Top Tweets for #BDSRA
🧬 RESEARCH UPDATES 🧬
There’s LOTS to catch up on! Read the latest Batten disease research and clinical updates, written by our Head of Research & Medical Affairs, Dr. Ineka Whiteman: https://t.co/dIITWDP626
#BattenAdvocatesForACure #science #research #bdsra #battendisease
❗TONIGHT❗
Join BDSRA’s Life Goes On program and attend tonight’s Grief Chat at 7 p.m. EDT. New attendees must register. Learn more and sign up: https://t.co/CEDp7tHiey
#GriefChat #BattenDisease #BDSRA
Happy #BattenDisease #Awareness Day! We love all the #warriors out there, including our own #friend and #classmate ! #BDSRA #Batten #battenday2023 #beyondbatten #friendships #preschool #PSLovesU @fcpsnews @PineSpringFCPS @FCPSR2 @NIH
Thank you Batten Disease Support and Research Association Australia #BDSRA for supporting research into speech and language in Batten Disease. @MCRI_SpeechLang
Team BDSRA walked our 5k out at the park of Roses in Columbus, Ohio. We took the morning reflecting on the legacy of all the work done before us and all the work being done now. We are team #EveryBattenChild every day. #BDSRA #BattenDay2022
Earlier this year, we had the chance to speak with Amy Parker, President and CEO of @BDSRA. On this year's International Batten Disease Awareness Day, we hope you will revisit Episode 17 to learn more about this rare disease >> https://t.co/lO4tYMUox4 #BDSRA #Biorasi2022
"Summer is a bright caring little girl who loved to see people smile. She has said from an early age that seeing people smile makes her heart sing." https://t.co/MKztP1hRTK @BDSRAC @BDSRA @BattenDiseaseuk #BattenDay2022 #BattenAwareness #BDSRA #HopeforSummer #RainbowsforSummer
Tomorrow is International Batten Disease Awareness Day 🧡💙
12 noon to 5pm mini tombola on our drive
If we don't get visitors, we'll camp by Tesco Esso on main road! Maybe we'll end up in local news as public menace 🤣🤣
#BattenDay2022 #BattenDisease #BDSRA
@DonnyFreePress
Registration for the International Batten Disease Awareness Day Virtual 5k Run/Walk is live!
To register visit the link in bio!
#BattenDay2022 #BattenAwareness #BDSRA #NCL #CLN #BattenDisease
Happy International Women's Day! We stand behind our Batten Mothers, Aunts, Grandmothers, Sisters, Friends, Board Members and staff. Today we honor your strength and passion. #StrongWomen #BDSRA
For #RareDiseaseWeek2022, BDSRA is advocating for the 2-4 of every 100,000 children & adults in the U.S. affected by Batten Disease. Follow @BDSRA on social media to learn more about the impact of Batten Disease on the Rare Community. Link in Bio! #BDSRA #NCL #RareAlly
This #ToolboxTuesday we are asking our friends in Iowa to support HSB 690 /SSB 3122 which was introduced into the Iowa State Assembly this past week. #RUSP #NCL #BDSRA
For #RareDiseaseWeek2022, BDSRA is advocating for the 2-4 of every 100,000 children & adults in the U.S. affected by Batten Disease. Follow @BDSRA on social media to learn more about the impact of Batten Disease on the Rare Community. Link in Bio! #RareAlly #BDSRA #NCL
This #ToolboxTuesday we urge you to sign-up for Rare Disease Week on Capitol Hill. Show your stripes and share your stories. To find more information check out the link in bio! #RDW2022 #BDSRA #NCL
Why is storytelling so crucial to research and support in #raredisease? Make the connection next week on the Few & Far Between podcast. Our guest will be Amy Fenton Parker, President and CEO at #BattenDisease Support and Research Association (#BDSRA) >> https://t.co/CfPRpGh4kx
Congrats to #QIMRBerghofer's A/Prof Anthony White awarded $49,600 from Batten Disease Support and Research Association Australia #BDSRA for the project: Integrating computational and in vitro approaches to achieve drug re-positioning for #Batten disease https://t.co/qPo4V4O3sS
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