Top Tweets for #Acuseeds
The BBC actually hates people with M.E., Presumably via the Science media centre who want to steer opinion on the much neglected Neuroimmune condition. Very minimising here, and the #acuseeds fiasco, and recent #bbcdoctors + poor #bbcnews reporting. #BBCBreakfast #bbcqt #bbcone
Highlights from Strike TV Series based on a book by JK Rowling. Two characters have #MyalgicEncephalomyelitis.
Inigo an ambulatory wheelchair user who is seen walking later is described as being able to do without it when his family aren't looking.
It would be great if @drjoshuawolrich could do one of his de-bunking videos (like he did for #AcuSeeds),
about the harmful misinformation about #ME #Lyme #LongCovid which are currently getting a huge amount of publicity -📚, while #pwME are left to die while under NHS care.
I have concerns that this will be worse than #AcuSeeds for #pwME because of her bigger profile.
Here's the fb post:
https://t.co/sL7XKMSeiq
I shouldn't have to say, but be nice and polite when responding.
#MECFS #SevereME #LongCovid #ThereForME #Close2ME #MillionsMissing
At the end of the conversation @oonagh_cousins mentions that the #BBC will continue to cover #LightningProcess in a series about snake oil,
it would be great if they could also cover #AcuSeeds in the same series 🐍
#ME #MEcfs #PwME #LongCovid
I recently interviewed Oonagh Cousins, the world-class rower who had discussed her negative assessment of the Lightning Process with the BBC. I wanted to hear more about her LP experience and find out what she is up to now. https://t.co/eiu3qcrUfT
Why aren’t the media reporting what ME & LC is really like for people?
I’m trying to type bc I want the media to know but the brain fog is all consuming today.
Forget #AcuSeeds & report on real life not stupid products that offer false hope yet again to people whom are
"In the absence of any challenge, the ECU considered viewers would have the impression of being offered effective treatment for the condition."
"In the ECU’s judgement this was materially misleading and not consistent with the BBC’s standards of accuracy."
EXACTLY. 👏
#AcuSeeds
Dragons’ Den, BBC One, 18 January 2024 - Acu seeds complaint and outcome
"This edition of the programme included a successful pitch for Acu Seeds, a product which applies acupressure to the ear by means of “ear seeds”. Six viewers complained that the pitch included claims that the product could be beneficial in the treatment of myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) which had no scientific basis and were potentially misleading to the audience. "
Read more here:
https://t.co/z1aTKwkHie
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #BBC #DragonsDen #EarSeeds #Acupuncture #AcuSeeds
Like we haven't got ENOUGH to deal with - the BBC Executive Complaints Unit has said "no case to answer" over the #AcuSeeds scandal.
RIGHT.
We will redraft the template complaint we did for the community to Ofcom - and off we then go. We cannot let them get away with this as it IS part of the problem #SaveCarlasLife
#SaveCarlasLife is the indirect consequence of media creating stigma around #MyalgicEncephalomyelitis. The BBC refuse to apologise for their #dragonsden Acu Seeds episode which minimised the debilitating Neuroimmune illness. #bbcqt #PMQs #MAFSAU #Channel4News #BBCLondon #C4News
@DafoeWhitney If you ground #acuseeds into dust would it become "fairy dust"? 🤨 Asking for a friend.
I hope someone finds some #acuseeds in their garden this morning and is immediately cured and gets super powers and saves children from getting squished by trucks. 🦸♂️🦹♂️😝
#mecfs #LongCovid #ScamAlert
It would be great if those who say theyve had #ME could stop doing their best to monetise their N=1 while doing damage to #pwME fulling stigma, supporting BPS cabal dismissing biomedical research & @NICEComms ME g'lines
& MSM must stop giving them a platform
#AcuSeeds #Cureable
Hey #pwME, can I put you on standby for Friday?
A lady with #MECFS who is a practising EFT therapist is doing a livestream with @VirtualVillHall on tips for living with #MECFS.
It may well be great, and helpful. Or it could be another #AcuSeeds.
Info:
https://t.co/rgWr88fWTj
@mtgScientist24 I can’t read that article without a subscription but everything I’ve read says BBC initially took the episode off of iPlayer for a review but then put it back up with a “disclaimer” that #acuseeds aren’t intended to cure any disease. But of course that wasn’t the message conveyed
@DailyMailUK @MailOnline please can you watch @Channel4News & correct the article you wrote about #acuseeds you are using a narrative created decades ago which is incorrect. Lived experiences matter more than lazy journalism. #nottired #MyalgicEncephalomyelitis #meawareness
"There's a culture and attitude that M.E. doesn't exist."
For years many doctors believed M.E. was 'all in the mind' of those who were suffering. Times reporter Sean O'Neill lost his daughter Maeve 2021 aged 27 after suffering from severe M.E.
@BBCDragonsDen @BBCOne @Ofcom Days without an apology from the BBC for #DragonsDen #acuseeds episode tracker: 32 days
Meanwhile Channel 4 are doing better #journalism.
#myalgicencephalomyelitis
@BBCDragonsDen @BBCOne #BBCBreakfast #bbcqt #skynews #GBNews #talktv #itv #ofcom #BBCNews
https://t.co/JhDufUdnrW
Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up
Karmas a relaxing thought… #acuseeds
Acuseeds have a 2 star rating on trustpilot from 39 reviews. Seems a lot of people aren't happy with the product or service with the inability to cancel an order, only getting part of it or seeds falling off and into the ear canal, aside from not working.
https://t.co/y8aKfgWuaJ
If #Acuseeds are now saying on their website that their products are not used to 'treat' a disease, what exactly are they for?
They are just earrings.
Earrings that they previously alleged cured a multi systemic complex disease.
Gets murkier by the week
#DragonsDenConnedME
Last Seen Hashtags on Sotwe
Most Popular Users
Elon Musk 
@elonmusk
241.6M followers
Barack Obama
@barackobama
119M followers
Cristiano Ronaldo
@cristiano
114.2M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Narendra Modi
@narendramodi
107.2M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.4M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
89.9M followers
Taylor Swift
@taylorswift13
83.8M followers
Lady Gaga
@ladygaga
75.3M followers
Virat Kohli
@imvkohli
73.2M followers
Kim Kardashian
@kimkardashian
70.8M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.2M followers
Bill Gates
@billgates
65M followers
Selena Gomez
@selenagomez
63M followers
The Ellen Show
@theellenshow
62.3M followers
CNN
@cnn
61.8M followers
X
@x
60.7M followers