Top Tweets for #APERT
💚 Juny és el Mes de Conscienciació sobre la Síndrome d’#Apert.
👉🏻 Una condició provoca alteracions en el desenvolupament del crani i de les extremitats des del naixement.
💡 Avui il·luminem la façana de l’Ajuntament i el Monument de la Dona de verd per donar-li visibilitat.
Haizea tiene síndrome de #Apert y ha sido la ilustradora de 'Las manos capaces de Jaime', un cuento sobre esta enfermedad rara #EnfermedadesRaras https://t.co/DrBvZCA2N5 por @estrewinnie en @20m #Capaces
Hoy alumnos de 3º del Grado de Enfermería de la asignatura #EnfermedadesRaras de @UBUEstudiantes visitan el @CentroCREER. Cristina Gómez, enfermera, presenta los programas y servicios y @juanjiapert, que tiene síndrome de #Apert, da a conocer su enfermedad #VisitasFormativasCREER
#LevantaeAnda!
O Poder Está Em Ti!
#NzambyNumFerra☀️
#Apert´o ▶️
#TuaHoraDeBrilhar✨
#2️⃣0️⃣2️⃣5️⃣SeráComoTuPintares
#oMensageiro🇦🇴
#DogMurrasPower
#VivaNgola🇦🇴
Luanda - Angola - Africa
Update posted!! My Rockstar is doing his best! I'm so proud of him. Today, he even played in his arcade! @zerohero936
#apert #myhero #midfacesurgery #lefort
https://t.co/stMGJKj9Tn
We are finally home. He's so incredibly strong!
Here's before and 10 days after surgery. Follow along his journey here
https://t.co/stMGJKj9Tn
#apert #midfacesurgery #lefort #myhero @zerohero936
#CONVERSATORIO
🗣Descubriendo nuevos caminos: Vivencias y reflexiones sobre el síndrome de #Apert.
Contaremos con la participación de representantes de #APERT Colombia, España, México, Perú y Panamá.
📅 Miércoles 26 de junio.
🕗 7:00 p.m.
🔗 https://t.co/TunoHnn0em
Surgery is just a few days away. It's so hard to stay strong. I know he's got this.
@zerohero936
https://t.co/OKfuPFDvZ3
#apert #autism #lefort #surgery #choosekindness #braverthanyouhaveeverbeen #myhero #hero
Sunday FUNday with Adi!
She came from Fiji for treatment of #Apert Syndrome - fusion of the skull, hands and feet. Adi is another example of a collaboration between plastic surgeons Scott Rapp, MD, Chris Gordon, MD, and Dayton Children's Hospital neurosurgeon Rob Lober, MD.
Jeremiah's transformation isn't just with his head - it's his hands too!
Children with Apert Syndrome have conjoined fingers (syndactyly) so Dr. Chris Gordon is performing surgery to separate them. Jeremiah will work with therapists to start using his fingers!
#Apert #syndactyly
4 medals in 2 weeks!! He's such an inspiration!! So thankful for every day with him! @zerohero936 #apert #apertsyndrome #autism #SpecialOlympics
Centrinho isn’t just a medical facility; it’s a community of caregivers, researchers, and advocates united in the fight against Craniosynostosis. With each patient they treat and each discovery they make, they’re rewriting the narrative of CS in Brazil. #Apert #RareDisorders
2) The pursuit of excellence extends beyond treatment to education and research. With over 2,018 professionals certified since 1967, they’re shaping the future of craniofacial care worldwide. #Apert #Craniosynostosis #SimposioCS #GlobalSurgery #CirurgiaGlobal #Brazil #Brasil
This family’s dedication to making a difference not only in their community but also on a global scale is truly commendable. Our world has been shaped for the better by their passion and commitment. #SimposioCS #GlobalSurgery #Apert #Craniosynostosis
It all starts with a story. Changes stem from the heart & desire for change💫
We couldn't be more inspired by how this family goes beyond their story to impact every family in 🇧🇷&🌍
They embody power & force! They are making a change #SimposioCS
📍The power of #PCC 🫂
Join us in celebrating a milestone moment in Brazil’s medical community – the inaugural Congress on Craniosynostosis and Apert Syndrome! Together, we’re fostering collaboration and driving progress in research and care. #SimposioCS #GlobalSurgery #ApertSyndrome #Apert
Las mujeres de rosa, los varones de azul #apert
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