Top Tweets for #ActionForRare

raising_rareness (Lyndsey Walsh) @raisingrareness

almost 4 years ago

Ireland adopted the UN Resolution on Persons Living with a Rare Disease. It highlights the challenges our community face, let’s get to the action now & make a difference. 300k persons here in 🇮🇪 & their families are the reason why #actionforrare is necessary

RARE Revolution Magazine®

@RareRevolutionM

about 4 years ago

To make sure you continue to see our content on your feed, make sure you're following us on Facebook and Twitter at @ActionForXP or using the details below. Thank you for having us @RareRevolutionMagazine - until next time! 👋 #ActionForRare #ThisIsXP #TuesdayTakeover

RareRevolutionM's tweet photo. To make sure you continue to see our content on your feed, make sure you're following us on Facebook and Twitter at @ActionForXP or using the details below. Thank you for having us @RareRevolutionMagazine - until next time! 👋 #ActionForRare #ThisIsXP #TuesdayTakeover https://t.co/kBQ6fyT7uD

RARE Revolution Magazine®

@RareRevolutionM

about 4 years ago

Scottish charity Teddington Trust announces new name and new look to launch its next 10 years of service to people affected by the ultra-rare condition xeroderma pigmentosum (XP) https://t.co/s3WTnSStxY #XP #XerodermaPigmentosum #ActionForXP #ActionForRare

Top Tweets for #ActionForRare

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