Top Tweets for #ActionForXP
Welcome to our #RareDiseaseDay Takeover! 🌟 Today, we’re shining a light on #XerodermaPigmentosum (#XP) and celebrating the strength of the XP community. Join us to celebrate the strength of the XP community. #RareDiseaseDay #ActionForXP https://t.co/nMrzyPsW3D
@actionforxp
It doesn’t matter what stage of your life journey you are at, we are here to help. So whether you need us now or in the distant future, always know you are not alone
#TuesdayTakeover #ThisIsXP #ActionForXP
https://t.co/i6WcLDbVwb
Patients with XP lack fully functioning DNA repair mechanisms which means people with XP are 10,000 times more susceptible to skin cancer than the general population
#TuesdayTakeover #ThisIsXP #ActionForXP
https://t.co/wPe6DXRrAS
Xeroderma Pigmentosum (XP) is a very rare genetic condition characterised by an extreme sensitivity to ultraviolet radiation (UVR) which affects around 120 in the United Kingdom and equally low numbers around the world.
#TuesdayTakeover #ThisIsXP #ActionForXP
#ActionForXP, in collaboration with the @dundeeuni’s Scottish Centre for Comics Studies and the teen XP community, launch a new resource to support and empower young people with #XerodermaPigmentosum (#XP).
Read the full #PressRelease here: https://t.co/eEOi8AreMH
Scottish charity Teddington Trust announces new name and new look to launch its next 10 years of service to people affected by the ultra-rare condition xeroderma pigmentosum (XP)
https://t.co/s3WTnSStxY
#XP #XerodermaPigmentosum #ActionForXP #ActionForRare
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