Top Tweets for #AYASCM
Hailey is a childhood cancer survivor who identifies as queer. They are working to increase support for adolescent and young adults (AYAs) with cancer, including those who identify as LGBTQIA+. Read their story: https://t.co/9lcZgIDjqV #DataForChildhoodCancer #AYASCM
In this post, I share an update about how treatment's been going and what's next over the next while.
#mCRC #ColonCancer #AYASCM #CancerBlog #YACancer #WritingCommunity #writerscommunity
https://t.co/Uvh0KE7JED
#cureconnect PISSED OFF! I fought for more than 2 years for my diagnosis. No one listened to me! Now I've channeled the anger into sharing my story, helping others get through this and advocacy. #bladdercancer #urostomy #stage3b #ayascm
For this week's #CUREConnect, we want to hear about your cancer diagnosis. What did you feel at the time, and how are things different now? For a chance to be featured on our website and get free CURE swag, write an essay/blog on the topic and email it to [email protected]
I’m not an #AYA survivor, but a #childhoodcancer survivor, and I’d like to add #survivorsguilt to this list if not already mentioned. #AYASCM
More acknowledged now but as a childhood survivor in 2002 it wasn’t something I knew how to articulate, but I knew I felt something
Q3:What are some of the challenging aspects of remission that most people don’t know or don’t talk about but should? #AYACSM
@margaretsaira @StanfordMed @Stanford_PC @StanfordRO_Res @StanfordCancer Yes there are probably about 5 slides about the increased risk for financial toxicity in specific underserved populations including racial/ethnic minorities and the #AYASCM population.
Thanks for those stats @EK_Drake and all the work you do supporting and promoting #ayascm @CanteenAus @PPattersonPhD
Top 10 highest impressions of #ayacsm 👉 @EK_Drake @cancergirl730 @ScottCapozza @theoncopt @mAssKicker1 @Mc_Fin https://t.co/5B5E36vCF0 via @symplur
Some media voices:
@annalaucis - Accelerators Podcast, which I think is amazing 😂
@GlobalRadOnc - Podcaster @TheOncDocs
@sueyom - EIC at Red, frequent SoMe engager
@MKnoll_MD - #RadOnc author and SoMe expert
@EK_Drake - AYA researcher, founder #AYASCM
@ShikhaJainMD - WIM
‘Understanding AYAs’ psychosocial, communication and informational needs is crucial to addressing this disparity and improving cancer care delivery.’ Thanks to the authors for breaking down the unique challenges that #AYAs face.
cc: @EK_Drake @StupidCancer
#ayascm
@WarnerEcho @johna3877 @ASPrevOnc @annersck @AustinH2O_ I'm excited for your next steps. You know I am a fan! #ayascm
Canteen's youth leadership model has gone global! Back in 2016, with the help of a @PCORI grant, Canteen Australia worked with @BeckyJohnson4 and the team at @MultiCareHealth to establish an AYA oncology patient council at their institution in Tacoma, Washington.
#AYASCM
@FertilityNP Thanks for mentioning @BradZebrack and @DrAnneKatz as speakers for the NCH/OSU AYA Symposium! Adding @DrLeslieAppiah @SarahSeeAYA @BLockwoodMD @ECurranMD @KarenMoody @mroth_MD, Mitch Cairo and Sam Hulett to round out our amazing speaker lineup! #pedsmedchat #ayascm
Advocacy for the needs of #AYA survivors is urgently needed. Such a privilege to partner with the @yacancercanada team on the #YACPRIME study and all the amazing team members especially @SNGarlandPhD @geoffeaton @yaccmom to be able to publish this important data. #AYASCM 2/2
Thank you so much @CancerTodayMag for telling a part of my story people often don't hear, how it all started, and the fears I had. I hope you all will take a few minutes to read this. #ayascm #crcsm #cancer #patient #advocate #survivor #colorectalcancer #CancerAwareness
“The first thing you think is, ‘I want this foreign thing removed from my body,’” says @ARosen380, describing how she felt when she learned she had colon cancer. Her doctors instead urged her to get chemotherapy and radiation before surgery. https://t.co/dknT8ZnORV
Excited to share the findings from our study with this community. Thank you for the opportunity @yacancercanada @yaccmom Please register!! #ayascm
✨THE BIG CANCER HOOK-UP | DEC. 12 | 6:30 p.m. EST✨
Meet our guests!
Fiona will speak with Karine about findings from the YAC Prime study on the quality of life of young adults affected by cancer compared to the Canadian population.
Register here: https://t.co/aBjhVYgSWF
Ironically, had my 1st colonoscopy at age 43 — had to fight to have it b/c I was deemed ‘too young’, but based on my own cancer hx and family hx I had it. #AYASCM, continue to advocate for early detection. RIP @chadwickboseman. #WakandaForever
Thanks for sharing @KDRichardson924. Mental health is a taboo topic often overlooked & not often talked about within the #cancer world, especially with adolescent & young adults! I hope you will consider listening with me! #ayascm #mentalhealth #psycosocial #integrativeoncology
Join SIOfor Episode 10 of our #WellnessWednesday series, "Supporting Mental Health Needs of Adolescent Young Adults Across the Continuum with Mind Body Practices," a round table dialoguee with Dr. Giselle K. Perez, PhD and Ms. Amelia A. Coffaro, C-IAYT.
https://t.co/feF84Lyo8c
@EK_Drake @ARosen380 Thanks @EK_Drake, @ARosen380, & all who participated. It is such an honour & privilege to hear your stories & to learn about how we can help to provide better care. 🙏❤️
#ayascm
A couple of great #tweetchats are happening this week! Tomorrow, for all my #AYA friends, join #AYASCM at 8pmEST, Friday, join @power4patients’s #patientchat at 1pmEST, and Sunday, for my thyca besties 🦋, join #ThyCaTalk at 8pmEST. 😁
Check it! Ep 5: Fertility 101 - a companion to Ep 4; We talk with Donna Bell, MSN, RN, NP-C, an onco-fertility expert who breaks down fertility terminology and the relationship to cancer #fertility #cancer #sarcoma #AYASCM #AYA https://t.co/zxM2HM9g7l
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