#2 Over 90% of ALS occurs at random often striking seemingly healthy middle aged (30-50 yo) individuals at random #NurOwn #als_now #iamals #axeals
@realDonaldTrump @VP @SteveFDA @TheEllenShow @SenateGOP @SenateDems
NurOwn now ! turn ALS from terminal to treatable
@realDonaldTrump @joegrogan45 @kellyannpolls @cecmunoz @seahhannity @geraldorivera @WhiteHouse @HHS_ASH @jeromeadamsMD @surgeon_general
@erictrump @VP @POTUS @rudygiuliani #NurOwn #axeals #als_now #iamals
Commissioner Hahn
while I realize that pandemics present different needs than chronic diseases, the fact remains that the FDA can do what is necessary at any time. when will ALS patients get their chance? #NurOwn @SteveFDA @realDonaldTrump #axeals #als_now
A social distancing poster presentation - Great work by my graduate student Allyson ! #iamals #als_now #axeals #endals #ncstatechem
FDA Approval for Life-Saving Nurown for ALS Patients - Sign the Petition! https://t.co/YlnrgpORSI via @Change #als_now #addressals.com
Please Watch Video Address ALS - We Cannot Wait https://t.co/bb76J13rkA via @YouTube Please Act Now #NurOwn for ALS #30,000 Waiting @RepAndyHarrisMD @RepMoolenaar @SteveFDA @FDACBER @realDonaldTrump @VP @WhiteHouse @POTUS #als_now #addressals.com
YOU CAN HELP!!! PLEASE!!! 30,000 Lives Matter!!!
https://t.co/s4ajPOyD84 #als_now #NME #NurOwn @realDonaldTrump @VP @WhiteHouse
#ALSplea Please Watch Video Please Dear God let this be the week Dan and all pALS get the help they need. @FDACommissioner @SGottliebFDA @FDACBER #alscaucus #ExecutiveOrder @realDonaldTrump @VP @MELANIATRUMP @POTUS #als_now #NME
Address ALS - We Cannot Wait https://t.co/bb76J13rkA via @YouTube
@CourteneyCox Miss Cox we need help getting the word out on a treatment for ALS NurOwn by Brainstorm in phase3 trial with great results and proven safe we need immediate release to help all ALS patients #ALS_NOW #CraigReagan2 FDA drags it feet and ALS Association refuses to help
@POTUS @alsassociation @FDACBER @FDACommissioner now that your going to do the ALS GUIDANCE Pals need NurOwn by Brainstorm fast tracked or an Executive Order or Congress to force the FDA to do this average of 16 Americans DIE from ALS EVERYDAY! #ALS_NOW #NOMOREEXCUSES!
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