Top Tweets for #AppendixCancers
This #appendixcancerawarenessmonth, we pause to honour those we have lost to #appendixcancers #PMP. Their voices continue to echo in our hearts & actions. #Inmemory, we recommit to raise awareness, fund research, & support those living with cancer.
#LifeAndLoss #PMPRemembrance
Thank you @myESMO #ESMOGI2025 chairs & organizing committee to bring GI #rarecancers to the stage and having me in good company. I hope I brought some awareness to #appendixcancers #pseudomyxoma #peritonealmesothelioma
#ESMOAmbassadors
@APeritoneum @acpmpresearch @H12Octubre
As with many #GI #Cancers - #AppendixCancers are on the rise in younger patients and need increased vigilance
@acpmpresearch @AppendixPMP @appendix_cancer @NewsJellybelly @appendixcancer @appendixcancer1
https://t.co/YkrcU96HSA
Sad to hear of @AngelaPMPS passing. A kind & caring lady who helped so many in the @PMPSurvivor Community. She campaigned tirelessly to raise awareness of #Pseudomyxoma & #AppendixCancers & supported the aims of @acpmprfresearch to find a cure for this #RareDisease R.I.P ππ
With the heaviest of hearts Angela Brook, PS Trustee, has passed away. For many years, she supported people & research around the globe. She was funny, compassionate & so, so knowledgeable. She was loved. Heartfelt condolences to Bill, Connor and Victoria
Her fellow Trustees xxx
Being diagnosed with something rare is scary. With more common disease, you might already know a little about it or know someone that does. That's often not the case with #appendixcancers and #pseudomyxomaperitonei (PMP).
How did you feel when you were diagnosed?
#rarediseasday
Setting up a fundraiser can be really easy on social media platforms. Unfortunately, we can't do that on Twitter. If you'd like to support our current research fundraiser, go to https://t.co/BiDk7OxpcY
@Flatmark_Lab @twitter @elonmusk
#pseudomyxomaperitonei #appendixcancers
We asked what 3 words came to mind upon being diagnosed. Sharing some of the answers received. A diagnosis of a rare condition primpt such similar emotions.
#RareDiseaseDay #pseudomyxomaperitonei #pmpsurvivor #appendixcancers #rarecancer #shocking #unexpected #frightening
It's an astonishing facts that 47% of cancer diagnoses in the UK are for rare and less common cancers. βCommonβ and βrareβ are obviously relative terms and definitions vary in different countries.
#RareDiseaseDay #pseudomyxomaperitonei #pmpsurvivor #appendixcancers
We asked you what three words came to mind when you thought about your diagnosis. We're sharing some of the responses with you.
#RareDiseaseDay #pseudomyxomaperitonei #pmpsurvivor #appendixcancers #upset #anger #shock #rarecancer
A big thank to @NinaFinbow for her continued support of @PMPSurvivor. This will help us towards our fundraising target of Β£50k!
#WorldCancerDay #pseudomyomaperitonei #pmpsurvivor #appendixcancers
On #WorldCancerDay like to warmly thank all those able to make brunch raising Β£980 (equates to Β£1,960 as gen donor matching!) for @PMPSurvivor funded project to create new vaccine thatβll help sufferers unable to have targeted chemotherapy https://t.co/Yu7rNaqM5N #rarecancer
Did you get the right answer to our question?
#RareDiseaseDay #pseudomyxomaperitonei #pmpsurvivor #appendixcancers #RareDiseaseDay2023
On average, how long does it take someone with a rare disease to get a diagnosis?
#rarediseaseday #pseudomyxomaperitonei #pmpsurvivor #appendixcancers #showyourrare
We're looking ahead to Rare Disease Day and how we can sum up our experiences as patients - we need your help! What three words come to mind when you think about your diagnosis?
#RareDiseaseDay #pseudomyxomaperitonei #pmpsurvivor #appendixcancers
We're supporting the campaign for a Rare Disease Day Google Doodle! 𧡠1/8
#rarediseaseday #pseudomyxomaperitonei #pmpsurvivor #appendixcancers @rarediseaseuk @rarediseaseday
Want to conquer a 13.1 mile route through four magical Royal Parks and feel great about your achievement? Apply for a place in the Royal Parks Half Marathon and run in aid of Pseudomyomxa Survivor!
https://t.co/RJYrinlPmu
#pseudomyxomaperitonei #pmpsurvivor #appendixcancers
Have you joined our new Facebook group yet? If you've been affected by #PseudomyxomaPeritonei (#PMPCancer), #AppendixCancers or other rare peritoneal malignancies, then this is the group for you.
https://t.co/VwEGbN5j86
#pmpsurvivor #notalone
In the UK the most common types of cancer are:
π£ breast cancer in women
π£ prostate cancer
π£ lung cancer
π£ bowel cancer
Then there are less common cancers, such as melanoma and bladder cancer. Then there are rare cancers including #pseudomyxomaperitonei and #appendixcancers.
This February, in the lead up to #RareDiseaseDay, we're sharing some information about #RareDiseases, #RareCancers and #pseudomyxomaperitonei. You can help by liking and commenting our our posts and by sharing them. Thank you.
#pmpsurvivor #appendixcancers
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