Top Tweets for #PMPCancer
Itโs been a really shitty week, Iโve had a bundle of tests, my MRI came back with some concerbs. Iโve been in remission for over 5 years from #PMPCancer. Hopefully by next week Iโll have some good news. But the irony of mobile god made me ๐ #lifesafuckingmiracle #NBL ๐
@sarahjgorrell what an honour to be with you this morning ๐ @BBCSussex #pseudomyxoma #appendixcancerawarness #radio #liveonair #pmpcancer #raceforlife
Any food tips to help someone (a bit stubborn ๐) gain weight quickly after major surgery?
My father is severely underweight, and if he doesn't get his weight up over the weekend, he will have to get a PIC again.
#ThankYou #PMPCancer
A week ago, my father came home from spending 18 days in the hospital after extensive abdominal surgery that saved his life.
Tomorrow, he has lengthy ostomy and urology appointments. Would you please pray for the Lord's grace and strength? Thank you all SO much! โค๏ธ
#PMPCancer
Drains and lines galore
Day 4 post op having some Jelly after MOAS #moas #pseudomyxoma #appendixcancerawarness #pmpcancer #rarecancer #pseudomyxomaperitonei #pseudomyxomaperitoneiawarness #BasingstokeHospital
This is such an important issue. Prior to my cancer diagnosis I lived with #UlcerativeColitis (& UC related arthritis) for 20 years & early diagnosis is crucial to a positive outcome. It's time to #CutTheCrap
Incidentally, my #PMPcancer & stoma formation was unrelated to my UC.
So proud of how much has been achieved in a short space of time with @CrohnsColitisUK Early Diagnosis Campaign. Huge thanks to @HannahB4LiviMP for raising this with the PM at todays PMQ also thanks to @RishiSunak for agreeing to meet me to discuss how we can take this forward ๐
Appendiceal cancers are rare and can trigger few symptoms until theyโre advanced and can be difficult to detect and treat. To learn more, go to
https://t.co/uuDwLsSX8n
#appendixcancer #augustforappendixcancer
#pmpcancer #appendixcancer #AppendixCancerAwarenessMonth
Incidence rate of PMP is 3.2 per million of the population. Rare is rare but getting patients on correct pathway is crucial to the management of their disease. #pmpcancer #appendixcancer #pseudomyxomasurvivor #pseudomyxomaperitonei #augustawarenessmonth #diagnosingcancer
Check out this video about a possible new treatment for #PMP our group is working on. #peptidevaccine, #pmpcancer, #kurforpmp, #mutatedGNAS
Please share.
https://t.co/0ibdSY3p8R
#pseudomyxomasurvivor https://t.co/P8toqe5ptJ via @FacebookWatch
In our 2nd edition of #RarityLife Claudia shares her battles with pseudomyxoma peritonei, a very rare cancer:
https://t.co/JFMRlap4KQ
#pseudomyxomaperitonei #raredisease #rarecancer #pmpcancer #hipec #oneinamillion
@PMPSurvivor @MaggiesCentres
Have you had a colonoscopy and how did it go for you? It's not something people normally want to discuss as it can feel embarrassing to talk about.
Find out more here - https://t.co/2YsziXHS2k
#colonoscopy #appendixcancer #pmpsurvivor #pmpcancer #pseudomyxomaperitonei
Have you joined our new Facebook group yet? If you've been affected by #PseudomyxomaPeritonei (#PMPCancer), #AppendixCancers or other rare peritoneal malignancies, then this is the group for you.
https://t.co/VwEGbN5j86
#pmpsurvivor #notalone
"Please go see a specialist. It will at least put your mind at rest. We're waiting to see a specialist in this area; it's scary and you need to feel supported and listened to by the doctor."
Marsha
https://t.co/Ahi7bRcvG6
#appendixcancer #pmpsurvivor #findaspecialist #pmpcancer
Why Me?
We all ask ourselves this when we receive a diagnosis of #pseudomyxomaperitonei or #appendixcancer. If you've looked after yourself, eaten well and are a non-smoking, teetotaller marathon runner, you must feel particularly perplexed.
#pmpsurvivor #pmpcancer #pmpawareness
@SU2CUK @BritishBakeOff A few similarities with my situation. Incurable, inoperable & no idea how long left. Clint, I'm full of admiration for you. Let's just both be stubborn & keep giving cancer a kicking!!!!
#pmpcancer
@GCP_Edinburgh If you haven't already, please listen to this. There's some English #numptie for the first 25 minutes talking #kiltwalk #pmpcancer, after that the brilliant Piper & Cosmo are at the fore.
These children walked 27 miles raising money for the wonderful GCP
@THunterF @thekiltwalk
"For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked."
~ Susan
How did it all start for you?
Read Susan's story to find out more.
#appendixcancer #pmpcancer
https://t.co/j1KwvWyeTh
To all those who have wished me well, THANK YOU! What a difference a day makes. While far from perfect, I'm doing much better today. Whew! #PMPCancer
Today is a lost day. Nausea, severe pain, and fatigue from this week's chemo. I re-read the kind, supportive messages I received this week. They help. The drugs I just took also help. ๐ Thank you! I know tomorrow will be better. #StayingStrong #PMPCancer
Tomorrow, my journey gets unpleasant ... again. I resume chemo after a 2-month break. I'll be on it for 3-months, then another break. As long as it slows down the cancer, it will be worth it. Good thoughts & prayers are always appreciated along with patience. #PMPCancer
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