Top Tweets for #ASfeelslike
It’s the last day of May so here’s another:
#ASfeelslike my body is a piping hot cup of coffee filled to the brim with no lid.
I carry myself with caution, aware of every step.
If one were to:Bump/Jostle/startle me.
It is going to hurt.
#chronicpain
#AnkylosingSpondylitis
#AnkylosingSpondylitis:
#ASFeelsLike you can no longer reach the back row of the buffet under the germ shield & you're lucky to get anything at all from the front row without crying from the pain.
@BeingCharisBlog #ASFeelsLike - Blurry painful eye, wearing an eyepatch to work (to be able to see) and having to deal with not-on-purpose-but-annoying pirate jokes, worrying about glaucoma & cataracts. Random joint pain and fatigue. Expensive medication and lots of blood tests.
Today is #WorldASDay & I have a form of it #AxSpA. I have 3 of my #art pieces here ranging from not knowing but having deterioration, just living with it, & my reaction to my dx a few months ago.
#illustrationartists #ChronicPain #ChronicLife #spondylitis #SpondyWhat #ASFeelsLike
#AnkylosingSpondylitis is
NOT rare
NOT curable
NOT well-funded
NOT just a white man's disease
NOT your grandma's arthritis
#ASFeelsLike #SpondylitisAwarenessMonth
I am so tired, I am so sore, I am so inflamed, I am so hurting, I am so trying, I am so in pain, I am so still trying, I am so alone, So, so, so now what...? #ASFeelsLike
#ASFeelsLike
a raw network of hot rubber bands underneath my skin,
wrapped around my bones
winding
winding
winding
with every sleep
with every step
#ankylosingspondylitis
#ASFeelsLike being invisible to organizations that claim to represent you.
Say our name, @ArthritisFdn
#AnkylosingSpondylitis #SpondylitisAwarenessMonth
More people have #AnkylosingSpondylitis than #RheumatoidArthritis, yet the @ArthritisFdn doesn't mention it in their 'most common forms of #arthritis' blurb.
https://t.co/GSvV3Z3AHW
#ASFeelsLike life plans sucked from beneath your feet, #pain 24/7, #fatigue beyond imagining, unpredictable future.
#AnkylosingSpondylitis
Most days I can’t remember simple things or am exhausted doing simple tasks. Most days I’m just exhausted. #ASFeelsLike
#ASFeelsLike my spine is a wooden bendy snake, curled up on itself, pulling along the deadweight of my limbs #SpondylitisAwarenessMonth
This #SpondylitisAwarenessMonth , let's spread the word about Ankylosing Spondylitis.
Tweet your story with me using #ASFeelsLike.
Let's go viral with our #pain & #fatigue
This description of what #AnkylosingSpondylitis feels like is pretty spot on from my experience as well. #ASFeelsLike
In 8 days a ton of us will be openly telling you what our #ASFeelsLike, so you better study now before #Spondylitis Awareness Month hits!
[Image: 2 light-skinned people chatting outside. 1 is squatting on their heels, the other is in a wheelchair]
https://t.co/QvmXbatd7D
In 8 days a ton of us will be openly telling you what our #ASFeelsLike, so you better study now before #Spondylitis Awareness Month hits!
[Image: 2 light-skinned people chatting outside. 1 is squatting on their heels, the other is in a wheelchair]
https://t.co/QvmXbatd7D
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