Top Tweets for #AZRare
Grateful for the time to share our stories and priorities on behalf of Arizona’s rare disease community. Together we’re amplifying the voices of patients & caregivers across the state! #AZRareTeam Proud moment for the #AZRare Team! 💜 Met virtually with our Arizona Senators' and Congressmens' offices as part of #RareAcrossAmerica2026 with @EveryLifeOrg More meetings to come! #MakeADifference #IAmRare
Thank you @EveryLifeOrg for empowering the #AZRare Team during #RareAcrossAmerica 2026!
Proud to advocate for critical rare disease legislation and stand with our community. #RareDisease #RareAcrossAmerica!
Standing tall in front of the AZ House of Representatives! Hope in my heart, advocating for Individualized Healthcare & a brighter more prosperous future. Keep pushing forward — we make a difference! #TraditionalValues #LibertyFirst #ConservativeHope #MAHA #AZRare #BarbyIngle 🧡🌵
Thank you to Rep @BlackmanForAZ and all the Yes voters in the AZ House today!!!! ... for helping Arizona Pain Patients and Rare Disease Patients across the State. One step closer. #AZRare #OurPain
#RareDC2023 Since we couldn't be in person today, we send positive vibes to the AZ Rare team headed by @team4travis. Thank you for being our voice! 🧡
*Pictures from past years 🧡 #AZRare #RareDisease #RSD #AlgoNeuroDystrophy #Asplenia #ValleyFever #PALB2VarBreastCancer #Graves
@ravensspirit68 @CMerandi @OldHeadFighta I have, but there is more to do. #AZ #AZPain #AZRare #AZleg.
Full day. I'm exhausted and excited. Started w an ACT coalition meeting and ended w an @AZBio meeting w a presentation by Kyle at @Medtronic and 4 patient donation deliveries in-between for @iPainOfficial #AZRare #chronicillness #ChronicPain #RareDisease
Let’s learn about the AZ Pain & Rare Disease Community Resources, Laws & Support available to you! Expert sessions are geared toward Providers, Patients, Caregivers, Public. Save the date! Registration opens in February ‘23 #ChronicPain #RareDisease #AZRare #Rare #Pain #OurPain
#RareDisease @BarbyIngle: 'I enjoyed presenting at the Putting Patients Before Profits in Healthcare, event today. #AZRare #PBMawareness #AZleg @ACTCoalitionAZ @BarbyIngle @iPainOfficial #ChronicPain #RareDisease #Pati…, see more https://t.co/8JJSArJY7K
I enjoyed presenting at the Putting Patients Before Profits in Healthcare, event today. #AZRare #PBMawareness #AZleg @ACTCoalitionAZ @BarbyIngle @iPainOfficial #ChronicPain #RareDisease #PatientVoice
Thank you @RepDLesko and Leg Assist Annie, for supporting legislation to bring treatments and diagnostics to #raredisease patients. #RareDC2022 Your support for the AZ rare community is appreciated. #CareAboutRare #AZRare #RareStar #RareDC2022 #zebra
We just attended a meeting with Rep. Ann Kirkpatrick (D) [AZ-02] and Emily Cummins, Senior Legislative Assistant for #RareAcrossAmerica2021. A Big thanks for your time, effort & support for those in the @RareAdvocates Communities! #RareDisease #AZRare
![BarbyIngle's tweet photo. We just attended a meeting with Rep. Ann Kirkpatrick (D) [AZ-02] and Emily Cummins, Senior Legislative Assistant for #RareAcrossAmerica2021. A Big thanks for your time, effort & support for those in the @RareAdvocates Communities! #RareDisease #AZRare https://t.co/EdH0CPe7zu](https://pbs.twimg.com/media/EvqUJITVcAEUqIX.jpg)
#RareDisease #RareDiseaseDay #RareDiseaseDay2021 #AZRare Prep for our #AZleg meetings this week. #CareAboutRare #IAmRare
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