.@sentoddyoung Thank you for being an ALS champion! By supporting ACT for ALS, you are helping advance access to promising treatments and ALS research!
.@SenatorBraun Thank you for being an ALS champion! By supporting ACT for ALS, you are helping advance access to promising treatments and ALS research!
Nothing magnanimous to say except 2022 must be the year *multiple* new drugs finally reach #ALS bodies. If not, #ALS will waste its best chance to transform- maybe for a decade. Can #ALS unify, and make access to ANY drug that is ready its #1 goal for 2022? #demandresults#ENDALS
.@BrainstormCell shared this data:
https://t.co/Fost3PmMQE
ALS is not a homogeneous disease that is the same in every person living with it. If a treatment proves safe and effective for some, it should move forward quickly to be accessible to those living today.
Hey @SenToddYoung why not join @SenatorBraun and help Hoosiers with ALS by sponsoring #S1813#ACTforALS today. Veterans like you are twice as likely to get ALS. Thank you @SenatorBraun for your support.
So proud of Nicole, who tells the story of so many dashed hopes for people with the cruel disease of #ALS. Let’s drive the hope. @US_FDA#ACTforALS https://t.co/o03QEagniK
My husband and I fought for continued access to treatment and to improve an archaic regulatory pathway. He died waiting for change, writes Nicole Cimbura https://t.co/w1lklYHptl
@biogen Well it is time that you step up and help this severely underserved need. People with ALS, have been ignored for over 150 years. Countless millions have died. Step up and help now
@biogen "Our hearts break for all families impacted by ALS...." Translation: "NO, a sorry, we're gonna keep our $41B". So inhumane, yet so typical for #ALS. Hey @alsassociation, are 500 pALS who might be SAVED by a billion dollar company not even worth your bother to ASK? @statnews@CNN
For complex diseases like #ALS incremental progress is often monumental. But @US_FDA would rather OK a drug with a 3% benefit to every patient than one that helps 20% of patients substantively. It's hard to see how any ALS drug can get thru that gauntlet https://t.co/iAcRUcNnIG
My brother-in-law's death from #ALS connected me to so many courageous persons suffering from this cruel disease. The @US_FDA just shattered hope, not approving the treatment NurOwn because it only helped some. We can’t take much more. Is our government here to help?
This is someone who “gets it.” Even he is dismayed by the lack of insight and support from the FDA and Dr. Woodcock. #ALS#DyingWaiting We need your HELP @POTUS@VP
It might look like a bunch of words, but the @US_FDA said it will accept a different standard to get treatments to the #ALS community. ALS is relentless. ALS is taking lives. It’s time the FDA came through on its word.
https://t.co/gQFmvKLe4s